Blog Comments

  1. Betty Boop's Avatar
    Thanks for the information. I have come to realize that the sun is no longer my friend. Though it has been a short time, I already miss teh warm sunshine and the outdoors. I appreciate your tips. Maybe I can get back outside.
  2. jrkgaspar's Avatar
    Thanks for the info saysusie......
  3. wrightrs's Avatar
    Thanks this is so helpful since, I leave today for vacation.
  4. froggal's Avatar
    Thank you! This is my first official summer with lupus. Info was extremely helpful!
  5. Angel Oliver's Avatar
    Oh what a great blog.Thanks for the info Saysusie!! Hope you enjoy your summer.We just got rain and winds at the mo....last year didnt really have a summer so hope this year is a good one.
  6. Oluwa's Avatar
    You're welcome, Saysusie....

    In so many ways you've been my strength to overcome the deficits Lupus can bring. With your words, your love I have learned to battle them one by one and more times than not I have won.

    You've helped me to realize having Lupus ain't so bad...thank you too.

  7. ashleybaby715's Avatar
    saysusie this story really touched me. its nice to see that lauri didn't want to let lupus get her down and that she was determinded to complete her goals in life.
    she was a strong girl and i really admire that. and i admire you for being there for her the whole time !
  8. wrightrs's Avatar
    Both of you are so beautiful in this picture. You look a lot alike. Thanks for sharing it with us.
  9. Saysusie's Avatar
    You are so right TobyJug!!

    Thank You for appreciating Lauri's Story BadFlareDay!
  10. BadFlareDay's Avatar
    Thank you for sharing this story.
  11. TobyJug's Avatar
    spending time with people creates lifelong memories.....
    never let them slip away....

  12. Saysusie's Avatar
    I am sorry to hear that you also suffer from Pulmonary Hypertension as well as issues with your heart. Treatment for these conditions have come a long way since Lauri's struggle. So, the prognosis for these conditions are much more encouraging. Make sure that you take your meds as prescribed, take very good care of yourself and always pay attention to what your body is telling you!
    Thank you so much for your very sweet comments!

    Peace and Blessings
  13. Saysusie's Avatar
    I knew that you were familiar with Lauri's story. Thank you for your sweet and kind words. It has taken some time for me to finally post her bio....but I'm glad that I did.
    Again...Thank You
  14. wrightrs's Avatar
    This touched me so much. We like to think of lupus as something we deal with everyday. And all the struggles we go though daily. Sometime we fail to see how serious Lupus can be!!! How hard it is own others that are close to us.

    It also moved me deep inside because I have Pulmonary Hypertion and Heart Problems also!!!
  15. rob's Avatar

    I've read Lauri's biography many times, and it never fails to have a profound effect on me. In your words I hear terrible sadness, but I also see pride, and an everlasting love that knows no bounds. A love Lupus cannot take away, ever.

  16. Saysusie's Avatar
    Thank You Oluwa and Angel Oliver. Time has not made the loss of Lauri any easier. It has made me find more reasons to smile at the thought of her; rather than cry at the loss of her.
    Thank you both for all that you do here at WHL and for giving so much of yourselves to help other members here!
    Oluwa..You are my heart and my strength! You don't know how much you mean to me.
    Angel..You are amazing to me, I admire your strength, your resolve and your kindness!!

    Much Love To You Both
  17. Angel Oliver's Avatar
    Oh Saysusie,

    Thanks for sharing Lauri's story, wow such a wonderful young lady.What a legacy...WHL!!! Thank you for being here to help us all, me! I so felt the pain of losing such a loving daughter.I hope telling her story helped you .I felt the pride in your words. So sorry for your loss, but hope, we can help you too, like you help us in Lauri's name. Thank you.
  18. Oluwa's Avatar
    As I read...Saysusie

    I felt your loss.
    I felt your pride.

    I felt Laurie's joy.
    I felt Laurie's passion.

    I left with sadness.
    I left with happiness.

    Thank you Laurie for sharing your beautiful Mom.
    Thank you Saysusie for sharing a huge part of your life, your Laurie, her story with us.

    I am so happy, really happy I found this place. Thank you very, very much...from the bottom to the top of my heart.

    Oodles of love...
  19. mountaindreamer's Avatar
    what a beautiful picture. the love that you share with your daughter is obvious, and brightens the picture. Thank you so much for sharing this love with us.

  20. Saysusie's Avatar
    Thank you sooooo much Lori, Angel & Oluwa. This particular picture is on the wall in front of my computer. So, I look at her beautiful smiling face every day. Makes me feel peaceful and calm!
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