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  1. Too long but needed to vent

    Wow, it has been such a hard month! I don't know if it's winter and the cold or if my body is cycling for another huge flare. I have been in so much pain!! And, of course, there's the swelling around the joints and my eyes. I've known without a doubt that I have Lupus for months but if there was any doubt, it's completely gone. The Reynauds and the Sjourns just nag. I know I sound like a constant downer but this is pretty much the only place I let it all out. I hate all the medication and ...
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  2. Lupus and Shingles (Herpes Zoster)

    I have been "gunned down' by shingles recently. If you wonder what is it, here is my account recorded in my blog.
    http://livingmeaningfullywithlupus.b...es-zoster.html

    I am still coping with the nerve pain that comes with it. If you have remedies to relieve such pain, please share with me. Thanks!
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  3. Finally Very Exiting News

    FDA APPROVES BENLYSTA® FOR LUPUS IN BREAKTHROUGH FOR MILLIONS OF SUFFERERS
    Lupus Research Institute Welcomes First New Treatment Approved For Lupus in More Than 50 Years
    Wednesday, March 9, 2011

    The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations welcome the U.S. Food and Drug Administration’s (FDA) historic approval of BENLYSTA® (belimumab) for systemic lupus erythematosus (lupus), launching the first safe and effective ...
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  4. Yayeeeee, im back on it tomorow

    by , 02-20-2011 at 02:05 PM (Journey to my first half marathon.)
    I git the arch supports, and they do wonders, gna go back to hitting the road again tomoro, im soooooper excited.
    wish me injury free and sweaty runs ahead
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  5. Simple Pet Peeves

    With this disease being so unique in how it affects people, I'm just going to take a moment and complain about my own personal pet peeves. I doubt this will be too interesting to most of you so I will not be the least bit offended if you check out now : ). But my biggest problem is my lungs. Things aren't as bad as they were, say, three months ago, but I run out of air pretty quickly -- especially during a conversation. In fact, I often can't finish a simple sentence. It's kind of like the ...
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