I've been fighting for a year to make any headway with this Lupus diagnosis. I have numerous symptoms but I don't have the numbers so therefore, I'm unqualified. I get hospitalized but since the numbers don't show up, I just look like the junkie off the street. And that's funny too because I receive far too much medication already.
In the next month I will be seeing a Pulminologist, cardiologist, gastrologist, psychiatrist, and my primary. Somehow, I just don't have much faith.
Originally Posted by SuzyFlores
Hi, I posted on this site several months ago and never got on again.. after reading a few blogs today, i guess i haven't introduced myself.. My name is SUZY and I live in Cocoa, Florida.. I have had Lupus for over 39 years now !! I am 52 and happily married (2x around) to my soulmate.... and raising a second family ! I am guessing this is like Facebook but for people who suffer, we all have this in common.. I'd love to hear from you and chat but i am not so computer savy and don't get on much..But
Had my second dose of Benlysta on Monday and not sure if these new side effects are lupus or Benlysta related but will continue with my scheduled third dose on 7/06 and Ill see if these side effects continue. Here are the side effects I have experiencing abdominal pain, twitching of my right arm and right middle finger, pain shooting down my left leg everytime I stand up from a sitting position, limbs feel heavy, and lots of pain from my flare up not sure if the med
I had my first treatment of Benlysta on 06/03/11 and it went well, up until I got home and had some dizzy spells. Wont let a few dizzy spells stop me from continueing with the treatment. So here is how my weekend went, had severe abdominal pain, lots of joint and muscle pain to the point i was ready to put myself out of my misery but I self medicated and was able to get the pain somewhat under control. I cant say for sure if it was the Benlysta or my Lupus rearing its
Originally Posted by luv1only63
i am new to this site and have learned so much from reading the posts. i have a couple of questions, 1. how is a flare defined? and i now have scaly dry patches on my ankles, legs and feet. could this be associated with lupus?