Originally Posted by Ria0331
Thank you so much for the warm welcome. I have noticed that everyone is really nice on here. I am so glad that I'm not alone here. My family and friends are supportive but as we all know they don't want to hear that you are doing bad cause they care about you and also you can only tell them how you feel so much till it sounds like you are being a baby(at least that is how I feel) so again its nice to be able to talk to other people like me that are experienceing feeling and symptoms like me.
hope you all had a good weekend! i enjoyed mine! went shopping! yay! haha
so i got my fluroscopy, although i dont think the doctor knew what she was doing to be honest, she seemed so lost and confused. blah.
i am soo happy though because my doctor lowered my prednisone from 30 mg to 25 mg. yay!
i just hope i dont relapse like last time, but if i do...hopefully it will regulate like last time, so he doesnt have to put me back up again.
im tryin to
so just to update everyone who i havent told, i got my echocardiogram and CT-scan results. all came back better. my lymph nodes arent swollen anymore and the fluid around my heart and lungs have cleared.
i had my walking stress test, which didnt come back as good. they said they expected me to be able to walk a whole lot more, and my oxygen intake while doing it wasnt good at all. i ma getting a test done today after school, allthough im not sure exactly what the name
So to be honest, I can't quite figure this out. Not having control or complete comprehensive knowledge on a subject pertaining to myself can literally drive me insane. I feel ok. Actually, I feel terrified. I think I could be starting a flare.....but maybe, just maybe I'm actually ok for right now. It's like the stress of being scared or thinking too much could be enough to just send me over the edge.
You know that edge. The one were you slip a little then just continue to plummet.
Well hi everyone I hope you all are doing well, for the last 2 weeks i have been experiencing some migraines that last about 3 days and extreme fatigue, i have also been having a crampy aching feeling on the left side of my lower back, today my mother is going to do a urinalysis on me to see if it could be my kidneys or a uti, hopefully its just from me trying to get this prednisone weight off me. well i will check back in when i know something .. take care everyone!!! luv ya