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  1. About Me

    I will start with the Lupus
    I was first diagnosed with discoid lupus about 16 years ago.
    After a few years I started having other symptoms, arthritis, achy and tired all the time, pleurisy. first I was told I had rheumatoid arthritis. But after many office visits (years) I was diagnosed with SLE, that was 10 years ago. I was put and prednisone and plaquinal. I'm still on plaquinal, was on prednisone for about 4 years. Now I have been having a flare for about a year an a 1/2 and was ...
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  2. April 18, 2009

    Heyy Everyone!
    Happy Saturday! the weather outside is so nice! i believe it got up to 78 degrees!!!! i helped my mom out in our backyard prepping for summer. i planted grass seed :] haha
    im glad to say that being out in the sun for about 2 hours, i didn't have any kind of weird reaction to it. i actually felt really good on my skin! :] thats definetly a good sign!
    i am excited to be goin out to one of my favorite resteraunts today for dinner. they have mexican! :] yummyy!
    ...
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  3. About Me!

    Hey everyone, i thought i would write my very first blog and tell you all about myself.

    Well firstly the reason i am here is SLE with involvement of the skin and blood. I was diagnosed around 3 months ago on the 24th Feb.

    I was first admited to hospital on my 17th birthday and then re-admitted on my mums birthday. All in all February was a huge nightmare. I miss the first 5 weeks of year 11 and just wanted life to get back to normal.

    Currently i am on ...

    Updated 04-18-2009 at 03:06 AM by Hazel (Spelling)

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  4. More Prednisone Tapering

    As of yesterday I am now down to 17.5mg of prednisone. The last 2 times I tapered I ended up catching a pretty bad cold (and I'm still not completely over the most recent one I caught) so I'm hoping I don't get sick again from this. Especially because I'm leaving for camping/hiking in Yosemite tomorrow morning, which I've been looking forward to since we booked in January!

    I'm a little worried because after my rheumatologist got my most recent lab results in a few days ago, she ...
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  5. April 17th, 2009

    Heyy Everyone!
    soo i have really good news! my bloodwork came back yesterday, but i didn't get a chance to post another blog yesterday. he said my numbers are even better and my creatine [however you spell that?!] went from 40 to i believe 27, which was the biggest drop yet! i am not taking 20 mg of prednisone.
    im scared tho because i always relaps a day or two after i switch my dose, which will be sunday, and i have work on sunday! ughh!!!
    i actually had a meeting today, and
    ...
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