It never gets easier. Today was the lowest as far as letting myself cry over pain,just for know reason. Don't like not being somewhat in control. The days take to long. By bed time I'm not able to sleep sound. Had 3 mini-strokes today. While in WalMart. Got home asp. Very limp tonight. Hope I'm making sense. Well I'll say good-night to all my new friends and many more I hope. Bless us all. Donna
Been so dragged out. Worse since the holidays. No end in sight. So pale in color. My daughter are in the same boat. Pretty much at the same time. Freaky. So much pain- so little help in my meds. Sure many of you feel the same way. Had to vent out to others know how I feel. Not a pity party here. Please do write if you can.
We all seem to be in the same boat! One with one bad hole in it. hope we all can swim! Lupus -fm, crest syndrome. The more I go to the Dr. seems like we get blessed with more crap to cope with. Plate is over flowing, Not strong enough. Had discoid lupus-sle lupus-now fm! Took a brake from my Dr.What do we walk away with? Do we feel any better? Talk at ya later , MommaD.
Updated 12-25-2010 at 08:53 PM by mommaD
(In future posts, please refrain from using profanity.)
No support groups in Portage Wis. for lupus! Glad I found you all today. Now I have people who no what I'm going thru and understand.
I have SLE & discoid, fibro- plus other things. Won't bore you to tears or put you to sleep Hope to hear from some of you. Will be here reading the posts. Hope to visit with alot of you in a short time. God Bless!