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  1. looking to start a Lupus support group in ABQ, NM

    Hey guys. im 16 years old and I don't really know anyone personally that has Lupus. I want to start a Lupus support group for all ages. If you're interested PLEASE message me. I have been wanting to start one for about 10 months now, ever since I was diagnosed! Let me know what you think!
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  2. A little about Me

    Hello everyone! It is Monday morning, and I am still drinking my coffee, 'nough said. I was diagnosed with SLE in 2003, but the symptoms started 4 or 5 years before that. I also have, Sjrogrens, Raynauds, Fibromyalgia, and three bulging disk in my neck from being in a car accident where a drunk driver ran into us.
    The meds I am on are Plaquenil, Soma, Lortab, MTX and folic acid. I just started the methotrexate last week on Wednesday. I am not sure if I will continue to take it, I am still ...
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  3. I give up on this Lupus thing

    I've been fighting for a year to make any headway with this Lupus diagnosis. I have numerous symptoms but I don't have the numbers so therefore, I'm unqualified. I get hospitalized but since the numbers don't show up, I just look like the junkie off the street. And that's funny too because I receive far too much medication already.

    In the next month I will be seeing a Pulminologist, cardiologist, gastrologist, psychiatrist, and my primary. Somehow, I just don't have much faith. ...
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  4. Hello, I'm fairly new to this site.

    Quote Originally Posted by SuzyFlores View Post
    Hi, I posted on this site several months ago and never got on again.. after reading a few blogs today, i guess i haven't introduced myself.. My name is SUZY and I live in Cocoa, Florida.. I have had Lupus for over 39 years now !! I am 52 and happily married (2x around) to my soulmate.... and raising a second family ! I am guessing this is like Facebook but for people who suffer, we all have this in common.. I'd love to hear from you and chat but i am not so computer savy and don't get on much..But
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  5. Benlysta round 2

    Hello everyone,

    Had my second dose of Benlysta on Monday and not sure if these new side effects are lupus or Benlysta related but will continue with my scheduled third dose on 7/06 and Ill see if these side effects continue. Here are the side effects I have experiencing abdominal pain, twitching of my right arm and right middle finger, pain shooting down my left leg everytime I stand up from a sitting position, limbs feel heavy, and lots of pain from my flare up not sure if the med ...
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