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porchy
03-15-2011, 05:55 PM
Had a very good doctor visit today. He upped my pain meds, thank GOD....... and also we are going to try "re-arranging" my blood pressure meds so that I get more support in the evening when my BP starts to spike. I hope it works!

He also wrote an order for an Xray of my left hip which has had me hobbling like an old woman for several months now. I am not sure if it's fibromyalgia related or arthritis. Also I will be switching from Zocor to Lipitor to see if my triglycerides will come down to a better level.

So everyone who was keeping me in your thoughts and prayers....thank you so much!!! Remember me again in a couple days when I go to my eye doc and see if I need glaucoma surgery or not. I am not liking these drops but if the side effects don't get any worse than the burning irritation that I am having now, as long as they lower the eye pressure I would rather keep taking them than have surgery. But if the side effects get worse (I had deep eye pain with a stronger eye drop in the same family as this one) OR if the eye pressure is not any better, then I will probably opt for the surgery.

I can't wait to get past this stressful week.

tgal
03-15-2011, 06:03 PM
Glad you had a good appointment! Those don't come along every day

porchy
03-15-2011, 07:55 PM
Yes, Mari......I am lucky to have a doc who understands chronic pain......he himself suffers from several health issues, one of which is chronic knee pain.

Throughout my journey of the past 29 years, I have had the unfortunate experience of dealing with difficult, mean, uncaring, arrogant and patronizing doctors. I have been invalidated, mocked, patted on the head (figuratively), ridiculed, called a liar to my face, been dismissed, and treated like crap in more ways than one. There were many more docs out there that did not understand or believe in or acknowledge chronic pain issues like fibromyalga way back then.

Even though the medical community has a long way to go in learning about and understanding the issue of pain......we have come a long way and there are more and more out there who are beginning to take note of the huge number of chronic pain sufferers. They are coming to terms with their own bias and realizing that maybe there is something to all the people who flock to their doors in search of relief.

For those open-minded doctors who are humble enough to step down off their pedestal and accept the FACTS.....we say Thank God, FINALLY!!! Now DO SOMETHING FOR US!!! We have been made to wait too long.

My doc was schooled under my rheumatologist (now retired from seeing patients but still teaching) who is a world-renowned doctor, Dr. Alfonse Masi, who worked with Dr. Muhammed Yunus, the "father" of fibromyalgia (look him up on Google, "Dr. Muhammed Yunus fibromyalgia"). My doc studied under Masi for over a year during his internship, and learned alot about fibromyalgia, arthritis, lupus, and chronic pain. I am a very lucky patient.

My doc has very serious heart problems.....so I am always worried about him and hoping that he will not become incapacitated and be unable to continue his practice. The thought of having to find a new doctor is daunting to say the least. I can't imagine trying to find one that is as compassionate and caring as my doc. I just take it a day at a time and hope & pray that I will always have access to what I need from him....pain meds, advice and just someone to acknowledge and validate what I go through on a daily basis.

tgal
03-15-2011, 08:07 PM
That is so wonderful! Maybe you should start talking to your doc now about who he needs to "school"... just in case! LOL

steve.b
03-16-2011, 05:50 AM
glad to hear all went well.

hope the eyes stop hurting.
i will be thinking of you and your eye examination.

steve.b
03-16-2011, 05:55 AM
it is usual for our blood pressure to rise in the evening.
during the day, we are upright, and active.
as the day draws to a close, we tend to relax and put our feet up.

the verticle distance from out toes, to our heart is reduced.
when we lay down, we reduce this distance ti nill.

i take blood pressure medications also.
i take them in the evening, as most heart attacks are when people stop for the day, not when they are active.

this advise was given to me by several different doctors, (all who care).

mountaindreamer
03-16-2011, 05:56 AM
hi porchy,

so happy to hear that your drs. appointment went well. you have a compassionate specialists who listens to you and makes necessary adaptations in your treatment....that sounds like a winning team.

now, let's hope that eye surgery is not necessary....i will keep my fingers crossed for you.

SandyR
03-16-2011, 07:25 AM
it is usual for our blood pressure to rise in the evening.
during the day, we are upright, and active.
as the day draws to a close, we tend to relax and put our feet up.

the verticle distance from out toes, to our heart is reduced.
when we lay down, we reduce this distance ti nill.

i take blood pressure medications also.
i take them in the evening, as most heart attacks are when people stop for the day, not when they are active.

this advise was given to me by several different doctors, (all who care).

Very interesting. Thank you for sharing.

SandyR
03-16-2011, 07:26 AM
Had a very good doctor visit today. He upped my pain meds, thank GOD....... and also we are going to try "re-arranging" my blood pressure meds so that I get more support in the evening when my BP starts to spike. I hope it works!

He also wrote an order for an Xray of my left hip which has had me hobbling like an old woman for several months now. I am not sure if it's fibromyalgia related or arthritis. Also I will be switching from Zocor to Lipitor to see if my triglycerides will come down to a better level.

So everyone who was keeping me in your thoughts and prayers....thank you so much!!! Remember me again in a couple days when I go to my eye doc and see if I need glaucoma surgery or not. I am not liking these drops but if the side effects don't get any worse than the burning irritation that I am having now, as long as they lower the eye pressure I would rather keep taking them than have surgery. But if the side effects get worse (I had deep eye pain with a stronger eye drop in the same family as this one) OR if the eye pressure is not any better, then I will probably opt for the surgery.

I can't wait to get past this stressful week.

hooray for good doctors who listen!

PainGoAway
03-16-2011, 10:21 AM
Glad you had a good visit and it's AWESOME you have a great doctor. It seems that is a VERY hard thing for some people to find.

porchy
03-19-2011, 08:16 PM
Did not make my eye doc appt. on Thursday, did not get sufficient sleep the night before due to several reasons I will not get into. Then I had a Total melt-down with my meds. Bad situation occurred Thursday night, too many drugs, too close together....CNS depression.....came very close to waking my very tired, sleeping husband in the middle of the night to take me to the ER.

I was having an incredibly difficult time breathing for about 4 hours. I had taken quite a bit of pain meds and along with the different doses of blood pressure meds, I really thought I was a goner for awhile there. My breathing became more and more labored until I was sweating bullets, sitting in front of the fan with my head on the table, trying to remain calm.

I still was having repurcussions yesterday and ended up sleeping (passed out) on the couch for 4 1/2 hours, which is not surprising since I hadn't had even 9 hours of sleep for 2 days prior....

I am still having to try and figure out how I am going to control my blood pressure and control my pain at the same time, without adversely affecting my central nervous system. Too much of both blood pressure and pain drugs, along with other drugs that I also take, caused me to struggle for each breath for those horrible 4 hours....I was trying hard not to panic.

I don't understand why my doc didn't see this as a potential problem. I did not call him....yet. I think I am going to have to be the one to determine what I can take and when..... I am extremely sensitive to drugs and evidently I had too much of a pharmaceutical cocktail in my system than my poor body was able to process. It scared me to death. I am still nervous about taking my meds, but I am still trying to find the best way to take care of my conflicting problems without causing another medicinal meltdown. Pray for me, send me positive vibes, keep your fingers crossed that I can figure this out. I will do it, or die trying. xoxo

tgal
03-19-2011, 08:55 PM
Oh I am so sorry that you are going through this! Doctors are in such a hurry to get us out of their office that they don't pay attention! I now consult with my pharmacist because she has caught bad med combo's several times. I know that it doesn't fix yesterday but it may help in the future. Wish I could hug you from here but my arms are just a bit too long.

It will get better!

magistramarla
03-19-2011, 09:15 PM
Hi Porchy,
I hope that you are feeling better and getting some rest this weekend.
Your doc sounds like a good one. Hopefully, the two of you can work out a good way for you to take your meds.
Hugs,
Marla

mountaindreamer
03-20-2011, 05:24 PM
hey porchy,

wow, i know you were scared...so glad you were able to keep from panicking...that would have just made it worse.

if your dr. does not have time to talk to you able the "pharmaceutical cocktail" ( ha ha ha), then i agree, your pharmacist would be a good reference. i always talk to my pharmacist when starting a new drug, just to see if there is anything that i should watch for.

hope you are doing ok, and feeling better this weekend.

SandyR
03-21-2011, 08:44 AM
Julie,

I'm just getting back on here now. What happened? I know we texted yesterday so did you call the doctor? Please don't start altering your meds without talking to your doctor and pharmacist. Some of them might be controlled substances that interact with the other meds in specific ways. I really hope you're feeling better. And resting up today! No more house cleaning today!

GoodDog
03-21-2011, 06:47 PM
I hope you're feeling better today, porchy. I tend to take less amounts than doctors prescribe because I have many problems too. I know it's dangerous but I also talk to my pharmacist. There's something to be said for using a pharmacy regularly and getting to know the pharmacist. Mine spends quite a bit of time helping me... more time than most doctors take.