View Full Version : How often do you... sorry if this is TMI

09-23-2010, 11:03 AM
Visit the toilet in the mornings? Or any other choice time of day..
I do #2 probably (without Immodium) 4 to 6 times! I'm not kidding. I have to take 3 Immodium for it to even work. I know I take a Magnesium supplement, but dang. Even when I'm not in the bathroom it seems like I could still go in there and go. Like my intestines and colon or just colon is spasming!!
This has been happening for a few months now. Maybe longer. I go through it EVERY day. Thank goodness I don't work. I remember working and having to CONSTANTLY get up to go though. So maybe it's been going on longer than I'd like to realize.
Should I tell my doc and get medicine?

09-23-2010, 11:55 AM
you can tell the dr. three years ago i got so bad it was all liquid no matter what i drank or ate was out in 15mins. i went to gastro dr. he is the one that found out i had lupus. there was nothing wrong he went up down at least three times fianlly decided it was lupus and was making my intestines inflamed where the food would just come out like ibs. it fianlly stopped after six months. it made me loose a lot of weight which i needed to. but than it slowed down after six months. now i take pain meds three times a day an i am still going four to six times a day depending what i eat. sometiems looser than others everyday its different. i would wait until it affects your weight befor going to a dr. unless you have other symtoms like blood stool, i would wait it out. immodium when i have to take it was up to four pills in morning than it would stop until the next day. the dr's might have something stronger in rx form for you.

09-23-2010, 01:56 PM
OMG! I am so glad someone asked that! I have that same problem! Mine has been liquid for 3 years (yes, TMI I know) and no one seems concerned. I go at least 5 times a day and I can no longer eat in a car because I will have to RUN to the restroom within 10 min of eating. I thought this was just a nervous stomach thing since the doctors have not been concerned.

Thanks for starting this thread!

09-23-2010, 02:58 PM
So glad to know I'm not alone! lol The only thing my doctors ever told me was to increase the fiber in my diet! The only time I'm anywhere near "normal" is right before my cycle. I've always had a "wierd" stomach, but since getting sick it has only gotten worse. Now it seems that my youngest is following in my foots steps w/his stomach. :(

09-23-2010, 10:25 PM
Yeah, you will learn that nothing grosses me out and I am not ashamed to ask the gross stuff. Here's how I see it. Compared to ALLLLL of our painful, annoying, and uncomfortable symptoms, sometimes this symptom goes on the list of "things I can live with for now" and we let it get worse and worse. I'm most definitely going to ask when I go back on the 30th. Now, it's getting to the point where I spend most of my morning reading a magazine and sitting on the throne. I'm sorry, but that's not normal and it's no way for me to keep living. My weight is going down. Though I like it.. I know I shouldn't be going to the bathroom this much. I'm glad yall understand! I'm just scared asking him about my BM's is going to get me a colonoscopy. I DO NOT want to do that. I don't even care about the ACTUAL colonoscopy, I just couldn't drink that stuff and sit on the toilet all night long. Well... now that I type it out it has me thinking.. How long would I actually have to sit there if everything I eat comes out within a few minutes of consumption?? Hmm.. I thought that the stool sample I had to do at Mayo was humiliating. More the fact that you had to put the container in a brown bag and then after you go you had to get back to the main building and put it in a BROWN cart within 30mins. So, envision this, all day I would see people with these bags (if you haven't been to Mayo Clinic in MN .. the buildings are connected in a subway/underground area with like a food court and other shops in between) rushing to the poop building. If you saw the bag, you knew what was in it or going to be in it. The worst part.... seeing the bags in the FOOD COURT! I know they were probably still empty but *GAG*!! Hopefully if I tell my Rheumy about my issue he won't ask me for a sample. haha.

09-24-2010, 07:52 AM
Oh blue! Okay, first of all, you don't have to drink all that crap anymore! They have other things you can take, ask about it. I have had 2 colonoscopys done. The first one I was in my early 20's. I tried to drink that crap - couldn't get it down. That was back when you had to drink it - guess what? I wish I could have drank it! I got there the next morning and the alternative was WAY worse - water enemas - NOTHING is worse than that, especially at that age!
2nd one I took a few pills and mixed something in with something else to drink (wasn't too horrible, not too great, but not as bad as the other stuff). I survived. It wasn't great, but it wasn't too horrible either. If you have to have one done, ask about the alternative preps. ((HUGS))

09-24-2010, 10:57 AM
When i was going thru it like you i drank the stuff by lunch time was done since i couldn't even keep water down at that time i didn't even drink a third of the gallon containor it comes in flavors now so not too bad. my gi dr said not to eat any white foods or anything that had sugar i did it form a month and it slow down. he also said going five times in a day was not abnormal. but if you loose weight or have blood in it than its a problem. my total weight loss was 25lbs. which i needed but since than with all the other meds i have to take like steroinds i am right back at the same weight. i am very carefull what i eat out and don't eat far from home just in case can't make it to bathroom. when i eat out stay away from all ruffage food. i am glad not to be alone but this is really a nasty subject. lol before i was dignose with lupus this would happen a lot and the gi dr than said it was ibs. but no meds ever worked for that. i even had a pill to put under the tongue for the cramping i would get when it was real bad it knocked me out. good luck next week. xoxo

09-24-2010, 11:35 AM
I go about 2-3 times a day and pretty much every day I have some sort of diarrhea. I am always very tense, very stressed and anxious so I know that's part of my problem, and also the fact of never really feeling well daily to begin with thanks to this lovely disease.

09-27-2010, 08:50 PM
Plaquinil gives me the trots. When I first started on it and was ramping up the dose, I was still teaching. Imagine the embarrassment of having "it" hit while writing on the whiteboard in front of a classroom full of teens! I soon discovered that I can't handle more than one 200 mg pill per day!

09-27-2010, 08:59 PM
Thanks yall I will talk with my doc about it. Marla, I cannot imagine that!! "The trots" hahaha... I say that too! ((hugs))

09-27-2010, 10:36 PM
Maybe your doc can do you something like a Bentyl (spelling??) that slows down your intestines. I just have to be careful with it, since I'll swing the other way much too easily (pain meds are *bad* for that)...

11-26-2010, 10:17 PM
ok weird but i have been too. i had my gallbladder out last year in february and i thought it was just due to that. i have recently started taking a baby aspirin a day due to the lupus anticoagulant antibody and my symptoms have resolved. i don't know if it was a coincidence or not but i am so relieved.....and try being in the middle of a CPR on a really bad accident scene and having to hold it while you're sweating bullets trying not to fill up your pants! how embarrassing!!!!!

11-27-2010, 05:41 AM
One of my docs calls it irratible bowel syndrome. Every morning about 8:30 I just sit the and get cleaned out.

I know TMI but it's great to know you're not alone in this


11-27-2010, 09:59 AM
I got on Bentyl and it worked for awhile but I would go straight through it. Now I take Lomotil (sp?) and it really works, but you cannot miss a dose. Right now I'm learning that b/c I forgot to take it this morning. YUCK.

11-27-2010, 07:51 PM
Have any of your doctors mentioned Irritable bowel Syndrome to you ladies? Do any of you have Fibromyalgia?? IBS is a symptom of FM and has gone undiagnosed for many of us for many, many years.
The symptoms can be diarrhea, constipation or a combination of both. Also, the symptoms can include abdominal pain and spasms.
It might be beneficial for you to ask your doctors about this possibility so that you can be treated for it, rather than having to drink the horrid liquids or take the nauseating pills.

Peace and Blessings

11-28-2010, 05:55 AM
Thanks Susie, didn't know how to spell it. Brain fog always that's over in these cases. I did not know it was also related to fibromy.......

Hugs nonna

11-28-2010, 09:19 AM
Hi Susie,

I have Fibro but no one has ever been concerned about my bowel issues. Those have been going on for years. When I finally get to go back to the doctor I will ask about that. Thanks!

11-28-2010, 02:44 PM
I find it incredulous that doctors will diagnose a condition but not give you all of the information about that condition. Grrrrrrr. At any rate, here is some information concerning FM and IBS so that you will be well informed when you speak to your doctors;

"Anywhere between 30% and 70% of fibromyalgia sufferers will have to battle with this IBS. In fact, more and more research indicates that the causes of fibromyalgia and IBS are similar, and perhaps even identical. IBS is a condition that affects the large intestine, commonly called the bowel. It is characterized by an extreme sensitivity to muscle contractions in the large intestine, which can cause symptoms including diarrhea and constipation. Like fibromyalgia, IBS is classified as a functional disorder because there is no clear structural or chemical cause for the condition. People with both fibromyalgia and IBS tend to suffer from more severe symptoms than those with only one of the syndromes. If you have IBS and fibromyalgia symptoms, it is important that you find a treatment that can address both syndromes.

Like fibromyalgia, IBS tends to occur after a particularly traumatic or stressful life event. IBS may begin after an illness, a move, or beginning a new job. Much like fibromyalgia, stress is one of the larger causes or irritable bowel syndrome symptoms. Stress exacerbates contractions, diarrhea, constipation, and flatulence. Other triggers include specific foods, especially chocolate, milk products, and alcohol, certain smells, and certain medications.

Allso, like FM, IBS syndrome may be caused by a problem with neurotransmitters in the brain. Similar to fibromyalgia, IBS is often thought of as an illness caused by psychological reasons, such as stress. However, new studies show that psychological factors may not be the only ones at play in causing the illness or FM.

For people suffering from both fibromyalgia and IBS, it is important to understand how the two illnesses can impact upon each other. As many as 70% of fibromyalgia sufferers have IBS; similarly, 1 in 5 IBS sufferers have fibromyalgia. Dealing with both illnesses at the same time can be very difficult because the symptoms tend to be much more severe.
Recent studies have shown that people who have both IBS and fibromyalgia suffer from symptoms that are 38% more severe than those who only have one illness. IBS tends to exacerbate fibromyalgia pain and fatigue (http://forum.wehavelupus.com/fibromyalgia_fatigue.html), while fibromyalgia tends to increase the severity and frequency of IBS symptoms. Studies also show that people with both illnesses tend to have a worse quality of life (http://forum.wehavelupus.com/) than those with only one.This is because of the restrictions that these diseases can put on your lifestyld.

In the recent past two IBS-specific medications for women have been put on the market. Alosetron hydrochloride, sold under the brand name Lotronex, offers relief from diarrheal IBS. It works on the neurons in the digestive tract to slow waste production. Tegaserod maleate, sold under the brand name Zelnom, is used to treat severe constipation (http://forum.wehavelupus.com/). It works by increasing stool movement through the bowels."

It might be advisable for you to speak with your doctors soon about the possiblity of having IBS, especially if you suffer from FM. I wish you all the best of luck.

If you have IBS, you will probably experience all three of these symptoms (I know that I do):

abdominal pain relieved by bowel movements
change in the frequency of bowel movements
change in the look of bowel movements

IBS is a chronic illness, like FM and Lupus. IBS tends to get worse over time and it is exacerbated by certain foods or medicines (as mentioned above). If you suffer from IBS, you should also keep a record of the foods that you have been eating as well as your symptoms. If you have IBS, you may suffer from some or all of the following symptoms:

moderate to severe abdominal cramping
bloating after eating
lack of appetite
very loose or watery stools
very hard, pebble-like stools
stools covered in stringy mucous
more than 3 bowel movements every day
extreme urgency or fecal incontinence

Peace and Blessings

11-28-2010, 06:22 PM

OK, this is one of those stupid posts that made me cry! The very first symptom I showed was 3 years ago when my bowels changed. I constantly had watery stools 5 or 6 times a day. It is so bad that I can't eat in the car because I eat and within 10 min I have to be in a bathroom. It comes on so quickly that I have missed making it to the restroom on several occasions. I have spoken to EVERY doctor about this and not 1 of them has shown any concern over it at all. Reading the symptoms of IBS above I have EVERY ONE except lack of appetite and hard stools. I even told one of the doctors that I was losing control of my bowels and he just nodded now I see that there is a reason for it and I can't decide if I am relived or ticked off!

Thank you so very much for this! When the disability determination finally comes and I have insurance again this will be one of the first issues I take up! You are a doll!

11-29-2010, 09:22 AM
Yep I have these problems, but I was diagnosed with IBS when I was in college. I've just learned to live with it the last 12 years. It's only recently that IBS is even discussed with all my doctors. Before it was like "oh I see you have that stress thing. you need to be less stressed". Yeah, ok. Who doesn't? I've had 3 colonoscopies. Like red said, they no longer make you drink that horrid stuff. Especially if you are already all liquid. The first time I went I had to drink that and nearly threw it right up. The second time they gave me a pill which worked like a charm and the third time I was all liquid already so they kept me of a 72hr clear liquids diet and then did their thing. Like you, there is no physical reason for my IBS found. The last test, done in 2009, shows that I now have gastritis too, but the doctors don't seem concerned about that or seem to think there is a link between that and my other problems. I don't understand how they don't see the link, but then again I didn't spend 7 years in medical school, I only know what I know about my own body.

11-29-2010, 06:43 PM
Tgal; I am glad that this was helpful to you and I understand you being a bit pissed off. Having both conditions is something that should not be ignored and it just irks me, to no end, that so many doctors won't even acknowledge that this is a problem and that it can affect our way of life.
I do hope that you confront your doctor with this information, once your other issues have been resolved, and that you insist that he/she take appropriate steps to provide treatment for you.

SandyR; Like you, I just cannot understand it either. Are they lazy or do they just not want to deal with this issue? I think that they decide that, if they are dealing with other issues with us, they don't want to have to take the time to run tests and prescribe treatment for other issues. Just because it does not affect their lives doesn't mean that they can ignore the fact that it does affect ours!!

I wish you both the very best :-)

Peace and Blessings

11-29-2010, 06:54 PM
Can't be left out! I average 3-5 in the morning and if it's a bad day 6-7. I have meds from the doctor that you put under your tongue, it melts, you get a bit of relief. If I'm on higher doses of blood thinners, sometimes I appear to be dispensing a facet of blood directly from the nether regions! I've had four colonoscopies and 3 endoscopies. My innards are a mess! But you know what? I'll take this over the pain any day. I feel like I have some control and predictability with this. The pain -- it owns me.

God bless all and keep asking good questions. I've come to believe that Lupus must be like when a computer is struck by lightening. Everything goes crazy and occasionally something will work but mostly the wires are just crossed!

11-30-2010, 07:57 AM
SandyR; Like you, I just cannot understand it either. Are they lazy or do they just not want to deal with this issue? I think that they decide that, if they are dealing with other issues with us, they don't want to have to take the time to run tests and prescribe treatment for other issues. Just because it does not affect their lives doesn't mean that they can ignore the fact that it does affect ours!!

You are so right! I think the doctors don't deal with it b/c they are so limited with specific knowledge only in their specialties and for the most part can't functionaly think outside that box. Is it really so hard for them to see how the gastritis could be related to the reflux or to the inflammation in other systems? I guess it is. I know that before I went looking for my own answers I didn't see that link but now I can't help not to see that link. It's very aggrevating to be passed of from dr to dr for lack of knowledge or interest or whatever it is they can't seem to overcome to deal with us properly. I hope that medical schools here start training our doctors to see us as whole beings with connected systems soon and that each of our specialists will begin to open their eyes minds and practices to the theory of treating the whole being as well.

11-30-2010, 10:41 AM
Wonderfully said Susie and Sandy! 90% of my dx has been made by me! I have taken the papers to the doctors and said "can you test for this since I have every symptom?" You are absolutely correct abou them being boxed in. "Sorry but that is not what I do". I get so tired of hearing that! I take 11 meds for different symptoms and can't find 1 doctor willing to help put them all together. Almost all of them say "I am sure this is something autoimmune but the test results aren't showing it". Then they ignore half of the other symptoms because it isn't part of their specialty. It is so frustrating!

11-30-2010, 05:36 PM
Well, I guess this is even more reason for us to educate ourselves in order to be our own health advocates; for us to stand up for ourselves and not allow our myriad of specialists to dismiss us!!
I am so happy that we are here for one another in order to help each other do these things for ourselves!!

Peace and Blessings

12-01-2010, 02:50 AM
My next visit to the GP was going to be to ask if I needed a colonoscopy as I've been getting bad intestinal pains before a trip to the loo. I get the bloating also, so I'll ask him about IBS. Very informative thread, thanks all!


12-01-2010, 07:43 AM
My next visit to the GP was going to be to ask if I needed a colonoscopy as I've been getting bad intestinal pains before a trip to the loo. I get the bloating also, so I'll ask him about IBS. Very informative thread, thanks all!


Ask him about IBD. IBS is only one disease under IBD. IBD also includes Chron's Disease and Colitis.

04-11-2012, 06:21 PM
I've never been so pleased to read so much about other peoples bowel movements!!! I have had chronic diarrhea for months. In the past 2 months it has been every day. And like many of you mention it is completely watery. Don't think my partner understands how bad it is because she keeps saying its because I take immodium and block myself up...then it ends up as the runs. I know thats not the case because I try not to take immodium.

I have to take immodium if I have to leave the house (impossible otherwise!)and it helps if I take about 3 tablets, followed by more later in the day. My stomach is bloated and sore and cramping, right from my stomach to my back and very low down too. I have nausea too.

It's been so bad recently that I've stopped eating most of the time. I won't eat all day, but when everyone gets in from work and there's an evening meal I feel like I have to eat. I've thought IBS (although I don't have a dx of fibro, who knows?) or some kind of food intolerance, gluten perhaps? I'm going to the docs about it now. I've started to lose weight which I'm quite enjoying, but i want to go back to work soon and it's not possible unless I fix this (which I will be telling the doctor!) It's more important that I earn money than it is to be thin.

Thankyou everyone for your openess and honesty!

04-11-2012, 07:24 PM
I have been meaning to write a post about this all week and just kept forgetting. The ONLY good thing that came out of me being in the hospital last week is that I found out what this is!!! Not by the doctors, mind you. I found out because I had a nurse that had this same thing and was on medication for it. She said it took her 3 doctors before she found one that cared enough to think this was important!

I don't remember this whole thread and am not up to reading it now but my problem was that I had to have a bowel movement almost instantly after eating. I couldn't eat in a car or be away from a restroom if there was food. I cramped and was so uncomfortable. I would have 5 or 6 bowel movements a day (at least). The name of this condition is Gastric Dumping Syndrome or Rapid Gastric Dumping. It usually happens in people that have had some kind of bypass surgery but can happen to others as well

Here is a bit of info from Wikipedia on the topic.

Gastric Dumping (http://en.wikipedia.org/wiki/Gastric_dumping_syndrome)

04-11-2012, 08:31 PM
I had this the first few months that I was taking Plaquenil, but then it seemed that my body got used to it. I do still have to be close to the restroom not long after I've taken my dose of Plaq, but it's usually just once and then I'm good for the day.
I wonder if taking Plaq has anything to do with this?

04-11-2012, 08:39 PM
Not for me, Marla. I have had this for years! It was one of my first complaints at the doctor. I actually don't remember it being any different.

04-11-2012, 08:44 PM
That sounds a lot more serious than just reacting to a med. Did the nurse tell you what doc she saw to get some answers? Is it a gastroenterologist near you?
How are you after that hospitalization?

04-11-2012, 08:50 PM
That sounds a lot more serious than just reacting to a med. Did the nurse tell you what doc she saw to get some answers? Is it a gastroenterologist near you?
How are you after that hospitalization?

I didn't ask about the doc, Marla. I haven't been able to afford any of my specialists in almost 2 years so there was no need to ask about another. Hopefully in Oct. I can get back on track.

As for the hospital... well since I have no insurance all they wanted to know is that I was not dying. They had no interest in finding out what was wrong. As I said... come on Oct!

04-11-2012, 08:57 PM
Hang in there, girl!

04-11-2012, 10:07 PM
tgal, and shine.

i also have similar problems.
my pcp has lookin into my problems....
at the moment the best option for me is to use a tablet called "metrogal"

the way it works... is it kills all bacteria.
good and bad, in your complete intestine system.
you then need to replace the good bacteria, "inner health".

most normal people use 1 tablet once.
i use 1 tablet daily for 3 days.
then i am not allowed to take any more for at least 3 days.

sometimes it takes 2 treatments (6 tablets) before i become "normal"

i suggest talking to your doctor about a script.
it cannot really do any harm, but makes life a lot more comfortable if it works.

04-11-2012, 10:55 PM

My doctor said there was a medicine that would help (long ago but he didn't tell me what was wrong) but it was 90 bucks. I already spend almost 400 a month on meds. I don't have money for additional ones. Crossing my fingers that Oct gets here quickly.

Thanks for the info, though. I will remember it come Oct. Until then I am going to try and follow the diet recommended to see if it helps this issue

04-12-2012, 02:16 AM
I have it sorted now!
I found that I must take my plaquenil within 10 min of eating no longer it must be taken with food!

I then found that my stomach and bowl wasn't emptying. So the gastro guy tried drugs and then told me to take iberogast oral liquid. It works I was on it three times a day and now about once a day and all is regular and still about twice in the morning but it all works with a normal days activities.

Iberogast is sold in the normal chemist/pharmacy in Australia. I alo have four other things written down by the gastro dr to help as things change but all has been so manageable since starting this and making sure that the plaquenil is taken. With food.

Hope this helps!