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  1. Just Checkin In...

    Went to San Francisco last weekend! Had a blast! No pains either... woohoo!

    I've been doing really well. Labs are still normal, and I'm now down to 10mg of prednisone! I couldn't be happier about that. And my rheumatologist said I can lower by 1mg every 2 weeks until I am prednisone-no-more (so long as I don't have any problems, but I am VERY optimistic about this!)

    I'm expecting a slight flare in a day or so, as I always get when I lower prednisone, as my ...
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  2. Today was a good doctor day!

    I went to see my new pcp today. It was so productive and hopeful and CARING! Hubby and I both left there feeling so ARMED.

    She is going to set me up an appt with a neuro she knows of. She said he's known to work with his patients. She's also setting up an appt with a gastro to look into my trouble swallowing. She wrote me a new script for oxy and wants me to try lysine capsules. She also wants me to try CoQ10, a heart vitamin that's known to help with head pain. She also wants me ...
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  3. Life

    I'm at school and I have been thinking about life and love. i am in love with a guy who as far as I can tell doesn't like me.
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  4. The light bulb turned on...

    Yes, the bulb suddenly shone very brightly.
    I have been diagnosed with SLE. Thats depressing. For a long time, even very recently, I was in denial. Maybe the experts got it wrong?? Surely this is all just in my imagination? I could think of a hundred other reasons for symptoms I was experiencing! Rash? Nah.. just a bit too much sun. Unexplained bruising? Must have bumped myself. Pain.. yeah well I am getting older. There is a justifiable reason to explain them all away. Hmm.. they ...
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  5. Going To the Beach

    Were going to North Myrtle Beach. We leave today and comeback next Thursday. Not sure if there will be Internet. I get nervous when I go on trips. But after I get there I get OK and then I don't want to come back. I plan to find a place to rent a power chair for while I'm there. So I will be able to do more. I'm also not feeling well. So I hope the time away will help. One thing we do there is go to movies. Because that's one thing we never get to do here. Sometimes we ride to Charleston or Wilmington ...
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