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Linda From Australia
05-05-2011, 02:03 PM
Has anyone suffered from Morton's Neuroma?

tgal
05-05-2011, 03:05 PM
Not I thank goodness! Are you having issues with this?

Linda From Australia
05-05-2011, 05:17 PM
One word .... OUCH!!!

When my physio checked it out he said it is a nerve problem, so I did what all people do, Googled "Pain in the ball of the foot" and my symptoms seem to fit it.

tgal
05-05-2011, 05:20 PM
Gotta love the fact that when your body starts attacking itself it can find the strangest places to do it!

steve.b
05-06-2011, 05:49 AM
One word .... OUCH!!!

hopefully it can be cured without surgery.

sorry to hear about this.

you would find it difficult to rest with your feet up,and teach.

lacey50
05-06-2011, 05:06 PM
I have that and " OUCH!!!" does not even come close. Mine does not hurt unless I am on my feet alot. One tip whatever you do, DO NOT wear high heels.

Nonna
05-06-2011, 05:35 PM
One word .... OUCH!!!

When my physio checked it out he said it is a nerve problem, so I did what all people do, Googled "Pain in the ball of the foot" and my symptoms seem to fit it.

ouch me too. the foot doctor said it was because of my arches,going barefoot and hammer toes. Ouch is right

Linda From Australia
05-06-2011, 05:55 PM
From research thre seems to be a number of things that cause this condition:
Wearing shoes that are too tight around the toes only wear wide toed shoes
high heels ha. you have got to be joking
going barefoot NEVER ... always too cold, I even wear socks to bed in summer
high impact athletics If you call walking and stumbling like a granny as athletic
hammer toes nope
flat feet nope - physio said I have good looking feet
more flexible feet nope

So as you can see I don't meet the criteria for having any of the causes for Morton's Neuroma. I see the rheumy on Wednesday, so I will see what he says. The annoying thing is that now my left foot is also starting to hurt. I am not sure which side of the body to limp, as my right foot, right ankle and sometimes my right hip hurts, along with my left hip and now my left foot is starting to hurt. So I just walk very slowly like a granny (sorry for all those grannies who have a spring in their step).

I was wondering if anyone else has been diagnosed with Morton's Neuroma and has been told that it is part of the Lupus making the nerve inflamed. As Steve said, it is rather hard to rest my feet while I am teaching.

Peridot20_Gem
05-06-2011, 11:58 PM
One word .... OUCH!!!

When my physio checked it out he said it is a nerve problem, so I did what all people do, Googled "Pain in the ball of the foot" and my symptoms seem to fit it.Hi Linda,

I am sorry your suffering with this besides everything else going on.

I've noticed day by day thing's hit we more, the list never ends.

Hugs to you linda xxx

mdawncooper
05-07-2011, 07:53 PM
I had one two years ago and had to have it removed. I have just been diagnosed with Lupus so never put the two together. Is it a symptom possibly?

Melanie

Linda From Australia
05-11-2011, 05:15 AM
I went to see my rheumatologist this morning and he is sending me off to get an ultrasound and xray of my feet, suspecting that I may have Morton's Neuroma. Along with the increased difficulty and joint pain I have been progressively experiencing, I also need to increase my Plaqueil and add ibrubofen to the Panadol Osteo every 6 hours. He also said it will be a good idea to take fish oil. He wants to try to see if the increase in medication will help reduce the inflamation, before considering other medication that has serious side effects (which I suspect he was thinking about steroids and MTX). He is happy with no organ involvement, and how I am working so hard to keep active and healthy. However, he did tell me to stop any exercise that causes me pain and to listen to what my physiotherapist tells me.

So when I went to the physio this afternoon he told me that he doesn't want me to walk in the pool anymore, and not to swim if I am in any pain. (He told me a month ago that I can no longer walk around the park, which I enjoyed twice a day). I am now only allowed to do some light stretching in the pool, and ONLY IF I AM IN NO PAIN - to swim. This is so annyoning since I only walked for 10 minutes and swim for 10 minutes, and some days I cannot even manage that because of the amount of pain I am in.

This was not by far the biggest disapointment of the day ... My biggest disappointment came when, after months I have been doing up to 2 hours of exercise/physiotherapy a day to build up my muscles, to be told that I have more muscle loss. I see my physio every 1 - 2 weeks, and everytime I see him I lose more muscle. Though this is not good news, all I can think of is, imagine if I have not done all that exercies, my muscles would be worse. This change in medication had better work, otherwise I am fast running out of exercise options and the thought of any more muscle loss is not a good prospect.

Amongst all this disappointment, I am still grasping hold of things that I enjoy in life, and still make sure that my difficulties are not the total focus on my day, even though every waking moment is a PAIN (literally). Like Rob has done, and bought himself a red drag car that will make him drive faster, I think I might go out and buy myself a red swimming costume and red goggles that will make me swim faster!!!!!!!!!!!!!!!!!!

tgal
05-11-2011, 05:18 AM
I love your outlook Linda! It is one of the many things that I adore about you.

Keep us posted

steve.b
05-11-2011, 06:18 AM
I think I might go out and buy myself a red swimming costume and red goggles that will make me swim faster!!!!!!!!!!!!!!!!!!

this is the linda i met last week.
with all this news to slow down, you just want to have fun.

Nonna
05-11-2011, 04:38 PM
Lupie's rule. Girls just want to have fun as Cindi Lauper used to say; so change it to Lupies just want to have fun.

Linda you're the best. I love your attitude we need to bottle it

Linda From Australia
06-19-2011, 12:00 AM
I am just bumping this to the top for some of the new members to read, and hopefully someone else has experienced Morton's Neuroma.

About 3 months ago I was getting pain in my right foot. I mentioned it to my rheumy 5 weeks ago and he sent me off for a foot xray and ultrasound and I have Morton's Neuroma. Because of increase in joint pain and muscle atrophy, he increased my Plaquenil and put me on Prednisolone, and increased my pain meds, which didn't have any affect on me.

I saw my rheumy last Wednesday telling him that my foot is still sore and my left foot is now starting to hurt as well. I also mentioned my left hip is getting sorer. He took me off the Prednisolone because he thinks there are other muscle issues happening, and mentioned that usually a steroid injection in the foot will help. I asked him if I will be having one and he told me not now. So I am off to have my left foot and hip ultrasound, and see him in 5 weeks. (I also had heaps of blood tests to find out what is wrong)

When he told me he wouldn't give me an injection that day, I just said "oh, OK". And as usual, when I was driving away, I asked him really loudly "Why won't you give me the jab today and put me out of my misery" He didn't hear me though because the traffic on the highway was really loud.

So I am wondering why he didn't want to see me straight after the ultrasound, and why is he letting me continue to struggle with the pain. I put myself into his brain and figured because he wants to find out why I am having these problems in the first place. The usual reasons why people have neuromas does not relate to me, and if he gives me the injections then he won't be able to find out what is wrong. Gee I am so kind to my Rheumy, not trying to blame him for letting me suffer so much.

By the way, he is sending me to someone else for a second opinion as to why all these other things are happening to me. So I suppose the new doctor will have all the answers, and fix me up. I will be seeing my Rheumy in 5 weeks time after I come back from a work conference in another state. He did tell me that if my pain gets worse I can start using crutches or a cane, especially when I am at the conference.

My question is: Have you had morton's neuroma since having Lupus, and how was it treated? It is suspected that I have bursitis of the hip as well, and have any of you been treated for that while having Lupus? I am pleased my Rheumy is sending me to someone more specialised in that field, as I am getting the impression that he is not into quick fixes, but he is concerned about fixing the real problem behind the difficulties I am having. Do I sound like I am trying to convince myself that he is doing the right thing, or perhaps he really is doing the right thing. I have heard from many people that my rheumy is very good, so I do trust in his judgement. I just wished that he heard me when I was yelling at him when I was driving on the highway, now his lack of respect towards me by not answering me is unforgivable.

If I cannot see the new doctor before my next rheumy appointment, I will phone him after I get the results from the ultrasound and ask him why he won't give me a steroid shot now.

lovedbyHim
06-19-2011, 01:56 AM
Hi Linda, all I can say is how sorry I am for your pain and that I am so blessed to know you. You have an incredible strength and great attitude. I hope and pray they will get to the bottom of all your suffering and give you the "good stuff" soon. I think red is the way to go. If you get horizontal stripes on it, you could make your booty look bigger at the same time. I will take the vertical stripes as I am busting out of everything!

Nonna
06-20-2011, 12:42 AM
Hey Linda your right then left, I'm left then rightmy right foot started hurting today. Is it back to the foot doctor for me???

How's your feet doing ?