View Full Version : NMO-lgG test for Devic's disease showed Negative for antibodie's!

03-13-2011, 03:59 AM
Hi all,
Hope you all are as well as can be. Got my result's on the nmo -lgG test
my neurologist specialist ran just to make sure i didnt have this other rare
disease that the other dr's may have missed, and thank god it was negative!
It sure was a relief to hear of one test being negative in all that has been going wrong here lately! I had to ask the nurse 3 times to make sure i was hearing her correctly.
Got my bloods drawed this last fri mar 11th to make sure the imuran is not droping my counts to low also demanded a chest x-ray from my local
rummy that is not to smart with the lupus,sjogrens ,etc. As i have been haveing new very short of breath and short wended for just a very short distance, to make sure sjogrens or something else is not going on , trying to
catch it in time, becuse she just denies lupus or sjogrens can cause those kinds of problems? Even my new heart issuse with endocarditis, she said
OH! Lot's of people have regurgation of the mitrovalve and the triscupsid valve
I told her i jus had a echocardiograham of my heart 8 month's ago and it was
perfectly normal and healthy? It is usleless to argue with her so ill
wait till i see my cardiologist to see how bad it is and hope for the best that it hasent done any dammage as to where i will need surgery.
I go to see my rumatologist specialils at the university the 31st of march
and will surley get my heart dr' there that also specialises in lupus and sjogrens also, am so through with these local praticeing rumatologist here!

She also put me on the Boniva once a month as she ask why i hadent done
my reclasp infusion yet for my bones due to the predisone makeing your
bones prone to fracture, I told her i was still to sick with my flair and weak to do the infusion yet as it makes you run a 103 to 104 fever for 5 days and severe flu type symptoms, so she put me on the once a month boniva to
help me from bone breakage for now and a new stomach pill Dexilant
to help with my refulx as the boniva will aggervate it.
So I took my first boniva and have had kinda mild flu type symptoms, and severe dirrear so far , maby it wont last long.
LOL!!!!!!!!!! It dose never seem to end!!
Will keep you all updated sure hope all this slows down a bit for me,
Lot's of love to you all, And wishing you all a Great and pain free weekend,


03-13-2011, 05:05 AM
good to hear the good news.
sorry the rest was not as positive.

03-13-2011, 10:11 AM
Glad to know something went the way you wanted it! We need the good news

03-13-2011, 08:07 PM
Glad to hear your lab work came back negative!! (<:

03-14-2011, 04:17 AM
Thank's very much, hope you have a great day!!!!!
good to hear the good news.
sorry the rest was not as positive.

03-14-2011, 04:21 AM
Thank's Mari, Sure was a bit of sunshine in the mist of all the darkness here
lately! I surley needed a little good new's to help lift me back up again.
Hope you are doing ok, And wishing you a great day Mari!
Glad to know something went the way you wanted it! We need the good news

03-14-2011, 04:24 AM
Thank you Colleenc,
It was surley a breath of fresh air and a great relief to get some good
new's !!!! Hope you have a great day!!! ~Diane~
Glad to hear your lab work came back negative!! (<:

03-14-2011, 10:16 AM
Hello Diane,
Sorry i have'nt answered earlier mate but that's terrific news for once and that's one less worry now.
When do you get your blood results diane? that imuran does cause you some problems which you could do without.

Oh i do hope your diarrhea as eased off you abit diane off that boniva, as your thin enough as it is without losing more weight, that's my dreaded subject if that starts with me with the plaqueni, as it will be god help me.

I really hope you've been abit better today mate but that's lovely news otherwise.

Thinking of you always dear friend ((Hugs & Kisses)) Terri xxxxxxxxx

03-15-2011, 04:40 AM
Hello Terri,
Thank you, for checking on me as i know you havent been feeling well either sure hope you
are feeling a bit better and praying your eye appt go's well, and you get GOOD RESULT'S!
I got my blood test back yesterday nurse called at 7:58am not like her to call so earley so kinda
scared me figured it was bad news, cause usley i have to call her back for result's! LOL
Any way got good new's again all my blood work on the IMURAN was good not dammageing my kidneys or bottoming out my blood count's woo hoo! Also my wbc and red bc and was also good
still slitely elevated white blood count but mine has been elevated for several years now , not bad though i think it was 13,600.

Dont know what i would of done if the IMURAN would of not set well with me as the mextrate
would of been my next only hope to slow the brain disease, But thank goodness the imuran is doing ok.
Im haveing the numbness on whole right side again and bad balance issues and thinking problems and good bit of pain also , sure hope it start's to ease up a bit.
Lot's of love to you and Wishing you the best of luck with your eye appt!
Let me know how it go's Your always in my thought's And a very dear friend!! ~Diane~

03-15-2011, 09:12 AM
Hi Diane,
Still suffering with the nausea and sickness bad and it hits me more stronger towards bed time for some reason.

Well i am pleased about your blood results, now that's 2 come back ok and it comes in 3s so i'm touching wood for you mate on any furthur results.
I bet you are pleased the Imuran and mextrate have settled ok together and i hope all side affects ease abit for you mate because you don't half need it, with what your going through.

Well i hope todays been a better one mate...and all my love to you and thinking of you dearly.
Love to you Terri xxxxxxxx