View Full Version : I'm Scared...Seems to Be a Recurring Theme
05-07-2010, 05:37 PM
Guys and gals, I'm probably just over reacting, but if I ever need a safe place to vent I know I've got it here.
I saw my PCP today in follow-up to my hospitalization last week. She said it appears that I have a meningioma on the brain that will have have to be monitored. The MRI of my brain in 12/05 was fine, as was the ultrasound of my carotid arteries. In addition to the lesion on my brain, it seems I've got plaque in my carotid arteries and mitral valve prolapse
Total cholesterol is 107; triglycerides 54, HDL 41, LDL 55
Is this normal for a 45 year old woman or am I going to hell in a hand basket? (excuse the vulgarity but I'm at the end of my rope).
Hey there, check your inbox. I sent you a PM.
05-08-2010, 07:43 PM
I sent you a PM too.
05-11-2010, 12:10 PM
I have also sent you a Private Message!!
05-12-2010, 06:44 AM
How are you doing? What's going on with the doctors? Anything new? Have they been poking and prodding you or given you any new info? Just thinking of you and praying for you right now.
05-12-2010, 10:17 PM
Thank you everyone for your kind words. I am awaiting my return to the neuro on July 1st, armed with my prior MRI and MRA results of 12/05 and a laundry list of questions.
My head feels heavy, my thoughts are muddled, but at least I'm not having the raging headaches. I know that this, too, shall pass. I'm just tiring of trying to dodge all of these darn bullets. I do realize that things could be a whole lot worse and do appreciate the many blessings that I have been given. I am very thankful that I have a place to vent my frustrations and that you all let me cry, sniffle and such (I really try not to wipe my face on your shirts) when I need to.
05-13-2010, 09:46 AM
Hey, that's what our shirts are for!
Come here and vent all you want!
I'll be waiting to here from you after that appointment.
Love and hugs,
06-10-2010, 07:13 AM
I obtained my med recs from the hospital and asked that they also be forwarded to a well known specialist (neurosurgeon) at UCSF. Their office contacted me and I was able to get an appointment for July 13th. I'll need to get an MRI w/contrast in the interim, but that's a blip on the radar as far as I'm concerned. I'll see the neuro (headache specialist) on July 1. The anti-seizure med seems to be lessening the intesity of the headaches, but the frequency is still there.
In reviewing my hosp med recs (the hospital, BTW, is associated with my PCP-who you may/may not remember was pushing for me to see a different rheumy at one point) the hospitalist has my many diagnosis including "possible SLE" although I've had several conclusive findings, both labs and objective findings, my PCP is just being obstinate about it and now it's "poisioning" my med recs. I asked the neuro at the hospital if he had to choose a PCP for his family, who would he choose and he gave me a name. Unfortunately, he's a pretty well-known and in-demand guy because he's not accepting new patients. But, when I see the neuro on 7/1/10, I'm going to plead my case and ask that he beg the good doctor to accept me as a patient because I need a new captain of my ship.
While hospitalized, they ran an Anti-Thrombin III function test with a result of 80 (normal is 90-130) and the LA-PTT Screening was 52.7 (<45.0 is normal). Aren't these two tests also indicative of SLE?
06-24-2010, 07:30 PM
Sorry to hear what you have been going through,but im thiking of you and hope you are ok.Im sorry im not answering your questions,but wanted to tell you you are in my thoughts.
lots of love
06-24-2010, 10:44 PM
I could not find much information on the anti-thrombin III test. However, if we look at the terms, it would indicate a test to determine how well your body fights blood clots. If this is true, then it is not a test that is specific to Lupus but could be useful in determining if a person has some of the factors that are generally found in Lupus.
The LA-PTT: PT stands for Prothrombin time and PTT stands for Partial Thromboplastin Time. They are measurements of how quickly a blood clot forms. These tests may be ordered when a person has unexplained bleeding or bruising or when a chronic condition, such as liver disease or lupus, is suspected.
So, the answer to your question is both yes and no..they are not Lupus-specific tests, but are tests used when Lupus is suspected.
I hope that you are able to get a new doctor...keeping my fingers crossed for you. Sending you hugs and prayers.
Peace and Blessings
Hi Bonus Mom,
Keep me posted on what you find out, please. I too had test results come in showing that I am clotting way too easily and I am having (for a lack of a better word) "brain issues". If you get some news please pass it on since my doctors are a bit lost.
Thanks and the best of luck to you!
06-25-2010, 04:16 AM
Thinking of you too my friend.