All Blog Entries

  1. Trying to stay optimistic....

    I have been playing phone tag with my rheumatologist's office for exactly 7 days now only to finally reach the nurse today and for her to tell me "Aren't you scheduled to come in on Monday? You can talk to the Dr about a plan then". Soooo annoyed at the lack of response and concern from his staff!
    I am going to give him a chance to help me get on the right track when I see him on Monday and then if that doesn't work, I am going to book an appt with another rheumy with a bigger ...
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  2. Awareness Month is here !!!

    Hello lupies,
    I was just sitting here and thinking actually dreaming of being lupus freeeeeee....
    I love to day dream sometimes of the day i hear the breakthru news, a cure has been found
    Reality hits home soon after and i feel so frusturated because i really want to have the brilliant ideia to somehow get the word out there in a massive way, and capture the attention of someone who is in a position to MAKE a huge difference to research funding, everybit helps no doubt, ...
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  3. Doctors are confusing me !

    Quote Originally Posted by Lorik View Post
    I was diagnosed by a dermatologist last year after going in with sores on my head. I had many lupus symptoms but family practice doc just wanted to put me on Prozac ! The dermatologist did biopsy and lab work. Called a week later and said I do have lupus and my labs show early stage kidney failure !
    Went to rheumy and was put on placquinil and steroids.
    I called the doctors office last week about a flair ( exhausted,malar,joint pain,itching). The PA said that the placquinil would take
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  4. Having A Good Day Today

    Having a good day today. Doing some spring cleaning. Going to have a little fight with Cheddar Cat Stewart to get his revolution on him to keep him parasite free. Do his box. I took the recycling out to the bin and lupie me almost put it in the wrong bin. Glad I didn't, would have stressed me out to much to get it out. When I have good days I have grandiose ideas about what I'm going to get done the next day. But when the next day comes I'm sick again.
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  5. Diagnosis for Lupus.

    Quote Originally Posted by FedUp View Post
    I am a 33 y/o man serving in the army. I have been experiencing very intence joint pains for quite some time now, along with many other symptoms. It is a dull but constant burning pain that is also now starting to effect my entire body. I do have a family history of Lupus. My other symptoms include, but not limited to; Fatigue, GERD, feelings of weakness, poor memory, ADHD, persistent sores in nostrils, chronic sinus congestion, inability to concentrate. Most pain meds, prescribed or OTC, seem to
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