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  1. Sometimes I think my Librarians know me better than my friends. and walking with cane

    Sometimes I wonder if I'll ever get over being embarrassed while walking with a cane. I know I need to get over myself, but it's just, so... almost mortifying, really. Being seen at such a vulnerable point, when i'm in enough pain and sick enough that i have to use one. I just got back from the library and small grocery, and im still slightly nervous, even though i'm home safe now, away from the public's watchful eye. Today at the library, a man sitting in a chair next to the section i was looking ...
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  2. looking to start a Lupus support group in ABQ, NM

    Hey guys. im 16 years old and I don't really know anyone personally that has Lupus. I want to start a Lupus support group for all ages. If you're interested PLEASE message me. I have been wanting to start one for about 10 months now, ever since I was diagnosed! Let me know what you think!
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  3. A little about Me

    Hello everyone! It is Monday morning, and I am still drinking my coffee, 'nough said. I was diagnosed with SLE in 2003, but the symptoms started 4 or 5 years before that. I also have, Sjrogrens, Raynauds, Fibromyalgia, and three bulging disk in my neck from being in a car accident where a drunk driver ran into us.
    The meds I am on are Plaquenil, Soma, Lortab, MTX and folic acid. I just started the methotrexate last week on Wednesday. I am not sure if I will continue to take it, I am still ...
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  4. I give up on this Lupus thing

    I've been fighting for a year to make any headway with this Lupus diagnosis. I have numerous symptoms but I don't have the numbers so therefore, I'm unqualified. I get hospitalized but since the numbers don't show up, I just look like the junkie off the street. And that's funny too because I receive far too much medication already.

    In the next month I will be seeing a Pulminologist, cardiologist, gastrologist, psychiatrist, and my primary. Somehow, I just don't have much faith. ...
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  5. Hello, I'm fairly new to this site.

    Quote Originally Posted by SuzyFlores View Post
    Hi, I posted on this site several months ago and never got on again.. after reading a few blogs today, i guess i haven't introduced myself.. My name is SUZY and I live in Cocoa, Florida.. I have had Lupus for over 39 years now !! I am 52 and happily married (2x around) to my soulmate.... and raising a second family ! I am guessing this is like Facebook but for people who suffer, we all have this in common.. I'd love to hear from you and chat but i am not so computer savy and don't get on much..But
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