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magistramarla
02-05-2011, 10:42 PM
Hi to all,
We had a great trip to San Francisco this weekend. The weather here in Northern California was perfect. The air conditioner in the car even kicked in today!
We drove up yesterday (Friday) and I got my Botox shot in the vocal cords in the morning. He may have hit "the sweet spot". because so far, I haven't lost my voice or gotten breathy, as often happens for about a week after the shot.
We had lunch in Japantown (Soba noodles and broth is great on a sore throat) and then drove to the other hospital for Jeff's appointment. He had his six week check up from his surgery and got the stitches taken out.
Then, we played. We visited the Haight-Ashbury neighborhood, which was the home of the hippie and flower-power movement in the '60s. The shops on Haight St. are a hoot - tie dye everywhere!
We ate dinner at our favorite Italian place and then curled up for a romantic evening at our favorite SF motel.
On the way home this morning, we stopped at the Ikea store, since we had never been in one. It's a giant Swedish warehouse store. We looked around, bought some lingonberry preserves, and ate Swedish meatballs for lunch. We also made a stop at our favorite bookstore in Gilroy (about halfway home) and I stocked up on reading material.
It's good to be home. Jeff has jumped right back into his homework and studying.
I'll be seeing my rheumy this Thursday - stay tuned - it should be an interesting report.
Hugs to all,
Marla

rob
02-05-2011, 11:21 PM
Glad to hear that you and Jeff had a good visit, and that all went well with both of your appointments. Last time I was in the Haight-Ashbury District it was like stepping back in time. There were these two guys in bell-bottoms outside of one of the shops doing something that looked like cooking a pair of pants in boiling water. They were taking Levi's and fading them to almost white so they could then make tie dyed bluejeans out of them. Walking past some of the shops you could hear music playing-Jefferson Airplane, The Doors...

I do miss the bay area. It's good to have you back!

Rob

Nonna
02-06-2011, 04:34 AM
So glad it was a good trip, like Rob, I miss SF. It was great living there; only made it down to monteray (sp) once.

Glad also for you that he hit the sweetspot.
Hugs
Toni

Angel Oliver
02-06-2011, 07:11 AM
Glad you had a fab trip Marla and enjoyed yourself.

Love
Amanda.xxx

tgal
02-06-2011, 07:57 AM
Glad you had a wonderful trip! Wish I could have gone

mountaindreamer
02-06-2011, 03:52 PM
wow, marla,

you tell a story in such detail that i could see the sights, smell the smells, and taste the food. yum, yum...

so glad that you had a wonderful trip, and sounds like your botox injection went well too, that is icing on the cake...enjoy your new reading materials.

BonusMom
02-06-2011, 11:29 PM
Happy to hear that you had a successful trip to SF, Marla, and you were able to...ahem....play.

I'll be making the trek on Weds. morning and staying through Thursday afternoon. I'll be having the two year follow-up at the UCSF SICCA Study and the next day a visit with my rheumy and motility specialist.

Some warm sourdough bread is definitely on the menu Weds night with some Ghiradelli chocolate (Superman won't be with me so I don't have to have a proper meal-it can be a PMS delight).

I understand the my half-sister, who I met when I was 22 and she 17, lives in SF. I thought about calling her to see if she'd like to have coffee, but with a fat lip from the biopsy, don't know how talkative I'm going to be. Plus, I'll be getting up at 4:00 a.m. to make the drive (normally 3 hours, but I'm going to hit rush hour traffic) so I may be pretty tired.

I wish you good luck with your rheumy appt this next week. Enjoy all of oyur new reading material.

magistramarla
02-08-2011, 10:37 PM
Hey BonusMom,
I hope that you have a good trip. I didn't think that the lip biopsy was bad at all. It hurt for a while, but I was able to eat at that wonderful Italian restaurant that we like so much that evening.
How many foci did your first one show? Mine was 1, which I found out online was positive for Sjogren's. I have the letter telling me about it, but my rheumy wasn't interested in discussing it.
Let me know what you find out this time.
Hugs,
Marla

BonusMom
02-08-2011, 11:07 PM
My first one was .7. I'm interested to see what tomorrow's will reveal. Update at 11:00!

SandyR
02-09-2011, 07:36 AM
so glad to hear that you and Jeff had a good time in SF. That is definitely on my Places To Get to List. Ikea is on the Places I've Already Been list. We have one around the corner from me. You could get lost in that store very easily. Next time you go try the cinnamon bun. mmmmmmm...good...

BonusMom
02-09-2011, 10:51 AM
Hey Marla-
Just curious, did you meet the SICCA Study's criteria for Primary Sjogren's Syndrome? I didn't and Dr. Wu suspected at the time of the exam that I had secondary Sjogren's. Smart woman.

magistramarla
02-09-2011, 03:04 PM
I re-checked my paperwork. My foci number was 1.2. Everything else was normal, but I was on all of my meds, including Restasis.
I've only had one lab result where the SSA and SSB was positive. My body almost always works against me!
I think that before my re-check, I'll go off of my meds for a couple of months.

I think that it was obvious going in that I have several overlapping AI issues, so my Sjogren's is definitely secondary.

How did your appointments go? I can't wait to hear your re-check results.
Hugs,
Marla

BonusMom
02-10-2011, 05:22 AM
Didn't mean to hi-jack your thread, M.

Everything went well. My mouth tested the same. Eyes are drier, which I suspected, but still aren't horrible compared to others. My lip biopsy won't be back for a few weeks, along with my lab results. Previosly, my SS-B was really high. I've never tested positive for SS-A. Oh, and my lip biopsy was even less invasive than the first (I didn't think that was possible).

I see the motility specialist in a few hours, after Dr C. They are evaluating me for the gastric pacemaker. I am not ready for that (emotionally) at this point. My GP flares, just like AI disease and I don't think surgical intervention is the solution for something that causes me problems only intermittently.

Yesterday (Wednesday) was one of the most beautiful days I've ever seen in San Francisco. The skies were crystal clear and I could clearly see Alcatraz and the Golden Gate Bridge as I rounded Highway 80, preparing to enter the Bay Bridge. Yes, I rolled my windows down as I crossed the bridge, blaring the tunes of AC/DC. Ah, nothing like a road trip, even if it is to the doctor, to energize the soul and clear the head.

Of note, my GPS took me through the Castro District, an unfamiliar route-lots of rainbows and beautiful architecture-leading me to UCSF. So pretty. We'll see where the GPS takes me today..

magistramarla
02-11-2011, 01:08 PM
Hi BonusMom,
Yes, San Francisco was absolutely beautiful last weekend, too. Jeff's doc is on a top floor of one of the buildings on the hill on Parnassus St. His waiting room has a breathtaking view of the Golden Gate Bridge. I really love San Francisco. Returning to Texas will be very, very difficult.
How did your appointment with Dr. C go? I'm going to call her office and try to get an appointment.
Hugs,
Marla

Nonna
02-11-2011, 03:28 PM
you guys make me miss SF, my favorite view was looking down the hill from the top of Hyde Street on the cable car. Can't remember what the cross street that the cable car was on. View was fantastic in both directions.