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SarahK21
05-20-2010, 03:53 PM
Well, I just got back from the rhumey and he said that I do not have Lupus, instead I have Fibromyalgia. I guess thats better, but there is nothing that he is going to do about it. He said to research it on the internet and he would call me next week. I asked him about the redness on my face, and he told me that it wasnt a rash, just red, even though it gets worse when I go out into the sun. Dont get me wrong, I am relieved but also irritated that they havent done anything about my symptoms.
I appreciate everyones kind words. I guess I will head over to a fibro page.

rob
05-20-2010, 06:51 PM
I'm very glad that you don't have Lupus. We have quite a few members here with Fibromyalga, so there's plenty of people to talk to about it. And, please don't think that because you do not have Lupus that you have to leave here. Some of our best contributors are people who eventually found out that they had a condition other than Lupus. Just know that you are always welcome here.

Rob

Nonna
05-21-2010, 11:22 AM
I'm with Rob, don't go. We all have some many conditions. What's in a name! The conditions overlap so much who care about the name.

Hugs

Nonna :twitcy: :twitcy:

SarahK21
05-21-2010, 05:10 PM
I appreciate it guys! Thank you. This has been tough. No one knows what to say, they just look at me with sad eyes. Even my mom. I feel like no one understands what I am going through with the pain. It is a constant struggle. The pain is always there, sometimes not as strong, but there nonetheless. I have been doing a lot of research on fibro, and it doenst look like there is much to do about it, except taking NSAIDS. I do that and mess up my liver and kidneys. What is the lesser of two evils? Does anyone know of a pain reliever that is safe to take daily, but strong enough to counteract the symptoms?

jmail
05-21-2010, 05:52 PM
My wife swears by Lyrica for her fibromyalgia. It took a while to find a good "balance", but she's there...

Saysusie
05-25-2010, 11:14 AM
I have Fibromyalgia also (as a co-existing disease with my Lupus). However, I swear that lately, my FM has been causing much more problems than my Lupus. My HMO will not prescribe Lyrica, so I take muscle relaxers, anti-depressant meds, pain meds, IBS meds, migraine meds, and something to help me sleep.
The FM pain is constant and widespread..it is also relentless!!! So, I truly understand how you feel. If you have any questions about FM, please feel free to ask and we will do all that we can to help you.
Please, as everyone else has said, stay here with us. FM is very common for many of us diagnosed with Lupus, so we can offer you advice, information, and understanding.

Peace and Blessings
Namaste
Saysusie