09-07-2010, 07:37 PM
I posted about pulsatile tinnitus awhile back and since have been reading alot about intracranial hypertension. I seem to have several things they link this to which is polycystic ovarian syndrome and insulin resistance I have also seen so things linking lupus with it. Have any of you ever heard of this or have it? Iam thinking of telling my doctor about this the way they check is with a spinal tap which doesnt sound to fun.
09-09-2010, 09:37 PM
I think that I remember your original post and I believe that I may have responded to it.
I have never had this issue, but I do know that Lupus can cause secondary intracranial hypertension. The primary goal in treatment is to prevent visual loss and blindness, as well as to control the symptoms. This condition is treated mainly through the reduction of CSF pressure and, where applicable, weight loss. This condition may resolve after initial treatment, may go into spontaneous remission (although it can still relapse at a later stage), or may continue chronically.
You are correct, the first step to control symptoms is to drain the cerebrospinal fluid by lumbar puncture. Often, this is done at the same time as the diagnostic process. Most of the time, this is sufficient to control the symptoms, and no further treatment is needed. (http://forum.wehavelupus.com/#cite_note-Soler-2)[/URL]This procedure can be repeated if necessary, but if it is repeated, doctors usually feel that additional treatment may be necessary.
The most common medical treatment is acetazolamide (Diamox), which acts by inhibiting the enzyme carbonic anhydrase, and reduces CSF production. The diuretic, furosemide, is sometimes used if acetazolamide is not tolerated, but this has little effect on the ICP. Various painkillers may be used in controlling the headache. Also, a low dose of the antidepressant amitriptyline, as well as the anticonvulsant, topiramate have shown some additional benefit for pain relief.
I hope that this has been helpful to you :-) I wish you the very best and please let us know what your doctor says.
Peace and Blessings
09-10-2010, 06:52 AM
it's listed # 1 on a list of 9 causes here.