All Blog Entries

  1. Alone again

    Well my family (except me) has gone camping. I try to put on a brave face as they leave. The fact is I don't like being left alone. There is the whole aspect of not being able to do what I used to be able to do. Then there is the other side the fact that I am afraid to be left alone. The only thing that keeps me sane is my dogs. You see I have been the victim of a violent crime twice. Once on the streets as a teenage runaway and once in my own home when I lived by myself. At 16 I was held in bondage ...
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  2. Lupies & Summer

    Hello Family;
    Summer is upon some of us and fast approaching the rest of us. Having Lupus presents us with challenges during the summer months as we are extremely sun sensitive. So, each summer, I like to offer a few reminders to help us get through the season without too many problems.
    For us, pain is triggered by many things: the main triggers are the weather .. and especially the sun. Photosensitivity is one of the most aggravating triggers of our disease and it doesn't take ...
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  3. newbie

    Hi,

    This is my first blog, not sure how this works.
    Im 40yrs old and just found out last week that I have lupus I really started showing syptoms in june-july of "08" pnumonia, plurisy a rash on my face and in November the body aches. I am very frustrated at the medical field, all my test but one were coming out negitive but contuine to hurt. I feel sorry for people that don't work in the medical field and don't have a lot of knowledge about it. The rheumotologist ...
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  4. It just keeps getting better!!!

    A lot has happened since I last posted in here... and it's all good! The day after my last appointment with my rheumatologist, I went to see another rheumatologist up at UCLA. He pretty much reassured me that my rheumatologist was doing the right thing in terms of my treatment, and he was extremely impressed with my progress as he was looking at my lab results over the course of the last several months. I was also able to participate in a few studies they were conducting at UCLA. They didn't ...
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  5. 5.13.09

    This weekend was amazing! I had so much energy and was ready to do everything and anything!
    Saturday I got off of a 24 hour shift and came home and took a shower and Keith and I went to Sargent, (a small town on the water), and took our jet skis and another couple out there. Keith's parents have a house on the water. It was SO beautiful! We spent the day on the water and sitting on the doc in the back yard. It was great to get away.
    Then Sunday Keith and I took his mom and dad and
    ...
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