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  1. Finally Very Exiting News

    FDA APPROVES BENLYSTA® FOR LUPUS IN BREAKTHROUGH FOR MILLIONS OF SUFFERERS
    Lupus Research Institute Welcomes First New Treatment Approved For Lupus in More Than 50 Years
    Wednesday, March 9, 2011

    The Lupus Research Institute (LRI) and its National Coalition of state and local lupus organizations welcome the U.S. Food and Drug Administration’s (FDA) historic approval of BENLYSTA® (belimumab) for systemic lupus erythematosus (lupus), launching the first safe and effective ...
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  2. Yayeeeee, im back on it tomorow

    by , 02-20-2011 at 02:05 PM (Journey to my first half marathon.)
    I git the arch supports, and they do wonders, gna go back to hitting the road again tomoro, im soooooper excited.
    wish me injury free and sweaty runs ahead
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  3. Simple Pet Peeves

    With this disease being so unique in how it affects people, I'm just going to take a moment and complain about my own personal pet peeves. I doubt this will be too interesting to most of you so I will not be the least bit offended if you check out now : ). But my biggest problem is my lungs. Things aren't as bad as they were, say, three months ago, but I run out of air pretty quickly -- especially during a conversation. In fact, I often can't finish a simple sentence. It's kind of like the ...
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  4. My Layoff

    by , 02-14-2011 at 06:39 AM (Journey to my first half marathon.)
    So ive been diagnosed with Plantar Fasciitus! ( irritation and swelling of the thick tissue on the bottom of the foot)
    In due time I'll be recieving custom moulds for my shoes, and hopefully proper recovery can begin, Im super excited to take the road again wish me luck.
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  5. Exhausted overactive mind, I hate sleepless nights

    My day is shot, all my plans may be for naught. this really is miserable. I'm still going to try and cook and bake this afternoon, but then I'll have overdone and tomorrow will be worse. I don't know if I couldn't sleep because of my pain or my overactive mind that tends not to shut down. I just hate being like this. I'm going to get my the big garden tub and soak my body in the hot water. Take some more pain killers and maybe I'll survive the day. I just don't know..............
    ...
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