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  1. About Me!

    Hey everyone, i thought i would write my very first blog and tell you all about myself.

    Well firstly the reason i am here is SLE with involvement of the skin and blood. I was diagnosed around 3 months ago on the 24th Feb.

    I was first admited to hospital on my 17th birthday and then re-admitted on my mums birthday. All in all February was a huge nightmare. I miss the first 5 weeks of year 11 and just wanted life to get back to normal.

    Currently i am on ...

    Updated 04-18-2009 at 03:06 AM by Hazel (Spelling)

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  2. More Prednisone Tapering

    As of yesterday I am now down to 17.5mg of prednisone. The last 2 times I tapered I ended up catching a pretty bad cold (and I'm still not completely over the most recent one I caught) so I'm hoping I don't get sick again from this. Especially because I'm leaving for camping/hiking in Yosemite tomorrow morning, which I've been looking forward to since we booked in January!

    I'm a little worried because after my rheumatologist got my most recent lab results in a few days ago, she ...
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  3. April 17th, 2009

    Heyy Everyone!
    soo i have really good news! my bloodwork came back yesterday, but i didn't get a chance to post another blog yesterday. he said my numbers are even better and my creatine [however you spell that?!] went from 40 to i believe 27, which was the biggest drop yet! i am not taking 20 mg of prednisone.
    im scared tho because i always relaps a day or two after i switch my dose, which will be sunday, and i have work on sunday! ughh!!!
    i actually had a meeting today, and
    ...
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  4. April 15, 2009

    Heyy Everyone!
    so as i've mentioned before, for cheer--we all had to re-try out, to prove that we can still do everything we've done in the past season, and i MADE it!! i was soo happy! that just proved to me, that lupus infact-wont hold me back from doing things that i love to do!
    mann i wish my morning started off better, see, last night-i fell asleep on the couch watching tv, and my mom tried to wake me up, but once im asleep-im stubburn i wont move! so i ended up beign
    ...
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  5. Now what?

    So I guess I am feeling guilty for complaining about my husband. I feel bad for being upset with him for two reasons . . . First of all, he works his butt off 6 days a week so I really dont want for much. Do we have every material thing we want, of course not, but we pretty much enjoy life. Secondly, (this one is more complicated) Should I be upset with him for not being able to understand something that he has absolutely no concept of? He has never really been sick. (other than a cold or the flu) ...
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