PDA

View Full Version : Update on my syncopes (fainting/passing out) or whatever you want to call them!!



Colleenc
03-23-2011, 07:02 PM
Well there still happening!! But I can feel them coming on so I have not hurt myself lately!!
Oh the arm is slowly healing (for those who don't know I passed out, hit my arm off a glass vase in the tub that needed 60 staples, had glass left in the wound for 2 weeks until it got infected, needed surgery to remove the 5 pieces that were left in), still painful in my elbow (not sure if I will ever believe they got all the glass out) and I'm going to have one heck of a nasty scar!! The rest of my scars (chin and eyebrow) are healing nicely.
I seen a cardiologist who ordered an echo and a 30 day event recorder. I have had many syncopes recorded on this. I have since heard that I do have an arrythmia (some kind of tachycardia) during these episodes. My heart is running between 160 to 210 beats a min during these. I still have the recorder until the end of the month. Cardiology wants to see me after my tilt table test (which they said will probably be neg so not sure why they are putting me through it, they can just go off the recorder readings) to discuss what course of action needs to be taken. I have been told I will likely either need an abulation SP? (surgery to correct an electrical pathway) drugs or a defibulator depending on where the arrythmia is occuring. So I'm relieved to know they have found something. I just need my life back. I can't go back to work or drive until this is fixed or stable and that is driving me crazy. I have also developed a bit of a social phobia because I'm afraid of passing out while by myself at a mall!! I see the Cardiologist April 19th.

tgal
03-23-2011, 07:07 PM
Well I am going to keep my fingers crossed for you! It is funny that you mention a social phobia. I have become really scared of public places and traffic makes me insane (thankfully I can't drive now but it still scares the fire out of me!

serand4
03-23-2011, 07:23 PM
Maybe that's common for those of us still adjusting to the Lupus. I also prefer to stay home. If it weren't for my son and the need for groceries, I probably wouldn't go out much at all. It's frightening to be out in public and suddenly feel so weak you can't stand. It's embarrassing to try to count out cash and have your hands shake so bad that it's nearly impossible. Today I literally wobbled into the woman in front of me as I was putting groceries on the counter -- I've been so dizzy. I'm still training my son to help me when I'm finally too weak to make it out of the store. He's doing much better! But I get sweaty and I'm swollen and my makeup runs. No wonder we don't want to go out! After years of having some control of our bodies, suddenly we are totally at their random mercy and worse yet, it's so public! I was trying on sundresses today and couldn't escape that dressing room fast enough! My stomach is so swollen I looked pregnant. It was horrifying! I'm hoping that as I transfer over to this new med and the prednisone goes down, so will the swelling. But it is definitely hard to be out in the community when you never know what's going to happen next.

red246
03-23-2011, 09:10 PM
Colleen,

Forgive me if I'm bringing up something that has already been discussed, my memory is not what it used to be. Have they discussed the possibility of POTS (Postural Orthostatic Tachycardia Syndrome) with you? You mentioned the Tilt Table test which is used in diagnosing that. Also, your heart rate is about what my daughter's is when she has her episodes of near Syncope - she hardly ever passes out anymore - comes very close though. Do you know if your blood pressure drops when you have these episodes? I don't think that the recorder catches that if memory serves me correctly. Anyway, like I said if this has already been brought up, sorry, heck I may have brought it up! LOL (((HUGS)))

lovehubby
03-24-2011, 07:35 AM
Maybe it would help tp wear a medical alert bacelet to let people know that you have these episodes of fainting. I have SVT which is a tach too. But I have never passed out felt like I might but never have. Mine is controlled with meds. If I were you do some research on the cardic abulation. I was going to have it till I found out that they are not that successful and you could develope a diff. can of arrythmia So my cardio saids if can be controled by meds you are better off then a invassive process. I told him I felt the same there are alot of good antiarrythmia drugs out there that can help. But get on the computer and research the abulation it might be right for you !

serand4
03-24-2011, 10:30 AM
I don't know if you guys were talking to me or to Colleenc but I just did a quick search and the symptoms are absolutely on the nose! Wow, the things I learn on this website! What struck me immediately is that I've had vertigo and have told my mother many times, "this just isn't vertigo, it's different!" I will definitely be asking my doctor about it. Thank you so much!

Colleenc
03-24-2011, 11:59 AM
Lauren,

I think we may have discussed POTS before. I have looked it up. It fits a bit with my sympotms, except these syncopes are happaning even when I'm lying down and I can't make it stop if I feel one coming on and lie down before it happens. I'm not sure but with POTs it's occurs when getting up or changing position? The doc I'm seeing said he totally expects the tilt table test to be neg, but wants to do it just to make sure it's not a postural thing. The recorder has picked up some kind of tach and artrial fib. I won't know until I see him in April. I'm totally frustrated not being able to go back to work!
I'm going to reseach POTS again.
C

Colleenc
03-24-2011, 12:06 PM
I know I need a medical alert bracelet, not only for the syncopes, but to list all the meds I'm on. I'm not sure what kind of tach I have and I won't know until I see him on the 19th. I have also been told there is Artrial fib happening to. The abulation scares the heck out of me. Whenever I have anything invasive it never go's right and the fact that I have to been on such high amounts of blood thinners and can't stop taking them puts me at such a great risk of complications (had a kidney biopsy that I bled out from). I may even get a second opinion before I go through with it. The good thing is they would be doing it a a major teaching hospital in Toronto, not in my hillbilly hick town!!

Colleenc
03-24-2011, 12:12 PM
Serand,

I'm swollen too!!!! From all the steroids I have been on in the past few months. I hate looking in a mirror, I have gained 12lbs!! UGGGHHH. I'm still OK with going out, I just don't want to pass out and hurt myself or cause a scene. Unless I need stitches or have a broken bone I won't go to the hospital after these so I sure I would have to fight with the fire dept or paramedics to not take me to the hosp. They say follow up with cardiologist, so I avoid going. I have asked my hubby to tell all his fellow firefighters to just make me comfortable and don't sent me to the hosptial if they respond to a call and it's me!! They just laugh!!! I hate not having control over these. If I could prevent them from happaning that would be great!!!

red246
03-24-2011, 12:15 PM
Lauren,

I think we may have discussed POTS before. I have looked it up. It fits a bit with my sympotms, except these syncopes are happaning even when I'm lying down and I can't make it stop if I feel one coming on and lie down before it happens. I'm not sure but with POTs it's occurs when getting up or changing position? The doc I'm seeing said he totally expects the tilt table test to be neg, but wants to do it just to make sure it's not a postural thing. The recorder has picked up some kind of tach and artrial fib. I won't know until I see him in April. I'm totally frustrated not being able to go back to work!
I'm going to reseach POTS again.
C

Colleen,
Before my daughter got diagnosed and even now when she's REALLY bad she does still have the "dizzies" when lying down. More often though, yes, it is w/changing of position from either lying down to sitting up or standing up. Whatever it is, I hope they get it figured out & under control for you! (((HUGS)))

magistramarla
03-24-2011, 12:23 PM
I wear a medical alert bracelet whenever I go out of the house. I bought it for traveling overseas last summer. I picked out one that matches my watch, and I keep them on my ring stand together so that I remember to grab them both as I go out the door.
Hugs,
Marla

Colleenc
03-25-2011, 01:41 PM
Lauren how do they treat your daughters POTS??

Peridot20_Gem
03-27-2011, 05:39 PM
Hi Colleen,

I hope an identity tag helps you mate in your bad circumstances and you do make me laugh at how you laugh at what's happening, well that's one way of a good sense of humour.
I've had 3 of those tags and wore them at all times but the last time i wore one around my neck was a total waste as when i came around in hospital they was searching for idea and when i found out i grabed my chain and ID and throwed it at them, i said what the hell am i wearing this for, i've since found out that hospital's in the uk have told emergencey services not to bother looking, just to treat the patient when they get there, so in my eyes without knowing your condition or conditions anything could be pumped into you plus hurt any condition your going through.

Mind you i am talking about the uk, that's turned into a pure joke on all aspects concerned.

Colleenc
03-27-2011, 09:59 PM
YEah they are not used very much here, My husband is a firefighter and he said they rarely have the time to look to see if someone got one on. So not sure how much worth it is.
As for me always laughing and joking, it's my personality!!! I really try not to let this get to me. I have a fantastic life that I want to live to the fullest with no regrets. The things that bother me are the things I have control over but don't do nothing about. I have quickly come to realize my body is going to do what it wants to do and when and I don't have any control over that, I can just give it the best fighting chance!!! But sometimes I do get angry and frusturated!!!

C

Colleenc
03-27-2011, 10:08 PM
Update: The syncopes have been happaning a lot over the last few days. UUGGGHH no injuries, there are some laughs and a slightly upset hubby. I'll make this as easy on the brain as possible I'm sure you don't want graphic images. But I basically had one lying down last night that has never happened before! The only problem was my hubby and I were hanky pankying!! LOL Poor guy was in shock (not because I pass out he's seen me do that many times before and he's a firefighter so he wasn't scared it was the sex thing) I felt very bad, lets just say he won't be bugging for a while!! LOL I had to tell because laughing now is the only thing that it is keeping me sane waiting for this to be fixed!!

C

tgal
03-28-2011, 06:16 AM
Update: The syncopes have been happaning a lot over the last few days. UUGGGHH no injuries, there are some laughs and a slightly upset hubby. I'll make this as easy on the brain as possible I'm sure you don't want graphic images. But I basically had one lying down last night that has never happened before! The only problem was my hubby and I were hanky pankying!! LOL Poor guy was in shock (not because I pass out he's seen me do that many times before and he's a firefighter so he wasn't scared it was the sex thing) I felt very bad, lets just say he won't be bugging for a while!! LOL I had to tell because laughing now is the only thing that it is keeping me sane waiting for this to be fixed!!

C

OMG the hanky panky line just made me laugh so hard! I completely understand about the laughter thing. Sometimes it is laugh or cry and I like laughing much more. Thanks so much for sharing that! I needed it today!

SandyR
03-28-2011, 07:04 AM
YEah they are not used very much here, My husband is a firefighter and he said they rarely have the time to look to see if someone got one on. So not sure how much worth it is.

I've been told this by firefighter/police professionals in the family before too and their solution is to keep somesort of medical alert attached to your ID in your wallet. Either tucked right behind it or taped to it with your medical conditions/medications/allergies listed and an emergency contact name/number.

Peridot20_Gem
03-28-2011, 10:59 AM
YEah they are not used very much here, My husband is a firefighter and he said they rarely have the time to look to see if someone got one on. So not sure how much worth it is.
As for me always laughing and joking, it's my personality!!! I really try not to let this get to me. I have a fantastic life that I want to live to the fullest with no regrets. The things that bother me are the things I have control over but don't do nothing about. I have quickly come to realize my body is going to do what it wants to do and when and I don't have any control over that, I can just give it the best fighting chance!!! But sometimes I do get angry and frusturated!!!

CColleen,

Fantastic attitude towards life mate even though your going through the wars and so many other member's are like you, take Marla for instance she loves living the life of riley and i do admire the woman to say how ill she is, it's lovely when you don't let things pull you down.

I think what eats at me and i've told my hubby constantley, if i go back 4yrs i was going at a good steady pace in my life and i think that's what annoys me the way it's slowed me down within a few years.

Peridot20_Gem
03-28-2011, 11:07 AM
Update: The syncopes have been happaning a lot over the last few days. UUGGGHH no injuries, there are some laughs and a slightly upset hubby. I'll make this as easy on the brain as possible I'm sure you don't want graphic images. But I basically had one lying down last night that has never happened before! The only problem was my hubby and I were hanky pankying!! LOL Poor guy was in shock (not because I pass out he's seen me do that many times before and he's a firefighter so he wasn't scared it was the sex thing) I felt very bad, lets just say he won't be bugging for a while!! LOL I had to tell because laughing now is the only thing that it is keeping me sane waiting for this to be fixed!!

COmg colleen, i have just laughed mate fancy letting the poor chap down in such a loving state.lol It's a good job he as seen you like it before as anyone else would have thought they'd bored you to death.lol

Sorry to hear syncopes are happening more but all i hope for you is that you don't get hurt anymore than you have and are your other scares ok now plus healing fine.

Terri xxx

red246
03-28-2011, 03:14 PM
Lauren how do they treat your daughters POTS??

Colleen,

She is on Flurinef (I think that's how it's spelled), INCREASED water consumption & INCREASED salt intake. Note the emphasis on the water & salt. LOL When she doesn't have enough of either of those you can be sure she'll be going down sometime soon! She also tried Midodrine, but it didn't work for her.

Thanks for the laugh about the hanky panky! I have scared the crap out of my hubby too!
((HUGS))

Colleenc
03-28-2011, 08:32 PM
Glad to have given you all a laugh!!! It happened on the weekend and were still laughing!!

C

tgal
03-28-2011, 08:34 PM
I am really thinking that needs to be moved to the "brain fog" thing simply so we can all find it later! LOL Thanks so much

Colleenc
03-29-2011, 12:43 PM
Mari I think your right I will move it there!!

magistramarla
03-29-2011, 09:28 PM
Colleen,
LOL - I love this. The poor guy!
It made me think of something, though. Did anyone else learn the relaxation technique in Lamaze class where your partner helps you to relax by slowly touching all parts of your body from toe to head while talking gently? Jeff got quite good at this (five pregnancies-LOL), and I loved it. Since I've started having such a hard time relaxing and sleeping, he tried this technique to get me to relax and sleep. We started it, but by the time he reached my mid-section, I started spasming all over. It scared the heck out of him, and he refuses to try it again.
So, I'm wondering if your "hanky-panky" led you to the same sort of deep relaxation?
May have to experiment on that one myself - LOL!!!
Be careful, and take care of yourself.
Hugs,
Marla

Colleenc
03-30-2011, 06:39 AM
Went to lamaze class thought it was great, the ideas were great, but during about the first 3 hours of labour with my first it all went out the window!! LOL The next 2 were delivered with my own very inventive techniques that worked very well!!

As far as the hanky panky/deep relaxation thingy goes... There was no relaxation involved!!! An hour before I had my usual heart palp, I had mention them to him, but they seemed to have settled. When I layed down in bed my heart started racing even before we started, I should have took that as my warning sign, but I didn't. I never mentioned to him I was feeling not right. When I have my syncopes there is no spasming (although he might have enjoyed that). I just look like I'm asleep, I breath fast and of course my heart is beating at 200++ beats a min. I guess it took him a min to realize I was passed out not asleep!! LOL You are right POOR GUY!!! He hasn't asked for anything since!! LOL

Peridot20_Gem
03-30-2011, 07:55 AM
Oh colleen as your just starting your part about the other night i am laughing mate, you do liven our day up.

Your heart would start racing anyway heat of the moment but you naughty woman you should have told him and if you did start spasming christ that would well heat up the situation GOD JEALOUSY IS SETTING IN BAD lol

Well no wonder he ah asked since, have you ever thought that he might think he was boring you into one. (Just having the crack mate)

Hugs Terri xxx

Colleenc
03-30-2011, 08:43 PM
When I woke up and realized it happened I told him he was not doing his job (as a joke, he does a fine "job") so I fell asleep!! LOL We just rolled over laughing!!! He's taking it very well and is now "bugging" again. It would take a lot for him to really be upset. He's even shared it with his buddies, but I'm sure he put a spin on the story, I can only imagine what they are going to say to me the next time they see me!! We just laugh!!!

tgal
03-30-2011, 09:08 PM
Colleen,
LOL - I love this. The poor guy!
It made me think of something, though. Did anyone else learn the relaxation technique in Lamaze class where your partner helps you to relax by slowly touching all parts of your body from toe to head while talking gently? Jeff got quite good at this (five pregnancies-LOL), and I loved it. Since I've started having such a hard time relaxing and sleeping, he tried this technique to get me to relax and sleep. We started it, but by the time he reached my mid-section, I started spasming all over. It scared the heck out of him, and he refuses to try it again.
So, I'm wondering if your "hanky-panky" led you to the same sort of deep relaxation?
May have to experiment on that one myself - LOL!!!
Be careful, and take care of yourself.
Hugs,
Marla

LOL Ya'll are going to hate me but I really had no labor pains. I went to the Dr. that morning because I couldn't feel her move and my pregnancy was high risk so he had me come in. He looked at me and said "you seriously don't feel anything". I said "not a thing". He had my mom come in (she had taken me) and said "get her to the hospital now!" I refused to go until we stopped to eat!

Anyway, the reason for this long story is because the first time I felt like doing the breathing my doctor said "It is too late now! Her head is coming out!" LOL

Thanks for taking me back to such a fun memory!

Colleenc
04-02-2011, 05:24 PM
Congrats Mari!! There are not to many women that can say that!! I'm very jealous of you!!! LOL I felt every pain, twitch and ache during the 40hrs++ I spent in labour with my three baby chickens!!

magistramarla
04-02-2011, 09:01 PM
I'm like Mari. I had four out of my five at home. When Kayla was born, I served a spaghetti supper to my family and my friend's family, stopped and gave birth, and then finished my meal. When Meghan was born, we took her to the mall for pictures when she was 18 hours old.
Having a baby is a piece of cake; having AI diseases is hard.
Hugs,
Marla

Colleenc
04-04-2011, 11:06 AM
You are so right Marla!!!

I would have 30 babies over lupus any day!!!

Although 30 teenagers may be a different story....

magistramarla
04-04-2011, 05:00 PM
Yup, I know what that's like, too.
I taught in a high school - six classes a day, with 20-25 teenagers in each class.
I prefer teens to AI diseases!
Hugs,
Marla

Colleenc
04-05-2011, 08:40 PM
Well I'll make this short, if you have been following me on my other post about my hip then you will know this already, but I broke my pelvis somehow. Doc thinks it might have happened when I had 1 of my syncopes last week. Very painful. I had 2 more syncopes today and I'm going to bed soon cause I feel my heart starting again.... The 19th is going to take forever to get here. I have a bunch of tests booked ultrasound, x-ray and bloodwork. I have to go for then back to see doc later this week to determine what we are going to do about my pelvic fracture. He also thinks it's the cause of my very elevated WBC, looks like I have fluid or infection around that area. So more antibiotics?? Never ending. I'm never going back to work at this rate!! Oh and my hubby is off to Boston on a guys hockey weekend!! I'm happy for him, but I don't know why I always have to be very ill when he goes on these things. He promised me after this he's not booking anything for a long time. He is nervous about leaving me (the kids will be here) and I can hardly walk right now. Oh well he's only gone for 2 days....

pisces_music_girl
04-05-2011, 10:21 PM
Well there still happening!! But I can feel them coming on so I have not hurt myself lately!!
Oh the arm is slowly healing (for those who don't know I passed out, hit my arm off a glass vase in the tub that needed 60 staples, had glass left in the wound for 2 weeks until it got infected, needed surgery to remove the 5 pieces that were left in), still painful in my elbow (not sure if I will ever believe they got all the glass out) and I'm going to have one heck of a nasty scar!! The rest of my scars (chin and eyebrow) are healing nicely.
I seen a cardiologist who ordered an echo and a 30 day event recorder. I have had many syncopes recorded on this. I have since heard that I do have an arrythmia (some kind of tachycardia) during these episodes. My heart is running between 160 to 210 beats a min during these. I still have the recorder until the end of the month. Cardiology wants to see me after my tilt table test (which they said will probably be neg so not sure why they are putting me through it, they can just go off the recorder readings) to discuss what course of action needs to be taken. I have been told I will likely either need an abulation SP? (surgery to correct an electrical pathway) drugs or a defibulator depending on where the arrythmia is occuring. So I'm relieved to know they have found something. I just need my life back. I can't go back to work or drive until this is fixed or stable and that is driving me crazy. I have also developed a bit of a social phobia because I'm afraid of passing out while by myself at a mall!! I see the Cardiologist April 19th.

One of my very best friends has a fainting disorder- "conversion disorder", she calls it. It's a form of non-epileptic seziures brought on by stress or anxiety. What happens is when her stress and/or anxiety level reaches critical mass, her brain basically shuts down, and causes her to faint. While she's unconcious she is aware of what's going on around her, but sometimes she has trouble coming out of it. It's not even techincally a seizure, she just "falls down and goes boom" (her words). Interestingly another very close friend of mine has another form of non-epileptic seizures, Narcapleptic Seizures, and she has a dog to alert for her.

I'm new here, so I haven't been around for your previous posts, but I wanted to post my thoughts there, just in case something sound familiar. In any case, I hope you get answers soon!

Colleenc
04-06-2011, 08:11 PM
Hi music_girl,
Thanks for your post!! Unfortunantly mine don't sound like that!! When I'm out, I'm out. I cannot hear, feel, see anything until I wake up. Then it's like a light was turned on and everything works again immediatly. I have had lots of tests and they have found I have a heart arrythmia (tachycardia) of some sort. I have 1 more test then I see the cardiologist April 19th to see what we are going to do. The good thing is that I'm now able to tell when they are going to happen (in the beginning I couldn't that is why I hurt myself so bad several times) my heart races and palpitates and I get chest pain. Again thank-you!!
Take Care
Colleen

pisces_music_girl
04-06-2011, 09:42 PM
No problem! I'm a wealth of random information, haha. Originally, the doctors thought that my friend with conversion disorder had this thing where the blood did not circulate as fast as it should have, which would result in fainting upon standing, or something. It ended up being the incorrect diagnosis for her, but I thought that since you have tachycardia of some sort, perhaps the blood-moving is worht looking into?

Colleenc
04-09-2011, 09:38 PM
Just a quick update, I got a call from the cardiologist office, they moved my appt up after getting the results of the event recorder. I go this Tuesday!! Wooohoo... It's just in time these are getting worse and I'm getting some that happen back to back (I don't think my heart is getting back into it's proper rythem before I wake up and then I going out again). So I know this may sound weird, but I hope to god they come up with something on Tuesday. I'm so worried that I will have to go through more testing or crap because the test comes back inconclusive. I just want this fixed and over with. I have never felt so robbed of my life ever!!!

C

SandyR
04-11-2011, 07:15 AM
Just a quick update, I got a call from the cardiologist office, they moved my appt up after getting the results of the event recorder. I go this Tuesday!! Wooohoo... It's just in time these are getting worse and I'm getting some that happen back to back (I don't think my heart is getting back into it's proper rythem before I wake up and then I going out again). So I know this may sound weird, but I hope to god they come up with something on Tuesday. I'm so worried that I will have to go through more testing or crap because the test comes back inconclusive. I just want this fixed and over with. I have never felt so robbed of my life ever!!!

C

I don't think it sounds wierd. You want answers. Answers lead to options for solutions/treatments. I want that for you too. It's a good sign that they called you in early. It means that whatever they found they are wanting to act NOW on. They clearly aren't willing to have you just wait anymore so that is good because you are a step closer to that answer. They might run some more tests just to narrow down things more or to decide on a course of action, but the important thing is, they are acting upon things now and it's no longer a sit and wait game. Let us know what happens. You're in my thoughts and prayers.

Colleenc
04-18-2011, 05:03 PM
OK sorry it took so long! Seen cardiologist and I have inapproprite sinus tachycardia(which is not life threatining, just life altering), basically that means the sinus node in my heart is miss firing at all the wrong times. It causes my heart to beat to fast and become irregular. I go for a test tomorrow just to rule out a possible cause (although the doc thinks it will be negative) the I will start on beta blockers (although they don't think they are going to work) then we will try ablation of the node itself. Ultimately I need a pacemaker, but they want to try the less invasive stuff first. The problem I have is if I was 80 they would just stick a pacemaker in (that came right out of the mouth of the doc) but because I'm young they want to "try" the easier things(to save me from havin hardware in my body forever). I think this should be the opposite!! My life has been on hold because of these syncopes and now that I have been told there are no quick fixes (except the pacemaker) I will have to quit my job because my sick leave pay runs out soon and I need income so I will need to go on unemployment. I have to quit because I can't drive until these get better (I drive 1hr and 1/2 and there is no public transit). I'm happy to have answers , but very upset at the thought of having to quit my job!! I'm thinking of getting another opinion just to see what another doc has to say.

SandyR
04-19-2011, 07:21 AM
A second opinion can't hurt. It could only give you more options or verify the one you were given as best for you. I would probably be looking for a second opinion too.

As far as the work thing, that sucks. There aren't two ways around it. With a commute that long and no other transportation options that just sucks. Does your boss know the situation? Do you have disability leave you can take? Is your company a small company that will hold your spot for a while?

Colleenc
04-19-2011, 07:37 AM
I work in a hospital. The leave is not the issue, they would give me as long as I need off (they are very aware of my sickness) The problem is I have used all my sick pay in 2 weeks. I need to have some income(although my hubby said we can get by on his but it would be tight)I just don't feel right not bringing in my "own" money. In order for me to get any kind of money I have to apply for unemployment and in order for me to do that I need to quit. I'm just heart broken. I know I can find another job closer to home, but this was a great paying one and I love the people. As for disability here in Canada, I'm not eligable because our family income even with me not working is over 80 grand a year.I'm going to talk with occ health at work and see if there is some way around this. That is my last chance! )<:

Linda From Australia
04-19-2011, 04:57 PM
It has been suggested to me to work part time just for a year while I recover from an operation I had in January, along with the aches and pains I suffer with Lupus. I want to work full time and not cut back, but I have already taken 4 weeks sick leave since Jan. I am slowly getting better, but I know life would be so much easier if I do cut back my hours.

So it seems a little hypocritical for me to ask is it possible for you to cut down on your hours for a period of time?

Colleenc
04-19-2011, 07:43 PM
I "used" to work 4 days a week, it actually not the work itself, but the drive. I'm not allowed to drive due to the syncopes. We live in a rural area and my commute is over an hour. Public transit is not an option. If I can find work closer to home then I can get a ride in with my hubby. I'm only going to be looking for part-time now. At this moment full time would be to much. In the mean time while I'm waiting I'm going to take a college course or 2 from home to keep my mind active!! It's funny because my docs have been after me for years to stop or cut back my work and now that it's happening they haven't said a thing other then don't drive!!

Colleenc
04-19-2011, 07:55 PM
So went for my test today (tilt table), nothing came of it like the doc predicted!! So that's good and bad... I have my script for the beta blocker (bisopanol sp?) They have started me on the highest dose in hopes it works. I should see a difference in 7-10 days (although they think theres only a 30% chance it will have any effect). They spoke with me and asked me to think about the surgery. Obviously I willing to do anything to get my life back ASAP. I will still keep my fingers crossed the drugs work, but I'm preparing myself for the worse case senario. The syncopes are happening closer together now (3-4 times a week) and at all different times of the day and night (the good thing is I can tell now). My frustration level is increasing by the hour, I have an appt to meet with my director at work to quit my job next Tuesday, its spring here and my new motorcycle is collecting dust, my family is becoming increasingly worried and stressed about me and I'm finding my friends starting to pull away... I have done so well mentally up until now, but these last few weeks I find myself angry and stressed more than ever!! I really think its the work thing but I don't know. I seen my rheumy on Mon and the orthopedic doc next thurs, I hope they both have better news for me and some better pain relief for the fractured pelvis....
Just venting!!

A not so happy right now Colleen )<:

magistramarla
04-20-2011, 09:55 PM
Hey Colleen,
Vent away, my dear! I know it's rough to give up a job that you love. I miss teaching sooo much.
I'm so glad that you are getting some answers. Hopefully, either the meds or the surgery will work for you and you can get back to a somewhat normal life.
Just hang in there, and keep coming here to vent when you need to.
Hugs,
Marla

Peridot20_Gem
04-26-2011, 03:25 PM
Hello Colleen,

Sorry it's been a short while since i've been intouch mate, have'nt been on top form for the pc or hardley anything.

Like marla said vent away as we all need to do it sometime, if i did'nt i'd go up the wall. Mind you i am sorry to hear your synscopes are more a week and i bet your down about quitting your job, you can imagine how i feel after 25yrs years it can really get you down.

Refering friends drifting i had that and in my eyes that ah true friendship, you family love and adore you and that's all that counts mate.

Thinking of you dearly colleen. xxx