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View Full Version : First appt with Gastro today...Crohn's?



Mommyof1
12-01-2010, 03:24 PM
So I saw a GI specialist today for the first time. I described my symptoms and at first he said that it sounded like IBS. Then when I mentioned the mouth ulcers I was getting before the pregnancy he realized my rheumatologist must have wanted to order the scope testing to test for Crohn's. So, I get to go friday for both the Endoscopy & Colonoscopy...get to start my gallon drink & liquid diet tomorrow...joy...anyway, I wanted to tell you all my symptoms and see what you think it may sound like:

-Mouth Ulcers(in multiples, 3-5 at a time that can occur anywhere in the mouth and throat, it would seem like 1 group would be going away and then Id get a new group starting in my mouth in a different spot(s))

-Nausea(Currently have GERD & I cant drink milk without wanting to get sick)

-Abdominal Pain/Discomfort(cramping & sharp stabbing like pains sometimes at night that aren't relieved by eating etc. & accompanied with nausea)

-Bloating(pain occurs with this symptom; mostly sharp pains and again more nausea)

-Urgency(sometimes when the urge to go to the bathroom comes on its not long after that that I go and then sometimes ill have the abdominal pain/bloating for hours before I go..or ill have it and then it goes away and ill go to the bathroom later.)

-Change in Stools(most of the time I have problems with constipation & change in diet does not help this. Then at times the stools are looser but not necessarily diarrhea, although ive had 1 or 2 bouts of it since the symptoms started.)

-Bleeding(Ive not seen any mucus or blood in any stools but have seen it on the paper after a bowel movement)

-Relief/Non-Relief after Defecation(sometimes if I have the urgency and I use the bathroom I feel relieved as far as the stomach cramping, etc but the nausea and the urgency stay for a little while & eventually calm down)

My other AI symptoms that could be related to Crohns that I know of from reading are as follows(this doesn't include all of my AI symptoms however which is why they suspect lupus im guessing):

-Lower backache(occurs with the stomach cramping at times)
-Arthritis in multiple joints
-trouble keeping a steady weight when flaring(I lost a good 8/9lbs before i started any meds for my AI disease back in 08 & at that time being 5'2 I only weighed 110 so I dropped to 101, also cannot gain weight..even during both pregnancies i only gained 13lbs the first time even being on bedrest for 6 weeks & having a preemie at 34 weeks & 18lbs the 2nd time with a fullterm baby at 39 weeks)
-general malaise, aching & clamminess w/abdominal pain etc.

Anyone have these symptoms and have Crohn's?

The GI also said that I have staining on the insides of my teeth which is usually caused by frequent vomiting, well I dont throw up at all really so Im not sure why I would have that unless it could be from the GERD??...not sure what to think of that symptom.

Any info or stories are welcome! Thanks. Hope you are all well. -Lupie Britt

tgal
12-01-2010, 04:11 PM
Keep us posted on how it goes. I will keep my fingers crossed that they figure out exactly what is going on

SandyR
12-02-2010, 07:50 AM
Unfortunately, Crohn's & IBS are close cousins of each other and from the outside one can look like the other. They both (along with Colitis) share many symptoms and without that colonoscopy it's diagnostically difficult to say which it is. Your doctor may want a stool sample to look for blood in your fecal matter (generally seen with IBD and not IBS). Crohn's & Colitis (also known as IBDs - Irrated Bowel Diseases) have more complications associated with them than IBS and the symptoms include weight loss, arthritis and eye irritation. IBS is also different in that the instestines look structurally intact and compitent but functionally there is a problem. IBS is also called Spastic Colon and the cramps from IBS usually go away once the patient passes their stools. IBD has a link to Colon Cancer and IBD patients should be screened for colon cancer with a colonoscopy at least every 5 years. While you are having the colonoscopy (which I always do with sedation) your doctor might see some tissue he wants sampled and do a biopsy. If you are sleeping during the procedure, you likely won't remember anything or feel like there even was a procedure when you awake. IBS and IBD are also treated differently. IBS is treated with anti-diarrheals and IBD is treated with anti-inflamatories.
It is possible that your doctor may not see physical signs of disease and diagnose you with IBS even if you are showing IBD symptoms. This is what has happened with me and every time I have a really bad flare I have to go back to the gastro and start all over again to see if there are now signs of IBD. It's also likely with another AI issue that IBD would be the diagnosis your doctor is looking to confirm. Either way, you should do some research and be made well aware of the difference between the two because (in my experience) your gastro won't be thinking about the rest of your AI issues when he's working on your diagnosis.
As to the milk - I've found that there is a high link between people who have IBS or IBD and who are also lactose intolerant. When I was first diagnosed with IBD I was also diagnosed as Lactose Intolerant. Your doctor might put you on a lactose free 2 week diet. I know that for me the answer was really clear as to the results when I did consume milk products again. I've also been told by that doctor that, from an evolutionary perspective, we as mammals are abnormal from the rest of the mammals in the animal kingdom in that we do not wean our young off milk after breast feeding and that most other mammals are also lactose intolerant after they wean.
Sorry this is so long and I hope it helps. Good luck and let us know what the doc says!

tgal
12-02-2010, 09:49 AM
Thanks for all of the info Sandy!

Mommyof1
12-02-2010, 01:50 PM
Yes thank you! I have looked at some info already on IBD, the types, symptoms, treatments, etc but I want to look further. I did have a question about the stools themselves, I know there can be mucus in the stools but what exactly is that gonna look like? Being graphical doesn't bother me, but would it literally look like a string/strand of mucus or what? I know about IBS as well because my mom and aunt both have it...however they dont have any of the AI problems I do. So well see what the tests show. Wish me luck tomorrow! -Lupie Britt

SandyR
12-02-2010, 02:15 PM
Yes thank you! I have looked at some info already on IBD, the types, symptoms, treatments, etc but I want to look further. I did have a question about the stools themselves, I know there can be mucus in the stools but what exactly is that gonna look like? Being graphical doesn't bother me, but would it literally look like a string/strand of mucus or what? I know about IBS as well because my mom and aunt both have it...however they dont have any of the AI problems I do. So well see what the tests show. Wish me luck tomorrow! -Lupie Britt

It doesn't always look the same. I know that's not the answer you are looking for, but it's different each time and it isn't even always there. The best way I can describe it, it looks like discharge but it your stool. Good luck!