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  1. Here I go again

    Well, here I go again. I've been in Florida since April, I finally got the insurance stuff straightened out and am running low on meds. Now I have to tackle new docs. I'm trying to put together my med history and med list. Googled docs and I'm ready to start calling.

    I feel ok, hardly any pain, but my stress levels are back through the roof. My Mother's mind is going and I have to deal with outbursts now.

    I'm caretaker now 24/7, but I get an hour or two to myself ...
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  2. Need some advise on Disability

    Quote Originally Posted by Creekbank View Post
    Oluwa,

    Thank you for the valuable information. I am starting my claim for disability and I know it will be a long road ahead. Do you think I should get a lawyer right way or wait until denied the first time?

    I don't have any documentation that says SLE, but have been to 3 doctors regarding the symptoms I have. I am on the way to Hershey Medical Rheumatology in October. I try to remain hopeful they can help me. I am declining rather quickly in my health and that appt.
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  3. Need some advise on Disability

    Quote Originally Posted by Creekbank View Post
    I have been dealing with Lupus related symptoms for a year now. Looking back, I started having symptoms in my early years, but in the last year, I have declined in health. I have limited mobility, cognitive function problems, and organ impact. I have been to 3 doctors regarding the Auto-Immune symptoms I suffer. None of these doctors have said a definite diagnosis. They have spoke of Fibromyalgia, but that doesn't explain all the things I suffer.

    My question is: If I can't work and
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  4. Trying to be positive

    I think I am finally starting to recover from the terrible flare I am in. Definitely not over it by far, but at least the heart issues are starting to improve, thanks to Prednisone. Dr. put me on antibiotics and prednisone again. Along with all the other meds I am taking. Chest x-ray was negative for pneumonia, so they are thinking it was fluid build up around lungs and heart. I was terrified by what I experienced. I actually considered the fact that I may die from this flare! This is the 2nd episode ...
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  5. Disappointed

    As I come up on a year of horror, I am worse then I have ever been. Really getting scared with all the things going on in my body. My organs are all being affected by this. I am no closer to getting a diagnosis. I am going to get to see an Immunologist and hope that will get me somewhere. Rheumatology is doing nothing for me.
    I have some Lung and Heart issue now. Kidneys are not good, but that is touch and go. I can't breathe, have pain in my chest, and my heart is really working hard. My ...
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