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tgal
02-18-2011, 07:18 AM
Well I am about to head out to my first (yes, first) Plaquinil Eye test. The original doc that put me on plaq told me to have one in a year but never told me about the baseline test so I didn't have one. The doc that treated me next asked about one since I had already been on Plaq for 9 months but I couldn't afford it. Last night, by accident, I found a doc that actually new what I was talking about and I have one today.

Wish me luck! Hugs to everyone

Nonna
02-18-2011, 11:49 AM
Good Luck with hugs

red246
02-18-2011, 12:43 PM
Good luck, let us know how it went! (((HUGS)))

SandyR
02-18-2011, 03:09 PM
how'd it go?

tgal
02-18-2011, 03:14 PM
Back from the eye doc and the good news is no damage to my eyes from the plaq! He did yell at me for not doing it earlier. Lectured me about plaq being a toxin and we have to watch my eyes. I do have to have new glasses because my eye sight is worse then it was 2 years ago. Over all I am very happy with the results and I don't come back from docs saying that often!

Saysusie
02-19-2011, 12:01 PM
I am glad that the Plaquenil has caused no ill effects to your eyes. Yes, it is a toxin, but we take it in such low doses that it does not often cause eye problems. However, it is good to have your eyes checked twice a year..I am not lecturing you :-)

I have to change my glasses also...I think that the more we wear glasses, the more we NEED them!! Uggh!! Maybe there is a universal conspiracy between the lens makers, the frame manufacturer and ophthalmologists to put something in our glasses that helps us for a year or two, but then damages our eyes so that we have to come back for new glasses every 2 yrs (lol). That is my conspiracy theory for the week :-)

Peace and Blessings
Namaste
Saysusie

Nonna
02-19-2011, 12:19 PM
I've had to change my lenses every 4-6 months this past year. I outsmarted the conspiracy by using my old frames

ritzbit
02-19-2011, 01:37 PM
I have been going for the Plaquenil checks for 2 years, but since I wear glasses Im already used to going once a year. I've been going twice a year and everytime I've gone all they did was the plaquenil tests even when I told them that I havent been seeing as well. So after not being able to read last week in english my mom finally made me an appointment on Monday. I've been telling my mom I couldnt see as well for months, and when she called yesterday they said the last time they actually checked my vision was in 2008! Dumb doctors lol

GoodDog
02-19-2011, 05:58 PM
I hadn't been to the eye doctor in over 3 years and my doctor insisted I have an exam because of the prednisone. A couple of weeks ago I finally went and I have a cataract! She said it was probably caused by the prednisone and that I should have surgery. I told her that I couldn't right now because of all my other health issues so she's going to reexamine them in 6 months. Naturally my prescription changed and I had to get new glasses. Thank Heaven for WalMart. LOL

magistramarla
02-19-2011, 11:32 PM
Mari,
I'm glad that you got that baseline exam. It is important that we keep track of this. My ophthalmologist here in Ca is a keeper. He's more knowledgeable about Sjogren's than my rheumy. I also needed a change of lenses, but like Nonna, I had them put the new lenses in my old frames. I've had those frames for three or four years, but I really like them and I've taken good care of them.
I priced the new lenses at three places. It was amazing how much the first two places wanted to charge. We then stopped past the optical shop at the BX on base. I was able to get them for $82!!!! I'm wearing my old, old glasses right now. The new ones will be in next week. I thank goodness for the military!
Hugs,
Marla

Nonna
02-19-2011, 11:48 PM
Yes bless the BX, I remember them from my time as a navy wife

bless all those who serve also

SandyR
03-01-2011, 11:16 AM
I have to change my glasses also...I think that the more we wear glasses, the more we NEED them!! Uggh!! Maybe there is a universal conspiracy between the lens makers, the frame manufacturer and ophthalmologists to put something in our glasses that helps us for a year or two, but then damages our eyes so that we have to come back for new glasses every 2 yrs (lol). That is my conspiracy theory for the week :-)

This is definitely a fact. I've had many an opthamologist say so. I used to have to go to extensive eye therapy as a young child with a visit to the eye hospital once a week and patching and such. Tramatic to say the least. I had perfect vision in the eye that wasn't patched but over the years that eye got dependant on using a lense - needed for the other eye. The good eye got weaker as the lazy eye got stronger. All of the doctors have said if I had been born with 2 good eyes this wouldn't have happened and I wouldn't have needed glasses until I got readers but my good eye got used to using a crutch and now I have two bad eyes.

froggal
03-01-2011, 11:28 AM
Thanks for posting this Mari. I had NO idea that I should be getting my eyes checked! I will put it on the list of things to do when I get out of the hospital!!

Nonna
05-04-2011, 07:40 PM
Had some bad news today, my vision sensitivity is detriorating. My next stop is a retina specialist. I just hope they let me continue with the metho. I have been feeling no pain and only had fatigue a little bit. I'm sleeping better; dang all this good and my eyes go bad.

Pray for me

tgal
05-05-2011, 08:39 AM
Oh Nonna I hope it goes well! I will keep my fingers crossed for you!

red246
05-05-2011, 09:52 AM
Nonna - Sorry for the bad news, will keep you in my prayers! ((HUGS))

Gizmo
05-19-2011, 02:19 PM
I have been on Plaquinil for 12 years and now have some mild changes to my retina and the retina specialist isn't sure if it is macular degeneration or plaquinil. The opthamologist and rheumy both say that eye damage is time related - so people are more likely to develop problems the longer they are on Plaquinil. Ten years is about the time it really shows up. So far they have just cut my dose in half. I'd like to go off of it, but I am in a lupus drug study and you can't change your baseline meds during the study or it messes up the results.

Did y'all know that it can make your skin turn black or blue? I have blue streaks on both forearms and calves and under my toenails. The roof of my mouth is black and blue. Kind of freaked my dentist out when she saw it. I was the one who figured out where it came from.

tgal
05-19-2011, 02:38 PM
Thanks for the info~