View Full Version : Medications for treating Lupus/SLE

10-02-2010, 06:04 PM
My main concern is when i saw the sister at the hospital last month about my results and the best things to get to keep warm, she mentioned that when i see the specialist in November he'll want to start me on medication to help.

My main concern is are the medication's they give you, all steroid based?? because i've had steroids in the past and they blow you up to carrying some weight and this i don't need in my life.

Hugs Terri x

10-03-2010, 03:04 AM
Actually, one of the most effective drugs for treating SLE is not steroid based. Plaquenil is an anti-malarial and does not have anywhere near the bad side effects of steroids like prednisone. I take Plaquenil as well as the NSAID Naproxen for inflammation. They both work pretty well for me.


10-03-2010, 04:42 AM
Hi Rob,
Thanks for welcoming me as a friend mate plus letting me know about the mediction.
My skin specialist who treats me for my skin wanted to put me on prednisone as he said it was the strongest medication till i saw the Raynauds specialist but when he looked my other tablets up for counter reacting i could'nt have it with my tegretol as it would make me fit more and when i got home i looked it up finding it was a steroid so that was one lucky escape, as i dow want steroids mate as they've done to much damage in the past, leaving my right side of my head brain damaged with other meds.
So the drug you've mentioned which is'nt a steroid i'll write down for when i see the specialist, as the sister said he will most likely start me on meds when i see him.

Terri x

10-03-2010, 07:55 AM
Hi Terri,

The Plaquenil is probably the most prescribed drug for managing Lupus, and you'll need a prescription for it, but the Naproxen is a common over the counter anti-inflammatory sold here in the states under the name brand Aleve. I would imagine it's available in the UK OTC too, but maybe under a different brand name. You could start on Naproxen right away as long as it doesn't react with any other meds you are already on. Just don't take it on an empty stomach! Ouch-stomach ache.


10-03-2010, 09:05 AM
Hi Rob,
They're funny over here about letting you have certain drugs from the counter, pure madness mate.
This is why i asked about the drugs because i take that much already for the epilepsey, depression, nerves they can't afford to mess up, they've just put me on Asprin the sugar coated ones to try and stop any more clotting and the words was have it of a morning with food.
Rob i can't face breakfast mate, so it goes down with the rest of my tablet's of a morning with a yacult.lol and all i have otherwise is 12 jaffa's and my tea, i'm not a massive eater.

Cheers for letting me know Terri x