View Full Version : I'm Pregnant!! Need Advice

11-28-2005, 12:08 PM
I got a huge birthday surprise, I found out I was pregnant. I had a bad flare up. I don't know if it was because of the baby or because on my birthday, I didn't take my meds. And I know from past experience that when I miss my dosage of predsinone I break out in rashes that are itchy and burning.

I want to know if anyone has become pregnant with having lupus and how was their pregnancy? Also has anyone become pregnant while their lupus has NOT gone in remission and if so, was their pregnancy difficult.

I've gone to the doctors, the doctors said none of my organs are affected. My kidneys have not been affected. My rhuemy did say that my lab results showed my lupus was pretty high, something like a 83. (Have no clue as to what that means)

I'm excited about the pregnancy. I just want to have a healthy baby. And would like to actually talk to someone who has actually had a successful pregnancy with lupus.

Anyone please give me insights, advice, anything that will helpful to me!!!!

Thank you :)

11-29-2005, 08:58 AM
Hi Butterly1;
Congratulations on your pregnancy and I, too, wish you a happy healthy baby! Hopefully, someone will respond to your questions soon. I just wanted to say how happy I am for you!!


11-30-2005, 02:15 PM
Congratulations!!!! I have read that women with lupus can have a normal healthy pregnancy if they are followed closely by their doctors. I have also read that a lot of women's lupus symptoms improved during pregnancy due to the change in the level of hormones, but I guess some people flare after the birth. I really hope things go well for you. Keep us updated on how things are going. Take care.

11-30-2005, 02:52 PM
I have heard both... That sometimes symptoms get better during pregnancy, and sometimes get worse... I don't know what's more common or anything... I've just heard both... Sorry I can't be of more help!

12-02-2005, 01:48 PM
I got my first ultrasound. The doctor said I am about 8 weeks. Everything looks fine. Thank you for all you guys support. Keep me in your prayers. I am so EXCITED about this pregnancy. :)

12-05-2005, 12:47 PM
I have 3 children. 20, 17, and 8 years old. My first pregnancy was great I was 21. My second was great I was 24. After the second child the arthritis flared a little (very minor). My third child ( a girl) was a little difficult. I was 33. My body was trying to attack her. The Drs were afraid my umbilical cord would detach. My lupus flared! I received steroid shots every week.I was in the bed the last 3 months of pregnancy. Contractions had started. With all my children I had gestational diabetis. I dont know if age was a factor or that by this time I had lupus for 9 years plus. All went well. My delivery was great. About 3-6 months after she was born I became sick. Just worn out and arthritis. So I think it was all OK. Hormone changes made me feel like I had more energy while I was pregnant. Please watch your weight. It might have something to do with feeling sick, if not , you might just avoid stretch marks LOL! Good Luck!! I think all will be well. My children were perfect when they were born. I cant say the same now that they are teens! LOL!
Enjoy every moment!

12-12-2005, 06:07 AM
congratulations first and foremost! This will be a very exciting time for you. A lot of changes emotionally and physically.
I recently had a baby boy 5 months ago and a daughter 19 months ago.
I'm not a doctor, but here's what I was told to do and what I did. I saw a preintalogist (sp?), a high risk baby doctor. I saw them just about every three to four weeks in the beginning and then once a week at the end, sometimes twice a week. It's important to make sure you keep your appointments and monitor the baby. With the lupus, most likely the doctor will do some tests for positive ANA? I think and other tests. The nice thing about being in a high risk clinic was all the ultrasounds! You will have tons of them, compared to a normal person, who is lucky to have one or two only.
For me, I was lucky, both pregnancies for the most part went well. Through the course of the pregnancies, i did need to go to the ER a few times during both. Watch your blood pressure, if you have a means of taking it at home or running to a local pharmacy to take it at least once a week, keep an eye on it. Eat well, drink TONS of water, avoid the obvious no no's. There isn't anything you can do to avoid stretch marks, either you will get them or you wont. They are genetically predispositioned. But, I did rub a heavy duty moistureizer on my belly regligiously everyday.
If you are in a flare now, talk to you doctor and find out what your options are. I personally was in remission both times. A lupus flare can trigger at anytime during a pregnancy if one is in remision. I did a lot of online research, the foundation site is a good place to start. Your doctor can and should be able to provide a lot of good information to you also. If you don't feel comfortable with your doctor who is over seeing the pregnancy, find one you are comfortable with. You will be seeing this person a lot during the next 8 months. Get rest when you can. In a book I read, it describe a pregnant woman's body growing a baby as if you were rock climbing 24 hours a day.
Hope some of this helps. Bottom line, makesure you get great prenatal care, take your vitamins, get rest, eat well, drink water water water water!
Best wishes to you and your growing family, keep us posted often if you can and let us know all the changes, I enjoyed every moment of pregnancy. I hope you do too! Feel free to email anytime!


12-12-2005, 08:03 PM
Hey there butterfly~

I hope things are still going well with you pregnancy. Congrats to you, and it is so refreshing to see you in such great spirits. Good luck through the course, and be sure to keep us all posted!!! :wink:

All I know about Lupus and pregnancy is it varies greatly with each individual!!! I hope that is helps you!!! :)

12-13-2005, 08:56 PM
A woman my husband works with has lupus and she said with both pregnancies she felt better than ever, no flare ups at all, her husband even suggested to her doctor why they couldn't make a lupus pill from pregnancy hormones.
Anyway congratulations, enjoy this time and get plenty of rest, the next 18 years will be a roller coaster, but one we don't want to get off.


12-17-2005, 10:17 AM

Thank you for all your helpful advice. All that information is helpful. I have a doctors appointment with the preintol (?) on wed. 21 so wish me luck. I hope by then they can tell me what the sex of the baby is. also i've been worried about having a miscarriage. I've been reading on the internet that some women have miscarriages without even knowing it. I don't know I guess I'm paranoid because i want this baby so bad.

anyways thanks for the advice and i will keep you guys posted after the doctors appointment

12-20-2005, 06:30 PM
I've been reading on the internet that some women have miscarriages without even knowing it. I don't know I guess I'm paranoid because i want this baby so bad.

Be careful with the internet ;) I'm an A&E nurse and see people in early preganacy all the time. From my experience, I think you might find that they are referring to people who are 1-7 weeks pregnant and do not know they are pregnant and just think they are having a period. This statistic is very high because basically the body rejects the pregnancy for one reason or another, usually abnormalities and it rejects in a way which is very similar to a period and cramping.

If you started bleeding now, you'd know it was abnormal because you already know you are pregnant! It's an unfortunate state of affairs that there is absolutely nothing we can do about it before 18 weeks other than reassurance after a scan.

Thing about babies is, if they are going to make it, they will! The only thing you can do is to look after yourself and make sure you eat well and look after yourself :)

Hope everything goes great and you (fingers crossed) don't flare during your pregnancy!

12-21-2005, 05:53 AM
That is AWESOME news. I have one child, a boy, which is actually what set off my symptoms. I started getting really sick after I gave birth, but for the most part the pregnancy itself wasn't too bad. Pre-eclampsia at the very end but overall it wasn't bad despite the nausea and heartburn. :lol:
Just make sure you take care of yourself. The drs told me I'd never get pg and they were wrong. :) I managed to have one child before I had to have a hysterectomy. So he's my miracle baby for sure. Enjoy your pg as much as you can and take it one day at a time.

01-29-2008, 07:21 PM
Hello! Congratulations! I am new to the site, but had to respond to your question. My lupus was active during my pregnancy with my youngest daughter, who is now 8 1/2 years old. My pregnancy was a little more difficult, but I had a healthu baby. Her birth weight was a little small, 5lbs. 14 oz., but otherwise no complications. I was on prednisone throughout the pregnancy. It is very important that your OB works with you and your Reumatologist. I was very lucky to have wonderful warm and caring doctors. I will keep you in my prayers. Best wishes!

02-06-2008, 12:43 PM
I just found out I was pregnant also. I'm 8 weeks. Unfortunately I've already started to go downhill. My nephrologist is strongly advising me to terminate. But I DO NOT agree with abortion. I already have protein in my urine and he tells me that there is a good possibility my kidney function will decrease throughout the pregnancy. I am definitely pro-life and am very frustrated the position that he is putting me in. My OB has said he agrees with the nephrologist, but he is with me 100% if I choose to continue. I just don't think I can make such a huge decision about a life, when it's just a "possibility" or a "guess" my kidneys could go fast.

Any advice or experience would be greatly appreciated.

02-07-2008, 04:51 PM
Hi! I found out I had lupus after my 1st son was born. In fact - the day I agreed to take prednisone and plaquenil (I fought against it - in denial) is the day I believe I got pregnant with my 2nd son. That pegnancy went well even though I had to drive to John Hopkins every month to have my urine checked. Since mommy had to pee in a jug for 24 hours every month I was able to potty train my oldest. Anyway, my pregnancy went well. Of course I was with a high risk doc. I went back on the pill 5 months later and got very sick. Doc said it was the estogen - so I went off the pill and got pregnant again. That pregnancy went well also. After that I had 3 miscarriages. 2 were early - the last one I was almost 11 weeks. That was awful. So we decided to be very careful and dh was going to get a vasectomy. We bought a new house with 4 bedrooms and bang - before we moved I was pregnant again. That was in 2001. I figured I would ppobably have another miscariage but I ddn't. I had my 4th and final son. That was a terribly hard pregnancy. I was 39 when I delivered. I had so many problems. We moved - that was stressful. My dad died in June of that year. I had alot of problems with my legs and feet. Had pleurisy twice. I couldn't hardly walk at one point. In fact on 9-11 I could not go to the school to get my kids and bring them home. I could not even walk. I had alot of problems physically. He came out under duress with the cord wapped around his neck but I went into post pardum. I think it was a combo of my dad dying, almost 40 with another baby and a boy at that and 9-11. I guess I was just hoping for a girl but my guys are my world. So I guess it just depends. Like I said I didn't have any problems with the 1st 3 but the last one was awful. Mostly arthritic. I hope you are doing well and all you can do is rest as much as possible. Make sure your doc is high risk.
Congratulations!!!!! Good luck!

02-17-2008, 05:41 AM
my mother had lupus and had 4 children...

my sister has lupus and has two healthy boys. She had a rough time holding on to pregnacies before she was diagnosed. My mother was never diagnosed.

The clinic my sister went to after she was identified was very helpful and with a mild and gentle medication was able to carry both her boys full term. And they are wonderful.

Best wishes

03-22-2008, 05:34 PM
Hi there, I'm reading all these posts as my hubby and are making the big decision about whether or not to pursue having a baby and we have lots of appointments over the next while

Would love to know how yours turned out