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debbie-b
06-01-2010, 06:18 AM
For about 5 days now, I have a pain in my leg, that is about to drive me insane.
It starts around my left hip and goes down my entire leg, all the way down to my foot.
The pain is constant, but when I strain, like coughing, sneezing, or using the bathroom ( even when urinating), the pain is so excrutiating, that I get nauseated.
My doc thought it was a muscle pain, but muscle relaxers made no difference. I have said from the beginning, it is a nerve pain.
The pain gets worse, not better. My leg also feels a little cooler, than the other one, but not to touch, just my feeling. I have a numb feeling in it, so there is constant pain, excrutiating pain and numbness.
This morning, my knee hurts, a joint pain feeling. But that could be from walking funny, because of the pain.
My next rheumy appt. is on the 15 th. I don't know if I can handle the pain until then.
The pain goes down the outside of my leg, it is my left leg.
Does anybody have this kind of nerve pain?
Please my friends, I need help.

Debbie

magistramarla
06-01-2010, 09:54 PM
Debbie,
This sounds very familiar to me. I have that pain in both hips, and all the way down both legs, but especially the right. My right leg is always cold to the touch, and I have numbness from my toes up to part way up my legs. It feels like I'm wearing a fuzzy sock, when I'm not. I've had knee problems, too and I've had surgery for a torn meniscus and avascular necrosis.
I've learned that peripheral neuropathy is common with Sjogren's. However, my neurologist dismisses this, and says that I don't have PN. The symptoms certainly match! I've also complained about the way that my muscles just seem to "give out", but he says that I have nothing wrong with my muscles. I'm frustrated with the guy.
I had some spasticity behind my knees, and he did prescribe some Baclofen, which has helped with that. BUT he just won't listen when I complain of the continued muscle weakness and the painful numbness.
If you have any luck finding any answers, let me know.
Hugs,
Marla

debbie-b
06-02-2010, 01:46 PM
Hi Marla,

Thank you for your answer.
I too have the feeling it starts in my hip. I wonder if it is a nerve thing.
It is so painful, that I took a painkiller yesterday, which didn't help at all, but made me feel really yucky. My heart was racing and my limbs felt really heavy, it felt worse than the pain.
Well my rheumy appt is on the 15 th, I can't wait to hear what he has to say.
If he gives me any idea what it could be, I will let you know.
This pain is getting to be unbearable. I am glad that I am off tomorrow.

Debbie

debbie-b
06-02-2010, 02:01 PM
Oh Marla,

I forgot something. My dizzyness is getting much worse as well. I wonder if it is all connected.

Debbie

magistramarla
06-02-2010, 08:49 PM
Yes, I have dizziness, too - but that is usually attributed to the Meniere's Syndrome. Anytime that I get ALL of my symptoms into one list and try to discuss how they might be inter-connected, the docs just look at me like I'm crazy. Each specialist only wants to deal with the symptoms that are of interest to his/her specialty.
I'm getting pretty cynical about docs.
Marla

banderosa
06-03-2010, 12:47 AM
I don't want to scare you, but are you sure it is nerve pain?
If it isn't, it could be a blood clot in your leg. The sneazing making it worse,makes me think that. But I hope I am wrong.

Dar
06-03-2010, 03:03 PM
I know as people with lupus, you expect a certain amount of pain, but pain helps let you know that something is wrong.

If this pain is severe and not normal for you (the coldness thing is odd, too), then why not go to an urgent care, doctor you can get into more quickly, or the ER? Sometimes we get in the habit of ignoring things that we shouldn't.

mortifiedat52
06-03-2010, 08:45 PM
i just had the same thing about 2 months ago... it was shingles... it's been 8 weeks and i'm still not over it

debbie-b
06-04-2010, 11:56 AM
I know as people with lupus, you expect a certain amount of pain, but pain helps let you know that something is wrong.

If this pain is severe and not normal for you (the coldness thing is odd, too), then why not go to an urgent care, doctor you can get into more quickly, or the ER? Sometimes we get in the habit of ignoring things that we shouldn't.

You are so right, I do just that, whenever there is a new pain, I blame it on lupus.
I am going to the doctors, at 4:45 today. The reason I am going today is, because my husband is bugging the heck out of me to go. He is right, why should I endure so much pain, if there might be a solution for it.

Debbie

debbie-b
06-04-2010, 11:58 AM
i just had the same thing about 2 months ago... it was shingles... it's been 8 weeks and i'm still not over it

I have had shingles last year, it lasted 3 months.
Hopefully you will be over it soon, because I know how painful it is. I had it around my waist.

Debbie

debbie-b
06-05-2010, 07:17 PM
Well, I went to the doctor yesterday and he said that I have a bad RA flare, because I have a swelling in my hip, in my knee, in my foot joint and in my back. He thinks because of the inflammation in those joints, the pain travels up and down my leg.
He upped my anti inflamatories and muscle relaxers, so far no relief. The pain is so intense.
I was so very miserable ay work today.
Cross your fingers, that this pain will go away soon, I can't take it much longer.

Debbie

Nonna
06-06-2010, 04:01 AM
I don't know if this will help you, but it's always made me feel better. Soaking in a hot tub. It relaxes the muscles; icy hot is working for me at the moment. Moving is also important for your hip (at least for me, if I let mine go it gets stiff and it hurts more)

hugs
nonna

debbie-b
06-07-2010, 01:09 PM
I don't know if this will help you, but it's always made me feel better. Soaking in a hot tub. It relaxes the muscles; icy hot is working for me at the moment. Moving is also important for your hip (at least for me, if I let mine go it gets stiff and it hurts more)

hugs
nonna

Thank you for your tip, but I have tried heat and ice, nothing helped yet.
I still think it is a inflamed nerve, because it feels like nerve pain.

Debbie