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kim,l
02-23-2011, 01:54 AM
hi everyone today is a day i would rather forget sarah was waiting for colonscopy we had just came back from tea break when she complainedof having pain down arm her bloodpressure was low she went all quiet and then her eyes rolled back in her head stephen rushed for the nurse and he just stood there he was more concerned with where his pay was luckily aanother nurse from the operating room was there and she sounded the alarm she was seizing we were screaming and crying she stopped breathing they had to hit her chest they didnot think they were going to get her back we nearly lost our daughter today my husband went ballistic because she has been in emergency bed for 5 days and no ward bed and they did nothing to help her she had colonscopy this evening and they will be testing her in next few days for epilepsy or heart disease or something in her brain they have sent some specimen off for testing from colonscopy we are so frightened for our daughter i feel at the end of my rope thanks for listening kim l

Nonna
02-23-2011, 04:48 AM
Oh Kim!
How terrifying is right...... Enormous Hugs. I've been praying for you all especially Sarah. My thoughts are with you all as you wait for the results.

Toni

SandyR
02-23-2011, 07:35 AM
Oh Kim I am so sorry to read this. And I am so angry at those doctors for not taking her medical condition seriously enough that it has come to this. You and Stephen and Sarah are in my prayers. (((HUGS)))

Bonita
02-23-2011, 08:07 AM
I have been prayting for you and your daughter and i hope someone is held responsible for the things that are happening and they find out what is going on with your daughter. Love and prayers Bonita

tgal
02-23-2011, 08:21 AM
Oh Kim I am so sorry! That must have been a terrible night! Please keep us posted and know you are all in my thoughts

lovehubby
02-23-2011, 09:51 AM
Many prayers are going your way keep up positive thinking God will watch over her if you ask him !

chikititalinda
02-23-2011, 10:09 AM
Oh Kim I m so sorry, it must be terrifying. Thoughts and prayers sent you way. Hope this is all over ASAP

GoodDog
02-23-2011, 12:25 PM
Oh how terrible and frightening!!! Poor thing, she must have felt horrible and being in the ER and on those terrible gurney beds are so uncomfortable, I don't know how she did it!!

kim,l
02-23-2011, 02:16 PM
thankyou everyone they rang us again last night she had another episode in the ward had no feeling in parts of her body they were keep close eye on her demanding they do tests on her heart and head today to find out what is going on we had no sleep last night will be going to hospital soon will keep you updated hugs kim l

~LUVMYFLOWERS~
02-23-2011, 05:36 PM
Kim, I am keeping you'r daughter and you and family in my prayer's daily!! That the doctor's
will soon get her diagnosed with what is causeing her to be so sick, and get her on her way to a speedy recovery!!!!!!!! ~ Diane~ Big hug's to you & Comfort!!!!!!!!!!!!!!

BonusMom
02-23-2011, 08:38 PM
Sorry to hear about Sarah. I hope you get some answers soon.

kim,l
02-23-2011, 09:43 PM
sarah has irritable bowel sydrome she also has trouble with her bladder scan result says she is not emptying all of her bladder when going to toilet she is retaining urine. they would not do mri in hospital for seizures as the neurologist will not visit in patients we have to wait for her to leave hospital then get referral to neuro and she has to have mri and catscan she may have epilepsy or she may have something wrong with her heart it is ridiculous they are releasing her tommorrow even though they have cat scan and mri machine there all they are thinking about is the money for the neuro and the hospital budget so i will have to bring her home here until she gets scans and look after her i cannot leave her alone in case she has another seizure which by the way was caused because her blood pressure dropped to low yesterday and when we told nurse he said it was no problem and procceeded to only worry about making phone calls about his wage when she started to have seizure he just stood there like a stunned mullet it was stephen screaming get a doctor that finally made them do something and hit her in the chest to get her breathing then turn her onher side and hold her tongue i have reported this nurse is irresponsibility could have caused her death she also took another turn last night not as bad but had no feeling in her legs i am very frightened for her as i have mikaela with epilesy i now have all three of my children to look after as well as stephen who has been unwell to i am so tired and i feel guilty for not wanting this extra pressure i am there mother and they need me but i just do not know if i have the strenghth all my body is swollen my joints are aching and the fatigue is extreme i have not slept in aweek but there is nothing i can do but carry on such is my life right now thankyou all for your prayers and best wishes and for being there for me to vent hugs kim l

magistramarla
02-24-2011, 04:54 PM
Kim,
We're all thinking of you and Sarah. I wish that I could be there to help somehow.
Take care of yourself, sweetie. If you push yourself into a bad flare, it will make it even harder for you to be strong for everyone else.
Isn't there a way for you to get some sort of visiting nurse service to give you a break?
Lots and lots of Love and Hugs,
Marla

Angel Oliver
02-25-2011, 12:56 AM
Kim,

I am sorry to hear what your daughter is going through.You and your family are in my thoughts.Gentle hugs to you all.
love
Amanda.xxxx

SandyR
02-25-2011, 08:28 AM
Kim-
Somehow I missed your update. How's Sarah? Was she released? I can't believe how horrible these hospitals have been lately. It's everywhere. That they are worried about lining their pockets with dollars more than helping a little girl to relieve her pain and suffering is crazyness to me. Is IBS the official diagnosis? And is she feeling better with whatever meds they gave her? I too wish I could somehow be down there and help you out with your stresses right now. Please, please, please make sure you are taking as good care of yourself as you can with all this stress right now. I know you aren't sleeping well at the moment and who could in your shoes but please make sure you are keeping hydrated with lots of water and keeping nourished with not skipping meals and trying to nap a little when you can because I am afraid all this stress is going to push you right back into a flare.
-Praying for you harder than ever-
Sandy

kim,l
02-25-2011, 07:14 PM
hi sandy ibs is what they believe to be diagnoses and bladder scan revealed that her bladder is not emptying so she needs to see urologist she had 5 more seizures yesterday after being released so ambulance took her back she had cat scan which was normal and bloods normal they believe she was taking seizures called pheudo it is when someone is stressed and in pain and terribly fatigued they can take these type of seizures i am still going to get her heart and a mri and eeg on brain to confirm this as her heart rate is often fast and her blood pressure very low the fact that she waited in emergency for ward bed for 5 days then nurse did not do anything when her bloodpressure dropped instead ignored it because he was to worried about finding out when he was going to be paid he was on phone constantly did not have her showered for colonscopy or put her in gown we were the ones that alerted doctors she was having seizure and he just stood there. and on top of that they finally sent her to a ward and this man kept on coming into her room and exposing himself and touching himself and all the nurses could say was sorry we cannot keep him in bed she was in constant pain. i have reported this to patient advocate i am demanding something be done about the amount of time she waited for bed and incompetence of that nurse and that man being able to wander in room i have not slept for 9 days now i am flaring my joints are swelling and severe headaches and fatigue she is staying with us for the rest of the week until we can get further tests done as we do not want to leave her alone thanks for thinking of us you have all been supportive hopefully we will get answers soon hugs kiml

tgal
02-25-2011, 08:00 PM
I am so sorry that things are going so badly for you and Sarah. Please try to take care of yourself as well as Sarah. Please let me know if there is anything that I can do.
We all are keeping you in our thoughts.

SandyR
02-28-2011, 07:36 AM
wow! I am at a loss of words for how unbelievably wrong the hospital is treating Sarah. She's just a child and should not have to be treated so. How is she feeling since the weekend? Any improvements? What about you?

Bonita
02-28-2011, 07:41 AM
I agree that hospital should be reported to the right people. Maybe children and youth could do something about the rights of a child that the hospital is not respecting. I do not blame you for not letting her alone. I hope things turn around for you and your family soon. I have had you on my prayer list for a long time and will continue. Love and prayers Bonita

red246
02-28-2011, 08:07 AM
Kim,
Please know that you are both in my prayers and that I hope you get somewhere about the incompetence of the hospital staff!

mountaindreamer
02-28-2011, 09:18 AM
hi kim,

so sorry, but i missed the first posts here....oh, wow, i am so sorry to hear about Sarah's medical issues....i wish the hospital could do more to help her. the current entire medical industry keeps making mistakes.

I will watch for you to be online, i would love to chat with you....i hope you are able to get some sleep, i know your body aches all over... gentle hugs to you.

kim,l
02-28-2011, 07:05 PM
thankyou phyllis sarah is consulting many specialist neuro,urologist, heart , i am tired and blodpressure playing up and in pain would love to talk to you keep missing you on chatline hugs kiml

magistramarla
03-02-2011, 11:03 PM
Kim,
I hope that things are getting better for both you and Sarah.
Hugs,
Marla

Nonna
03-03-2011, 04:11 AM
Hi Kim

how's Sarah doing? How are you doing yourself? Don't forget to try and rest

hugs

Nat
03-03-2011, 06:30 AM
My thoughts are with you and your family Kim, I hope everything works out very soon.
Take care,
Nat

Linda From Australia
03-03-2011, 07:46 AM
Hi Kim, I am glad we got to talk the other day. I am thinking of you and all you have to deal with. Hopefully things will start to improve sooner than later!!!!