All Blog Entries

  1. I wanted to see something that's different...

    Nothing seems to go as planned. Sometimes that is good, sometimes not so much. I find myself faced with this more and more as life goes forward. I'm still expected to function at a normal level even though my body doesn't always want to. I can't plan for the days I will feel good, I have to take it as it comes. Deal with the bad days as they come. I can't plan for them. I can't expect them, when I think I'll have a good day it isn't always the day i think it will be. I have been struggling with ...
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  2. I just don't know........

    I just don't know if it's the progressive nature of the disease, the fact that I'm now in my sixties or just that I'm back to my usual state of bronchitis. But I've been down and almost out this time around. I'm struggling, I can't seem to pull it together and do like I used to. I feel like my family is getting tired of dealing with this. They seem to want the old me back. I want the ole me back. I want to lose the weight and exercise again. It really makes me feel better. But I can't seem ...
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  3. Just a tough day

    I have to admit that I'm getting tired of the progressive nature of this disease. Months ago it was all about the rash on my face and then the endless fact-finding mission to figure out what I'm dealing with. Now, several months later, many hospitalizations and doctors appts later, I wish I was just back to the red face! Forgive me for the rant, but here it comes...

    I am so tired of being tired! For a couple of years it was just going back to bed in the morning after my son was ...
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  4. I can't remember when the earth turned slowly...

    Don't you ever wish you could just paused life? Just for s little bit, to catch up, to have the moments that you wish for. To just stop reality for a little while so it's not constantly shoved in your face making you think about it. I just want to have a moment when I'm not thinking about this or that every single day. I'm wishing for this moments more and more as the months go on. I just want a holiday from real for awhile. Just a moment to breathe. It seems like the time has just passed by the ...
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  5. First entry..

    I find myself lost sometimes. Like I don't know where my life is going from here. Things can be so stressful sometimes that it's hard to deal with. I've always been an upbeat person. I've never really had very many health issues. I was a ballet dancer for 11 years. I went all around the country for competitions and dance festivals. I had a very active teenage life, I was independent and confident. I fell in love at 19 and found the love of my life. We moved into together a year later to my parents ...
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