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View Full Version : Sleepless night - are sleep disorders common?



hatlady
10-10-2005, 11:18 PM
OK, I've always been pretty good about getting to sleep. Able to do a quiet meditation, or have a glass of hot milk and then drift off. If I woke up in the middle of the night, I'd get a glass of water, maybe visit the bathroom and then back to bed to sleep.

Last couple weeks I've been alternating between a week where I sleep well, then a week where I'm up every night. Hot flashes wake me, drenched in sweat, then I can't get back to sleep. Hot milk isn't cutting it, nor are any of the usual tricks. Exhausted during the day because of it on those bad weeks.

Thoughts? What else can I try? I've got a reumy visit already scheduled in about 3 weeks, but she's always saying the hot flashes are not lupus. I haven't talked with her about the sleep issues - they had NOT been an issue before this.

Hugs to all, and thanks for the input..

hatlady
10-10-2005, 11:37 PM
:shock: YIKES!

so sorry for the mulitple posts - my computer kept timing out, giving me a 503 error. So I thought the post wasn't going through. I'd back up and hit "submit" again... and again.... and...sigh... again.

With luck, Saysusie will see this mess before too many others do, and she'll clean it up for us. Until then, I'm going to surf the site a bit, then TRY to rest and hope that someone out there will have some suggestions.

TracyDawn
10-11-2005, 04:54 AM
Hey Hatlady! So sorry you aren't sleeping well. Not sure of your age but any chance it's menopause? I've had a total hyst. and take hormones (had surgery at the ripe old age of 26) and if I miss the dose then I get the flashes and sweating. However, I still have trouble sleeping and currently have a prescription for Ambien. I've tried the OTC sleep time meds and they don't work anymore. It sucks when you can't sleep cause it flares up everything else, at least it does for me. Have you tried the OTC stuff? or just plain old benadryl? I know that knocks some people out. Probably wouldn't hurt to call your dr and just ask over the phone if there is something you can do. {{HUG}} Hope you can rest soon.
BTW all the accidental posts kind of reminds me of how my brain is these days, think you are missing something and start all over only to discover you have already done it ROFL

SoleSinger
10-11-2005, 07:43 AM
I think your doc is wrong about hot flashes not being part of Lupus... I never had hot flashes before... Now I have them all the time! I have all my parts and I'm only 24!!! And really the only thing that changed, was I got Lupus...

hatlady
10-11-2005, 04:03 PM
Thanks for the input and the kind words about
my posting
my posting
my posting :oops:

I am not fond of the idea of meds - though Benadryl could be an interesting idea - stop te runny nose AND knock me out... if this keeps up until my visit on the first, I'll be chatting with my rheumy for her suggestions as well. Oh lordy, I need sleep befofre then!

I had some hot flashes when I started menopause, controlled them with soy supplements. Didn't have them for about 2 years. THEN I was dx'd with lupus, and about 6 months later the flashes started again, and the soy didn't work so I stopped it. Learned that concentrations of soy weren't good for lupeys, nor were hormones, so didn't even consider it.

Like you, I"ve heard of so many who've had hot flashes with lupus. I really think they are related.

Hugs to both of you....and I"m SO tired now... but afraid to go to bed early. Hopefully tonight will bring sleep, blessed sleep!

caro
10-11-2005, 06:34 PM
DO YOU HAPPEN TO BE ON PREDNISONE. THIS CAN CAUSE BOTH OF THESE SYMPTOMS AND THE HIGHER THE DOSE THE WORSE THE PROBLEM.
SOME TIMES IT GOES AWAY AS YOUR BODY ACCLAMATES TO THE MEDICATIOM AND SOMETIMES IT'S A SIDE EFFECT YOU DEAL WITH THE WHOLE TIME.
AS TO IT BEING JUST BECAUSE OF THE LUPUS: WHEN I' IN A BIG FLARE I HAVE HORRIBLE HOT FLASHES AND HAVE SINCE I WAS 16. SO YOUR DOCTOR IS DEFINITELY WRONG.
CARO

hatlady
10-12-2005, 03:44 PM
Thanks for the input, Caro. I'm gong to have to talk to her more about the flashes when I visit in a couple weeks. I'm hearing too much from people like you who've dealt with lupus and are no way menopausal!

coco74728
10-14-2005, 10:57 AM
Hi hatlady!

Dont post very often, but I know not being able to sleep is a bummer and having hot flashes too makes it a double bummer.

My rheumy always asks me about my hot flashes, and they were very bad until the last couple of weeks. :mad: Down from 20mg to 10mg of prednisone on 9/21. So maybe lupus or prednisone, but since you dont take prednisone, Im agreeing with the others that it is a lupus thing.

I also take 1mg lunesta and have great results. Tried other sleep helpers but causes restless leg syndrom problems with me. I think calling your rheumy is a good idea instead of waiting for the appt.

Good luck
Karenann

hatlady
10-14-2005, 03:45 PM
Thanks so much for the additional input everyone! I did sleep better last night, who knows why.

I'm adding this to my list of questions for my doc when I go next time. And you betcha we're going to have a LONG discussion about hot flashes!

I have a friend with MS who feels that the humidity levels have a definite effect on her wellbeing, maybe it is some weather realted thing. Or at least partly. I'm going to track that as well.

Hugs to all, and thanks so much!

MamiButterfli
10-20-2005, 02:16 PM
Hey Hat lady....
I am new here, but I have been through the sleepless nights and also the hot flashes. I have been told by a specialist that this is sometimes common w/ LUPUS. I thought maybe it was early menopause, I am only 30 8), but he assured me that it has been a symptom with SLE. Hope that helps some