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  1. Ok well I hope this is the one place someone can be honest! I am scared to death!

    I am not sure what to expect from this but from what my doc tells me this should be getting better. But honestly the first 2- 3 weeks of methotrexate and anti-inflamatories and pain meds and it felt as though was getting better but now seems not so much. Its hard to type my hands get so stiff and hurt. There is always something hurting. Does this ever get better and less meds? My mouth tastes like a dry pharmacy, YUK! LOL! I am trying very hard to be funny. When I am really sad and scared. Just ...
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  2. What a month this has been!

    I was recently diagnosed with Lupus about 6 months ago while my husband was deployed for a year. That was fun to say the least. I have read a lot about lupus but have found no matter how much I read about it, doesn't replace actually talking to people who are living with it. The past couple of months have been really painful, finally went to the doc 2 weeks ago and found out my ANA was 12 and was 3 times worse than it was 6 months ago. Not sure what all that means or how high or low its supposed ...
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  3. i thought i was handling this good

    I was fine and now my body feels like its on fire and I can't stop crying. I told myself this crap isn't going to kill me but times like this I am certain it will. Icant keep going to bed every time I'm scared. I'm wondering if it was the trip to the grocerie store that started this are if this the new normal everyone talks about. I promised myself after a few things happened today I was going to keep my conversations to this site are at my drs office sorry I'm acting like a four year old
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  4. hair loss

    :,( I can handle everything else but my hair is falling out and I feel alone. It seem as if everyone around me just doesn't understand how it fells to b down... I lost 20 pounds and I dk how to gain it back. Lupus flares are tuff to handle when u feel alone.. Help!!!
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  5. Sometimes i just want to stop all meds..

    Quote Originally Posted by debbie-b View Post
    There is no way, that I could know, what you are going through, I can't even imagine. I wish there was something, I could say or do, to help you somehow, but like you said, there is nothing anyone could say or do. All I can do is pray for you.
    Where in NY do you live?

    Debbie
    i live close to liberty NY..
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