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BonusMom
07-14-2010, 03:46 PM
I had the MRI w/contrast of the brain yesterday so my appt with the neurosurgeon had to be postponed until next Tuesday.

The tumor is clearly evident and lies on the left frontal lobe of what is commonly referred to as the buttcrack of the brain--the vein that goes right down the middle of the brain. Anyway, I told my friend that since I've got a tenant taking about real estate up there, it should have a name, to which she quickly responded "Beavis." So Beavis it is.

I saw the headache specialist and he increased the Topomax, which I believe is helping decrease the amount of headaches. I had a brain fog moment and failed to add a med to my pill box and have felt like garbage the last few days and took today off sick. I figured it out today and will be back at work tomorrow.

I've been prety emotional and on a roller coaster due to my dad being in hospice care, working for minimum wage (after just buying a house) due to the lack of a state budget, family drama, losing weight (yeah), son's wedding to a great gal and misplacing three photo albums with all the kids' baby photos. Tell me I'm not losing my mind and brain fog isn't real..I dare ya.......

I finally found a new PCP with the help of my new headache specialist. He's such a gem. The PCP was voted as one of the best by his peers here in Sacto. I'm really happy to be one of his patients and my move made it easy to leave my old PCP behind (no confrontation).

Superman and I just celebrated our anniversary. Nothing special (booze doesn't mix with my meds well, I've discovered), but he still melts my heart, even if we can't toast one another with champagne :).

I'll update everyone next week after the visit with the neurosurgeon in cool San Francisco.

Nonna
07-14-2010, 05:16 PM
Here's a hug, we all need them.
My prayers and thoughts are with you.

Nonna

jmail
07-14-2010, 05:24 PM
We'll be praying for you dear. Beavis and Buttcrack... lolol - that's a good one! Good attitude, too. Know your enemy, and conquer Beavis! btw, we use some "sparkly" grape juice for toasts in our house...

magistramarla
07-14-2010, 08:17 PM
Hey there, BonusMom
I'm glad to know that you are getting some relief from the headaches and that things are progressing with finding out what to do about "Beavis". Be sure to keep us all informed as you find out more.
I know that you have a lot of stresses right now, but you really need to kick back in that new house and rest! Take care of yourself!
Isn't it the pits to live in the wine country and not be able to drink the wine? Luckily, my rheumy says that it's OK, as long as it's not too close to my MTX day. So, there are some evenings that I have a glass of wine to relax the muscles rather than a Baclofen. (Tastes much better!)
BTW, we drank the red wine that you gave me with some juicy steaks on July 4 - delicious!
Love & Hugs,
Marla

BonusMom
08-03-2010, 09:09 PM
I recently saw the neurosurgeon who I thought was fantastic! The calcified meningiomas are actually simple calcifications that, unless they continue gather more calcium deposits, are harmless. They are not meningiomas. They are not causing my headaches. Woo hoo! Yipee! I'm going to live long enough to be a burden to my children and a drain on Social Security.....

But what is causing the darn headaches?

The increased dosage of 200 mg Topomax daily has helped, but not completely erradicated the headaches. I'll continue to work with the neurologist to figure that out. I've had one the last couple of days and it's over the right eye and down the side of the face of bit. Unfortunately, the insurance company is rather stingy with the meds and I'm out until the 9th :( so I'm soldiering through it.

I am flying up to my parents' home to say goodbye to my Dad next week. He's advanced to Morphine and I have to say goodbye while he still remembers who I am. I know the Topomax makes me more emotional than usual, but even with Sjogren's I have produced more tears over the past two months than I thought I ever could in my lifetime. I was so hoping he would live long enough to see his eldest son get married in October, but he's going to be watching from a special seat above with a huge smile on his face saying, "Atta boy, Steven."

I hope all is well with everyone and am sorry that I've not checked in more frequently. It's just been a very difficult time and I don't feel that I can offer support to others right now. I will be back when things settle down. Take care.

red246
08-03-2010, 10:06 PM
((((HUGS)))) I am glad to hear that the news about "Beavis", not too happy that you still don't know what is causing the headaches. My daughter gets headaches and they couldn't figure out what caused her's and none of the meds worked. :(
I am sorry to hear about your dad. It's a good thing that you are able to say goodbye while he can still remember. I didn't get to do that w/my dad and I wish that I had. Sending lots of hugs and prayers!

Nonna
08-04-2010, 04:01 AM
So glad about Beavis. Headaches are a pain. Meditation helps me somewhat. The easiest is to take over the counter at the first sign and try to keep it to a dull roar ( if you know what I mean). I've reached the stage where the meds no longer work for me and all that is left is the knockout stuff.

Hugs and prayers
nonna

SandyR
08-04-2010, 06:33 AM
I'm sorry I missed this post the first time around. One of the perils of missing days on WHL. I am releived for you that Beavis is just a pain in the butt and nothing more serious. Thank God! I hope your headaches give you some relief soon. Question - did they ever test you for sinus/allergy issues? I get nice weeklong migraines when my sinuses are infected or my allergies are acting up. Never had either problem as a kid but the last 2 or 3 years they are horrible. Just a thought that you might share another symptom source with me.
I'm sorry to hear that Dad is not doing well. I hope and pray he will be fully alert and aware during your visit with him and that you are alert and pain free as well.
Sandy

Angel Oliver
08-04-2010, 04:14 PM
I to am sorry i missed this post first time round and also relieved Beavis is just Beavis and i really hope soon they managed to help you with your bad headaches.Im so sad to hear about your Dad,but glad you are going to be with him soon.I know your heart must be breaking for that trip....we will all be there with you. I giggled at your dare....lol....funny.Im saying nothing:) Dont worry about not coming here....we understand and will always be here for you.You take care.
Thinking of you.
Love n hugs
Amanda.xxxxxx

Saysusie
08-04-2010, 10:01 PM
I am so sorry that I am late posting to this thread. Please know that you are in my thoughts and my prayers and I hope that you do get to see your Dad very soon.
I am sending you warm {{{hugs}}}

Peace and Blessings
Namaste
Saysusie

magistramarla
08-16-2010, 08:47 PM
Hi BonusMom,
I've been away and very busy for a while. I hope that you read this.
How are you and your family doing? I think of you often, and I hope that things are going as well as they can for you.
Keep in touch!
Love and hugs,
Marla

BonusMom
08-17-2010, 08:22 AM
Thanks M, for the note. I flew out of Boise yesterday with the heaviest of hearts and a wish for all suffering to end.

My Dad weighs 115#, at the most. His eyes light up when someone enters the room. Last Thursday, he had breath sounds in the left lung, albeit weak, and the right was very strong. Yesterday, the hospice nurse reported no sounds in the left lung and the right lung showing weakness. The end is near.

The tears come easily, as I thought they never could with this Sjogren's business. Then again, dry eyes have not been my chief complaint.

Preparations for my son's wedding are in full force and the bridal shower has been held. I found the perfect mother of the groom dress for the new svelte figure I'm sporting. And no, it doesn't look like what I call a grandmother of the groom dress with no definition at the waist or a sheer jacket overlay with sequins. It has a v neckline that tapers to a dropped waist and is tea length, which I consider appropriate for an 11:00 am wedding. It'll be a beautiful day with a lovely tribute for Steven's beloved Papa.

I hope your visit with your grandson was all that you hoped it would be. I'm sure he'll cherish the memories you made and wrap them up and pull them out for you to talk about at the most unexpected times.
May good health shine upon you and your suffering be minimal.
Lana

Angel Oliver
08-17-2010, 10:47 AM
Hi Lana (BM),

So glad you flew out to see your Dad and im sorry its under these circumstances.Just know we are all thinking of you and sending you gentle hugs.
Your dress sounds fab for the wedding,hope to see all the photos.Just know you are in our thoughts and feel your pain.
Love n gentle hugs
Amandaxxxx

Saysusie
08-17-2010, 05:26 PM
Hi Lana;
You are in my heart regarding your Dad and I hope that your heavy heart can fill with loving and warm memories.
Your son's wedding sounds beautiful and I would love to see your svelte figure in your dress. Please post pictures when you can!!

Sending you wishes for much peace and many blessings
Namaste
Saysusie

Hillbillie
08-19-2010, 09:29 PM
Love your heart, I'll be saying a prayer for you. Billie

magistramarla
08-19-2010, 09:36 PM
Hi Lana,
I'll be thinking about you for the next couple of months. I know that this is a really rough time for you. I'm glad that you have the wedding to look forward to and to keep you busy. I know that you will be a gorgeous mother of the groom. You will have to upload some pics for us to see.
Love and Hugs,
Marla