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  1. Had my first Benlysta treatment

    Hi everyone,

    I had my first treatment of Benlysta on 06/03/11 and it went well, up until I got home and had some dizzy spells. Wont let a few dizzy spells stop me from continueing with the treatment. So here is how my weekend went, had severe abdominal pain, lots of joint and muscle pain to the point i was ready to put myself out of my misery but I self medicated and was able to get the pain somewhat under control. I cant say for sure if it was the Benlysta or my Lupus rearing its ...
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  2. Answers provided on this forum

    Quote Originally Posted by luv1only63 View Post
    i am new to this site and have learned so much from reading the posts. i have a couple of questions, 1. how is a flare defined? and i now have scaly dry patches on my ankles, legs and feet. could this be associated with lupus?
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  3. i keep going to the dr's

    well i didn't go to work again and I'm off to the Dr again. i keep getting these dizzy and light headiness spells.. i read that you should go to the Dr for everything to keep a paper trail , so when i have to go on S.S. it might getting me on it faster. not sure if this is true. i hate the way i feel anymore and i want to be healthy again..
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  4. Results 5/18/2011

    Back form the docs, I think he is trying to keep my hopes up.positive on the ANA test...again. but he is waiting on the results from another test for Lupus.....I have also had my R.A. diagnosis taken away...
    May I ask you a question, should i Expect this roller-coaster ride from the docs? no meds yet....
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  5. There's no way around it...

    I haven't been on here too much recently. So much has been going on I haven't had time to think much less read all the daily posts on here. I've tried checking in but its alot sometimes.

    Things... Are good. Sort of. Stressful. Tiring. My home is not my home anymore. My fiancÚ and I are packing to move somewhere in the next two weeks. We don't know where yet... But hopefully somewhere... I find myself sad about this chapter ending in our life.. This is our home. We've built a life ...
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