View Full Version : Got better, then got worse =(

03-07-2011, 01:51 PM
I've felt especially sluggish all weekend so I tried to take it easy and just sit down and watch some movies. All was looking a little better with the swelling and everything but I had this weird sore throat and was so tired. Then my Raynauds started acting up like crazy and I dont know why because I've been staying so warm! Today I was at school and everything was fine until, as if on schedule, my feet got all swollen again! =( I seriously cant even do anything like walk for maybe 3 min across my school building 4 times a day without my feet getting huge. I feel so pathetic. I seriously have been confined to a chair or my bed for weeks and its really starting to get me down. I go back to the doctor tomorrow I hope she has some suggestions on what to do to help the swelling up at school. Anyone here have any suggestions on how to get between classes without walking? lol I need a teleporter! That'd make life easier ;)

03-07-2011, 01:57 PM
I am so sorry Ritz! I think you need one of those things (and of course I can't think of the name) that you stand on and just lean a bit forward and it goes forward and you lean a bit back and it goes in reverse. The name of it is on the tip of my tongue and it is irritating me!

Anyway, you need one of those!

03-07-2011, 02:04 PM
I'm so sorry, ritzbit. If you can't walk you may have to talk to your doctor about getting mobility equipment to help you get around. I know that's a difficult route to take but it may be a solution for now. I think about you often and hope you start feeling better soon. http://www.kolobok.us/smiles/artists/vishenka/l_dance.gif

03-07-2011, 02:09 PM
A segway! lol that would be incredibly fun to ride around school on lol I dont know what she'll do for me. How long does prednisone and cellcept take to start working? I started on 30mg last Tuesday and even if it wasnt the prednisone working like I assumed my feet week getting better. Now all the sudden they look so bad again and it hurts to have socks on so my feet are freezing and purple >:[ Its so frustrating because Im doing everything I've been told to do and they are still swollen! Stupid vasculitis. I hope its not happening anywhere else, but I assume I would have noticed if it was. I appreciate you guys listening, I have no one else I can talk to about all this because they have no insight.

03-07-2011, 02:39 PM
Sorry to hear your on another decline!! If you have soft cloth, you might be able to make make-shift booties that you can easily slip on and off. Probably wont work if you wear sandals though, but sneakers might hurt just as bad as normal socks do.

03-07-2011, 02:46 PM
I have those slipper socks and even those sound bad right now. My regular socks arent even tight and they are leaving indents on my fight! =( its ridiculous. I have wrapped my feet in a blanket for the time being lol

03-07-2011, 02:56 PM
does the school nurse have a wheelchair? she/he might let you use it with a doctor's note.

03-07-2011, 02:57 PM
I'd feel so weird in a wheelchair =(

03-07-2011, 02:59 PM
better than hurting yourself by trying to stand on your already swollen feet. besides - you can probably get out of class a few minutes earlier for each class to give you time to navigate the hallways traffic free.

03-07-2011, 03:02 PM
I'll talk to my doctor about it. Maybe we can come up with another thing that may help. I hope we do.

03-07-2011, 03:11 PM
you could always bring in a red wagon and have your dog pull you to class. LOL.

03-07-2011, 06:15 PM
Lol oh goodness that made me laugh. I think that is the best idea =)