View Full Version : Not doing too good

11-24-2010, 10:17 PM
The last couple of days have been on a down slope again, but of course everyday is a struggle. What makes this all worse for me I guess is my weight. I'm 365 pounds and with whats going on with me makes it that much harder. For the last several months almost everytime I stand up and start walking I get all this pressure in my head and feels like my head is going to explode and after 30 sec's or so it starts to disappear but then my body feels so lethargic like I'm being pulled down to the ground. I've told the doctors this but they don't seem to really wanna try and figure it out. To me it almost feels like I'm not getting good blood circulation up into my head, its gotten to the point when I feel the pressure build up my head kinda hurts, but that pain goes away with the pressure feeling.

I'm always kinda dizzy/lightheaded and feel as if I'm in a dream. I've been having anxiety attacks more lately and getting more depressed, yelling at God and asking him what the hell does he want from me? I suffer every damn day for the last 3 years and I can't take it anymore.

I also have a severe reverse curve of my cervical spine and mentioned to the docs about checking the blood flow etc, but yet again they don't wanna follow up on it.

Maybe my body is just completely inflamed and its making the blood flow harder to get around my body, especially with my weight?

I feel like I'm dying and doctors don't wanna help... They do blood work and I have to wait a fricken week before I get answers? sigh...

11-24-2010, 11:18 PM
Hey Sefauna,

Sorry things are so tough for you right now. I know it's hard, but stay strong, sweetie.

Hugs, Hannah

11-25-2010, 06:54 AM
hi sefauna,

i am so sorry to hear of your headaches,,,,,they are so very painful. so many of us go for MRI's, we see specialists, etc., and all we get is "it must be your lupus." this adds frustration to our pain and fears. Please try to rest, be kind to yourself, and hang in there.

a wonderfully knowledgeable member, Oluwa, told me about wrapping a long scarf around my head....i was surprised, it truly helped with the headache. You might want to try it and see if it helps you too.

hope you get to enjoy this day of family, friends, and food....

11-25-2010, 07:54 AM
I am so sorry about what you are going through. I understand the light headed feeling and the pain/pressure in the head. I also know what it is like to have to live in limbo and have no clue what is going on with you. The stress you are living under right now is difficult but try to hang on. I can't tell you that it will all get fixed but what I can tell you is that you will learn to cope with it better and it won't always be as bad as it is right now. The doctors will find a treatment plan that makes things better but it just takes awhile. Until then just remember that we are here for you whenever you need to vent. You are part of our family now

11-25-2010, 03:05 PM
dear sefauna i am sorry what you are going through with the headaches and fatigue i am a big person so i know how hard all of this and those issues to are hang in there and hopefully you will feel better soon love and hugs kim l