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  1. Its just not fair. Help.

    Quote Originally Posted by neonlilies View Post
    Hi, I am new to this site. My mom pointed it out after one of our recent fights and said maybe someone could help me. She has lupus. She was diagnosed about five years ago i guess when i was ten or eleven. We were really close and had probably the best mother daughter relationship ever. Before she was diagnosed i remember her getting sick alot and saying she hurt but hiding it and still being a normal mom. Then afer, things changed. She stopped trying i guess. Then i was forced to grow up fast,
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  2. Conflicting thoughts today

    A couple of days ago my rheum doctor told me I don't have Lupus. She's been treating me for it since June but when my lung doctor called her because he feared I had shrinking lung disease, she essentially acted like I was crazy and that she never said I had Lupus. My primary doc is sure I have Lupus but the lung doctor was pretty hot under the collar, as if I would lie about something like that. Exactly why would I do that?

    I see my primary doc next week and will find a new rheum. ...
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  3. By Golly, it's a good day!!!

    I wasn't sure I'd ever be able to say this again, but I feel positively "normal" today! I'm taking it slow but I've still accomplished so much today and haven't had the pain and dragging fatigue that usually comes with it. Maybe the Plaquenil is starting to kick in. If this is how I'll feel when it finally gets into my system, I have so much hope! And I can remember things! I've made appointments I kept forgetting to make (like one for the plumber - definitely needed that one to get ...
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  4. It's the little things I miss

    First, this is not a downer blog entry. Life is fluid and you have to ride the wave and I have certainly had numerous tsunamis in my life! By the way, they usually end up working out far better than if I had stayed in the status quo. But since 2006 when the fibro first set in so much has changed. For two years I struggled for a diagnosis and still managed to work and workout. I got laid off in 2008 and for some reason got so much sicker. Maybe I just finally had time to realize the pain, who ...
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  5. There are good things too

    As I have read back over what I have told you about myself I realize that I haven't said anything about the good things. Maybe, sometimes, I need to remind myself about the good things. So here it goes:
    I have a 16 year old daughter who is very smart, beautiful, and musically talented. We share a very close relationship that may not have developed so well if I hadn't gotten sick, it brought us closer. I don't lie to her about the realities and she trusts me enough to share everything with ...
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