I will start with the Lupus
I was first diagnosed with discoid lupus about 16 years ago.
After a few years I started having other symptoms, arthritis, achy and tired all the time, pleurisy. first I was told I had rheumatoid arthritis. But after many office visits (years) I was diagnosed with SLE, that was 10 years ago. I was put and prednisone and plaquinal. I'm still on plaquinal, was on prednisone for about 4 years. Now I have been having a flare for about a year an a 1/2 and was
Happy Saturday! the weather outside is so nice! i believe it got up to 78 degrees!!!! i helped my mom out in our backyard prepping for summer. i planted grass seed :] haha
im glad to say that being out in the sun for about 2 hours, i didn't have any kind of weird reaction to it. i actually felt really good on my skin! :] thats definetly a good sign!
i am excited to be goin out to one of my favorite resteraunts today for dinner. they have mexican! :] yummyy!
Hey everyone, i thought i would write my very first blog and tell you all about myself.
Well firstly the reason i am here is SLE with involvement of the skin and blood. I was diagnosed around 3 months ago on the 24th Feb.
I was first admited to hospital on my 17th birthday and then re-admitted on my mums birthday. All in all February was a huge nightmare. I miss the first 5 weeks of year 11 and just wanted life to get back to normal.
Currently i am on
Updated 04-18-2009 at 03:06 AM by Hazel
As of yesterday I am now down to 17.5mg of prednisone. The last 2 times I tapered I ended up catching a pretty bad cold (and I'm still not completely over the most recent one I caught) so I'm hoping I don't get sick again from this. Especially because I'm leaving for camping/hiking in Yosemite tomorrow morning, which I've been looking forward to since we booked in January!
I'm a little worried because after my rheumatologist got my most recent lab results in a few days ago, she
soo i have really good news! my bloodwork came back yesterday, but i didn't get a chance to post another blog yesterday. he said my numbers are even better and my creatine [however you spell that?!] went from 40 to i believe 27, which was the biggest drop yet! i am not taking 20 mg of prednisone.
im scared tho because i always relaps a day or two after i switch my dose, which will be sunday, and i have work on sunday! ughh!!!
i actually had a meeting today, and