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Toradoradi
04-07-2011, 05:56 PM
I told my doctor about how I had trouble breathing a few days ago and it felt as if I couldn't catch my breath. Even if I took a deep breath it just didn't feel like I was getting enough air. Almost like I ran a marathon and was trying to catch my breath but I hadn't ran and breathing didn't help. He looked at me weird and said "your symptoms are very strange" and that was kind of it? Haha he didn't really answer me or seemed concerned about it so much but I don't know. He did ask if I had anxiety attacks but I don't. Any else have this or thoughts on it?

steve.b
04-07-2011, 06:14 PM
i quite often have the same, (when in a flare).
try slow deep breaths.
concentrate on slowing the heart rate down, and the breathing becomes slower deeper as well.

works for me.

it is wierd how this lupus effects us. mine is mainly in the blood. blood flows through the lungs, so lungs are effected also.

tgal
04-07-2011, 06:17 PM
That was one of my early symptoms as well. It feels like you are trying to breath but something is stopping it from going down. One of the things that we have to remember is that Lupus is disease that causes inflammation in our body and it can happen anywhere. When the inflammation of the passages to the lungs it makes them FEEL like that are not working. Many times they are working fine or will with the right dose of steroids.

We do have to pay attention to the lungs because things such as pleurisy or other lung issues but those usually have extreme coughing or pain. What you appear to be talking about is just another nasty symptom that many of us get that make doctors look like they have never heard of lupus!

tgal
04-07-2011, 06:17 PM
That was one of my early symptoms as well. It feels like you are trying to breath but something is stopping it from going down. One of the things that we have to remember is that Lupus is disease that causes inflammation in our body and it can happen anywhere. When the inflammation of the passages to the lungs it makes them FEEL like that are not working. Many times they are working fine or will with the right dose of steroids.

We do have to pay attention to the lungs because things such as pleurisy or other lung issues but those usually have extreme coughing or pain. What you appear to be talking about is just another nasty symptom that many of us get that make doctors look like they have never heard of lupus!

Toradoradi
04-07-2011, 07:08 PM
Ok well I feel a bit better then. He just kind of looked at my like I was crazy and he didn't have any idea what would be causing it so I wasn't sure if it was lupus effecting it, which would make sense but he didn't seem to have any idea what it was or something.. I don't even know. I mean he's a good doctor and he answers the questions I ask and tells me how everything is going and checks all my joints and such so I do feel like he knows at least something of what he's doing. I was just weirder out he didn't have a thought to the breathing thing.

I just felt like I couldn't get any air. Almost like my lungs weren't inflating or something, even though I was getting oxygen and didn't feel like I was going to pass out or anything so I knew they were working it just didn't feel like they were. It was not a fun sensation. I told him about my legs and arms tingling and he said it was most likely the nerves being affected by it right now.

Eh I wish there was a clear cut-this is caused by this and this is caused by that so you could know for certain what's going on is lupus or something else crazy. I feel like now every ailment I develope is caused by this but no one knows for sure... Since it varies so much! Laaame....

On a side note... Has anyOne seen the tickle duck thing at hallmark? I so want it. I was literally sitting there cracking up for 10 minutes tickling this thing in the mall. I'm sure the employees there loved me for it.

tgal
04-07-2011, 07:23 PM
Never heard of it. Will keep my eyes open!

Saysusie
04-07-2011, 07:59 PM
I've not seen it either. But, I am going to the mall tomorrow and will make sure to check it out. I could use a good 10 minute laugh :-)

Peace and Blessings
Namaste
Saysusie

Peridot20_Gem
04-11-2011, 09:35 AM
I also have breathing problems and live on inhalers through the day and a steroid one before night, it's like Mari said Lupus causes inflammation and when it's playing up badly with me causes the muscles around my lungs to swell and that's no bonus to the condition.

I hope your ok and do takecare. Terri x

tgal
04-11-2011, 10:08 AM
Ok well I feel a bit better then. He just kind of looked at my like I was crazy and he didn't have any idea what would be causing it so I wasn't sure if it was lupus effecting it, which would make sense but he didn't seem to have any idea what it was or something.. I don't even know. I mean he's a good doctor and he answers the questions I ask and tells me how everything is going and checks all my joints and such so I do feel like he knows at least something of what he's doing. I was just weirder out he didn't have a thought to the breathing thing.

I just felt like I couldn't get any air. Almost like my lungs weren't inflating or something, even though I was getting oxygen and didn't feel like I was going to pass out or anything so I knew they were working it just didn't feel like they were. It was not a fun sensation. I told him about my legs and arms tingling and he said it was most likely the nerves being affected by it right now.

Eh I wish there was a clear cut-this is caused by this and this is caused by that so you could know for certain what's going on is lupus or something else crazy. I feel like now every ailment I develope is caused by this but no one knows for sure... Since it varies so much! Laaame....

On a side note... Has anyOne seen the tickle duck thing at hallmark? I so want it. I was literally sitting there cracking up for 10 minutes tickling this thing in the mall. I'm sure the employees there loved me for it.

LOL My daughter and I saw it! We laughed so hard! Thanks for mentioning it!

Nat
04-12-2011, 06:37 AM
I had the same issue but had a pulmonary embolism. I thought I was having a panic attack until I started getting pain. The pain from a PE is nearly as bad as pleurisy...hope its neither for you.

Angel Oliver
04-12-2011, 10:20 AM
Hi Nat yes i too had the P.E, b ut im wondering ....have you been tested for Asthma? Just a thought as i have it and i have similar problems,unable to catch a breath or exhale properly.xxxx

debbie-b
04-13-2011, 04:14 AM
I told my doctor about how I had trouble breathing a few days ago and it felt as if I couldn't catch my breath. Even if I took a deep breath it just didn't feel like I was getting enough air. Almost like I ran a marathon and was trying to catch my breath but I hadn't ran and breathing didn't help. He looked at me weird and said "your symptoms are very strange" and that was kind of it? Haha he didn't really answer me or seemed concerned about it so much but I don't know. He did ask if I had anxiety attacks but I don't. Any else have this or thoughts on it?

You know, what gets to me? Why are doctors ( rheumies) so puzzled, when we tell them about our very COMMON symptoms?
I too, have breathing problems, not all the time, but often. I also have brain fog, but when I mention it to my rheumy, he looks at me like I am speaking in a different language.
I mean breathing problems and brain fog, are two MAJOR symptoms of lupus. So WHY ARE THEY SO BAFFELED WHEN WE TELL THEM about these symptoms?????????????????
It looks to me, like they are not doing their homework.

Debbei

Peridot20_Gem
04-14-2011, 04:24 PM
Hi Debbie,

Good point mate as all these breathing problems are connected to Lupus i've never been told i've had PE but been rushed in hospital that many times and fed on a special oxygen for my heart, then tubes down my nose at the same time and pleurisy is terrible had that twice and i mays well say my lungs are b.ggered.
I see my specialist and get no where he just thinks i'm a blood donner but it does get you mad if you practice in a field of work they should be happy to go out of their way treating people with their knowledge instead it's soft looks.

Terri x

debrodg4
05-05-2011, 03:19 PM
I have had this happen to me many times over the last few years. I always thought maybe I was too stressed or something. That's what the doctor's love to tell us, "oh just calm down, and you will be fine" (yeah right) That has always been one of the most distressing and scary symptoms I have had. I hate to say this without sounding mean, but I am certainly glad I am not alone on this one. I have in the past slowed my breathing down, and tried to relax but it is hard when you have that sensation going on.

Peridot20_Gem
05-09-2011, 10:41 AM
I have had this happen to me many times over the last few years. I always thought maybe I was too stressed or something. That's what the doctor's love to tell us, "oh just calm down, and you will be fine" (yeah right) That has always been one of the most distressing and scary symptoms I have had. I hate to say this without sounding mean, but I am certainly glad I am not alone on this one. I have in the past slowed my breathing down, and tried to relax but it is hard when you have that sensation going on.
Well it's a known fact that stress and depression Lupus thrieves off it to make we worse but i also suffer from anxiety attacks and when they strike it makes the breathing out of control, the only thing missing when i'm like it is an HEART ATTACK when it's so severe.
I've got to attend my GP's this week and they're testing my lungs now for COPD - (Chronic obstructive pulmonary Disease) because my breathing is that bad i'm on 3 inhalers a day and getting no benefit.

I'll add some info on the condition to help member's incase they think they have it.

Terri xxx

Peridot20_Gem
05-09-2011, 10:43 AM
COPD - (Chronic obstructive pulmonary Disease)

COPD (chronic obstructive pulmonary disease), emphysema or asthma - what these and other lung diseases have in common is that too little oxygen gets into the blood and into the cells to the "miniature power plants" mitochondria.



AIRNERGY treats the true causes of these diseases and makes sure that the lung cells produce more energy and improve their capability.



Benefits to COPD patients include:



Breathe easier, cough less

Exercise capacity increased (walk further / climb stairs)

Improvement in sleep

Improvement in peak flow

Normalisation of blood pressure





The additional energy that is supplied by breathing Airnergy activated air can be used by the weakened cells to recover and to regenerate. Furthermore the lung cells are protected from new strains - for instance from aggressive oxygen compounds (free radicals).

lizbond36
05-09-2011, 12:37 PM
I haven't been DX with MS as of yet, however I do have trouble breathing and pain that comes from my back wrap around to under the left breast. And it feel like something sitting on ur chest. This is better know as the MS hug. But this happens monthly, the breathing is when I have flars. Hope I had help.

Liz

Peridot20_Gem
05-09-2011, 01:11 PM
Liz,

The pain you have across your back and chest, well i have it around my lungs bad and my lungs are swollen out and the pain is terrible i saw my GP who said the Lupus is going mad and making the muscles around your lungs swell but i already new the lupus was going mad from seeing the blood specialist who said the sjogren's was going rapid as well.

Your really going through the lot yourself.xxx