All Blog Entries

  1. I'm Bored

    When I start feeling bored it sometimes means I am feeling better. I hope it does. Tomorrow after my bleeding I am going to go to Watercanyon. No matter what. I'm going. Unless I have a bad experience at the hospital, I am going to go. I'll take my little netbook and enjoy myself.

    I remember one awesome night I made friends with some really cool folks and we were all playing cards. It was one of those nights you hope you can do again, but I didn't. I was always too tired, or too? ...
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  2. My New Cool Vest

    Today was a good day! Today I wore my cool vest for the first time. It was great! It was 74 outside, but going in to stores where it is warmer really wears me out. By the time I have walked through the grocery store and am standing in line I am usually overheated, sweating, feeling like I will collapse if I must take one more step. Today was DIFFERENT!

    The cool vest lowered my body temperature well. I have to force myself to go out because I know how bad I will be feeling. That seems ...
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  3. 3-14-09 -->SATs are done!!

    so i took my SATs today...wasnt really too bad. but i guess i'll see if i really did good when my scores come in next month lol.
    everybody is celebrating St Patty's Day...even though i believe its tuesday...
    im sad i missed the parade :[
    oh well, theres always next year!
    im going to go play on the Wii.
    i love that thing ! its a game, yet its excersise too!!
    have a good night guyss!!

    Ashley<3
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  4. The Many Shades of Lupus

    On a spectrum of black and white, lupus can own every microscopic degree of change from the brightest white, to the darkest black. Some days lupus lives with me in a spectacular bright white Light. Light illuminates my soul and touches those around me with love, joy and peace.

    The changes can come ever so slowly, so slow they sneak up on me like a child tip toeing behind its mother to surprise her with "GOTCHA." Only with lupus there are never any giggles when I realize ...
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  5. March 13th, 2000-FINALLY FRIDAY!

    ahh its finally friday! ...shame i dont get to sleep in tomorrow morning. i have to get up early to take the SAT's. oh fun. hopefully i dont get sleepy during the test, that wouldnt be good! i've actually been feeling pretty good this week. usually i'll come home from school and take a nap, but instead, i've been like really hyper. only thing is that the other day, i had a pretty bad headache. which wasnt too fun. but overall...im not complaining about how this week went.
    i see the pulmonologist
    ...
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