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debbie-b
02-03-2011, 06:02 AM
As many of you know, I started taking MTX in pill form about four weeks ago.
Week one I took them and the side effects where not too bad, but week two just about killed me with nausea 24/7. Then week three I went to MTX shots and tolerated it pretty well, but my rheumy wanted me to get my blood checked. After the second pill dose, my liver enzimes where pretty high, then we went to the shot, which was a lower dose, because he wanted to see if the liver enzimes would either go down or at least stay the same. Five days after the shot, I had another blood test and the enzimes have trippeled. The rheumy called me monday night to tell me stop everything, we have to find out what is causing your liver enzimes to rise, he said it is unlikely the MTX, because he has lowered the dose.
I couldn't talk to him yesterday, his office was closed, because of the snow storm.

My question now is, since Lupus can be blamed for attacking organs, like kidneys and heart, can it also attack the liver? Does anybody else have liver problems?

Debbie

tgal
02-03-2011, 06:08 AM
Hey Debbie,

Sorry you are having a hard time. There is a very interesting page on Lupus and the Liver at Lupusk.org. . I am pasting a piece of the page but the link to the full page is below. Hope this helps

Lupus and the Liver

Daniel J. Wallace, MD, Associate Clinical Professor of Medicine, UCLA School of Medicine.

Involvement of the liver in SLE is a frequently misunderstood complication of the disease. The liver can be affected as a result of lupus itself, as well as the medications used to treat inflammation caused by lupus. There is also a specific inflammatory disease of the liver related to SLE, sometimes known as lupoid hepatitis. This article attempts to reconcile our differing perceptions of what "lupus in the liver" really means.

Lupus can affect the liver in numerous ways that are delineated below:


http://www.lupusuk.org.uk/latest-news/from-the-national-magazine/65-lupus-and-the-liver

debbie-b
02-03-2011, 06:44 AM
Thank you very much, I will read it right now.
I am worried about my liver, but also what it would mean for any medication, right now my rheumy stopped everything.

Debbie

debbie-b
02-03-2011, 06:51 AM
Oh wow, I have read it, that is some scary stuff.

Debbie

SandyR
02-03-2011, 08:37 AM
Debbie,

The one good thing is you seem to have a doctor who is very hands on with your health management. Thank God he was looking immediately for affects on your liver and not 3 or 6 months down the road.

Sandy

debbie-b
02-03-2011, 09:24 AM
Sandy,

That is very true. He is on top of things, that is for sure.
I am still waiting for his phone call now, to see what we will do.

Debbie

tgal
02-03-2011, 09:56 AM
I agree with Sandy. I debated posting it because it is a bit scary but since you had a doctor that was really paying attention I went ahead and posted it for informational use. We, as patients, have to know these things because many of our doctors are not as "on top of things" as yours.

magistramarla
02-03-2011, 09:24 PM
Debbie,
I am so sorry that you are having those problems. You are very lucky that your rheumy is on top of this. Hopefully, it will get resolved soon. I wonder if he could refer you to a teaching hospital if this is something that he's not used to dealing with?
I read Mari's link, and I've read such articles before. That's why I'm so worried at my current rheumy only seeing me twice a year while I'm on MTX. She didn't even order any lab work when I saw her in Oct.
I'll see her next week, and it will be really interesting to hear if she expects me to have lab work, since she's the one who forgot it.
After this appointment, I'm calling the Sjogren's expert in San Francisco. I'm worried that this doc has really dropped the ball on my health care.
Keep me informed on what happens with your problem.
Hugs,
Marla

Hunniebun
02-03-2011, 11:03 PM
Please let us know when you get more information. Thinking about you.

debbie-b
02-04-2011, 05:00 AM
Of course, I have not heard from my rheumy yet. It drives me crazy, when they take their time, while we sit and wait for an answer. How can they not consider, that we are scared and need to find out what is going on.
I have called the office twice yesterday and than had to go to work at 2pm, but there was no message when I came home.
I will call at 8:30am and be a little more forceful ( I can do that), I am ticked off.
Right now, I am NOT on ANY meds. What the heck? I am in pain. I wish somebody was in the office right now, I would let them have it.

Debbie

debbie-b
02-04-2011, 05:02 AM
Debbie,
I am so sorry that you are having those problems. You are very lucky that your rheumy is on top of this. Hopefully, it will get resolved soon. I wonder if he could refer you to a teaching hospital if this is something that he's not used to dealing with?
I read Mari's link, and I've read such articles before. That's why I'm so worried at my current rheumy only seeing me twice a year while I'm on MTX. She didn't even order any lab work when I saw her in Oct.
I'll see her next week, and it will be really interesting to hear if she expects me to have lab work, since she's the one who forgot it.
After this appointment, I'm calling the Sjogren's expert in San Francisco. I'm worried that this doc has really dropped the ball on my health care.
Keep me informed on what happens with your problem.
Hugs,
Marla

Marla,

I would tell her, that you want a bloodtest. Twice a year is not enough, because MTX is some harsh stuff.

Debbie

SandyR
02-04-2011, 08:08 AM
Marla,

I would bring in some articles with the important points highlighted and tell her she should be giving you the blood tests and you would like a script.

magistramarla
02-05-2011, 09:36 PM
Thanks, ladies
Actually, I've lost confidence in her and I want to go to the specialist in SF. I met her at the Sjogren's Conference, where she was a speaker. BonusMom drives a distance to see her and says that she is worth it. Jeff and I both have to go up there for our various specialists, so this will just make one more.
I've tried pointing out info in articles to my current rheumy. She told me that I "read too much, and should stop worrying". She's not worth my time.
Hugs,
Marla

debbie-b
02-06-2011, 06:39 AM
Thanks, ladies
Actually, I've lost confidence in her and I want to go to the specialist in SF. I met her at the Sjogren's Conference, where she was a speaker. BonusMom drives a distance to see her and says that she is worth it. Jeff and I both have to go up there for our various specialists, so this will just make one more.
I've tried pointing out info in articles to my current rheumy. She told me that I "read too much, and should stop worrying". She's not worth my time.
Hugs,
Marla

Well its easy for her to say, it's not her liver. I hope you can find a good one.
Whenever they say, " you read to much" they are afraid that we might know more than they do. Which some of us already do.

Debbie

tgal
02-06-2011, 07:50 AM
Great post debbie! I agree about the "you read too much" comment! It simply means you are more educated then they are!