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Neicee99
11-07-2005, 09:00 AM
HI Everyone,
I am feeling yucky today!!! :( I don't mean to complain because we all go through this. I was DX with polychondritis origianlly and then lupus. Is a lupus flare when you feel like your head is woozy (not a headache), nausea, no energy, noises hurt my ears, no appetite? How long do they usually last?

I hate to complain but I really need some advice.
Hugs
Denise (NH)

hatlady
11-07-2005, 02:58 PM
Hugs sweety!

I can't tell you how long they last, because for me it varies. Some days I get that way for an hour. Some days are....all day or days...

The bit with your "woozy" feeling - I'd call that brain fog. When I get that way I describe it as my brain being wrapped in cotton - and everything has to get through the fuzz - input and output. My fingers work better than my mouth - god forbid i have to do any major talking! Sometimes a bit of light headedness goes with it too.

Oh, noise has hurt my ears for years - all they way back to high school! I'm not sure if that's the lupus or "just me." It could be, though, that you're on the edge of a migraine - try to put your feet up and have a cup of tea or warm milk if you can. And try to get some rest, dear, sometimes that is all that helps. If it continues, though, call your rheumy.

And hug that pretty puppy! That has to be a help - our "fur-kin" seem to understand best when we're down and can comfort us better than anyone or anything.

TracyDawn
11-08-2005, 10:52 AM
{{{HUG}}} as Hatlady said, it does vary with all of us. I hope you feel better. I get nauseated a LOT and have a phenergan presc. for it now. The fog is no better, no matter what I do. It just comes and goes. Sounds like you need to lay down and rest for a while. That is the only thing that helps me when it gets really bad.
BTW what meds are you on?

Neicee99
11-09-2005, 08:46 AM
Thanks tracy and hatlady,
I appreciate your input. I am currently on Arava ( a chemo medication for my rare disease of relapsing polychondritis) dayPro and synthroid for my thyroid. I have a problem with my rheumy ( a world known specialist-the GO TO guy for polychondritis). He doesn't feel I have LUpus and 3 other doctors do so for me to be treated for Lupus, I would have to go elsewhere for that but still see him for RP. My lupus tests come back positive but he says that the two diseases are mixed anyway and both would be treated the same. I don't think so. The more I read, the more I realize thta I need to see another rheumy who specializes in Lupus. doctors can be so frustrating. He has helped me with the RP.
Hugs