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  1. Why????

    I'm feeling very alone right now; I know it's just a downer because I've been flaring and can't seem to get back on my feet. The pain in my hip and leg was unbearable today but I pushed through it as usual. Now myshoulder and arm on my good side is acting up. I hurts much I want to cry but I know it will do no good. Every one just wants me to be healthily. At least as healthily as I can be. But I hurt too much to exercise . I still try though. But I hurt and I want to cry and I feel so alone- ...
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  2. Updates on Lupus Nephritis Treatment

    I recently came across a question about Rituximab on another online forum (Lupus UK) and was curious about this medication. So I began to investigate. As is usual with me, I went down many paths. None of these led to a productive discussion on Rituximab. However, I did learn a lot about lupus nephritis. Below is summarized (from my own blog) some of the most recent thinking about treating this quite common and very serious aspect of systemic lupus--up to 60% of people diagnosed with systemic lupus ...
  3. Way too much pain

    Maybe it's good, maybe it's bad, but writing helps ease some of the pain from my legs and arms. I had a good day but tonight it rained and cooled off. Maybe my joints just can't take it. I've spread pain relief lotion from my knees to my ankles and my feet have their own creams. Praise God, the Tylenol helps my hands. I was taken off of narcotics for my fibro about a month ago and usually, it's not problem, but tonight, I wish I could just apply something to the pain! I also thank God that ...
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  4. Things could be looking up

    It was pretty gloomy for awhile where my health was concerned. Out of all of the crazy things happening to me, the 3:00pm shut down is the worst! I'd get quite a bit done and then 3:00pm hits and I have to make sure there is a bed nearby. God forbid that I'm behind the wheel. I blare my radio, open the windows and if that doesn't work, I will pull over. Mostly, I try to make sure I'm not out and about.

    But my bladder seems to be working again - Praise God! I won't lie, the catheder ...
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  5. Silver linings and lead weights

    This past four years of fighting one pain disease after another has taken it's toll. It does on all of us but I can't speak for others, only me. I went from a vivacious, outgoing, on the move mom to a couch potato who can't remember if she ate that day. My son, now 18, has had to watch the EMTs take me away numerous times. He's lifted me from the kitchen floor after a seizure when I can't use my lips to speak clearly. My blood pressure runs from 90/60 to 180/115 -- never any idea what it ...
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