View Full Version : I'm afraid to go to sleep...

04-28-2010, 12:11 AM
I know this isn't SLE related, but I had a sudden onset of left arm numbness tonight while lying in bed. I know it's not a heart attack as I don't have any other signs. I am, however, worried that it might be a TIA or stroke because of the visegrip type headaches I've been having. Oh, and the fact that I was lying on the couch earlier (seems like that's all I'm doing these days-my screen name should be Sofa Slug) and when I sat up, I had a total loss of vision in my right eye. Gradually, the vision came back, but before it did the vision was black for the most part, with a kinda jagged line of the upper 1/4 of my vision which was lighter and then the peripheral vision had little colored squares (like the little Chicklet candies/gum I used to chew when I was a kid).

I know it's strange. I don't have a HA right now and my blood pressure is fine. I shouldn't worry, but knowing my grandfather had a massive stroke that ultimately took his life, I can't help but be concerned.

It's gonna be a long night and I HAVE to go to work tomorrow.

04-28-2010, 03:19 AM
Please go right to a doctor! The signs are there. You really should check on this. Forget work for today You are more important.

Hugs and good thoughts,


04-28-2010, 03:23 AM
Get your butt to the doctor ASAP young lady! Loss of vision in one or both eyes, numbness, and all of it associated with severe headache could be something very serious. Work will still be there tomorrow, go take care of you today.


04-28-2010, 05:39 AM
I know I am new here but I feel the need to speak up because I know where you are. I can tell by the post that you are in that place of "Something is always wrong and all I do is whine" and this is not the time for that. What I see from that post is someone who DOESN'T whine very often because she is about to let a stroke or heart attack take her out because she doesn't want to "whine" about it. Don't let these people that don't understand your disease cause you to doubt yourself or your symptoms. Get to the doctor. I have read enough of your posts to know that you know what is going on and it is time that you believe in yourself the way that you believe in others on this forum!

Take care of yourself and let us know how it goes! We need you here

04-28-2010, 06:49 AM
Thanks guys...I got the message loud and clear and promise that I will call my primary this morning for a referral to a neuro.

My arm feels kinda heavy this morning and my gait is a bit unsteady so there's no denying that this is "nothing.".

I really appreciate your responses and words of encouragement.

04-28-2010, 10:37 AM
Please keep us updated.

thanks for listening to the message.



04-28-2010, 11:36 AM
I wouldn't wait for an appointment. Get to an ER, if you have to go by ambulance, get there, before this literally gives you no time to get there.

04-28-2010, 02:06 PM
I wouldn't wait for an appointment. Get to an ER, if you have to go by ambulance, get there, before this literally gives you no time to get there.

I have to agree strongly. Even though I have always been a procrastenator, but when it comes to these serious symptoms, like yours, I would go to the ER.


04-28-2010, 07:13 PM
Went to ER at. 9:30 am and was admitted at 5:30 pm. They don't know if it was a stroke or SLE related. Battery is dying. I'll check in tomorrow.

04-28-2010, 07:30 PM
I'm just now reading this thread. I'm so glad you went to the ER! Thanks for keeping in touch with us. Praying for you!

04-28-2010, 08:18 PM
I'm just reading this now as well. I am so glad you went to the ER. Those are some serious symptoms and I am glad you listened to your body and went to get it checkout out. I am glad you didn't just blow it off to being oversensative or exaggerating. Try to get some sleep tonight & please post when you get a chance. Praying for you.

04-28-2010, 09:18 PM
Hey BonusMom,
I just got here, too. I'm worried about you, sister. I'm so glad that you went to the hospital. Please keep us updated.
Hugs and love,

04-28-2010, 09:46 PM
I'm with all the others, Great that you got help but keep getting whatever help you need until they figure out what is going on. That's some serious stuff going on. Take care of yourself... God only made one of you and you are special... treat yourself like you are! Will be keeping you in prayer!

04-29-2010, 03:47 AM
I'm relieved that you went to the ER, but I'm very worried about you. Say hello when you are able to.


04-29-2010, 05:43 AM
My thoughts are with you. Please keep us posted when you can

04-29-2010, 08:37 AM
hi bonusmom,

i am just getting here too, so sorry to hear about your scare, but i am so glad that you went to the ER.

know that we are all thinking about you, and anxiously waiting for your report.

take care of you....it is so common for us to wait before seeking medical attention. we think "it is the lupus", and try to wait out the flare....

thanks to everyone who posted earlier and encouraged bonus mom to get some attention.

we love you dear, and i am sending you gentle hugs.

04-29-2010, 03:23 PM
I also am glad you took the proactive approach and went to the Emergency Room. That's what they are there for for people like you who may have something very serious and life threating going on. I will pray for you.

04-30-2010, 11:00 AM
Thank you, my lupus famiy, for your warm thoughts and prayers.

I was discharged from the hospital last night at 9:00 and slept so soundly in my own bed. Mind you, I had a private hospital room and room service was pretty decent for institutional food, but there's no place like home!

Yesterday morning I had an MRI of the brain, corotoid artery ultrasound, echocardiogram and an EKG. I spent the latter part of the day catching up on Days of Our Lives (boy that EJ's a snake!), giving even more blood and dozing.

A neuro affiliated with my medical group came in at 6:00 pm and spent an hour doing an exam, reviewing my medical history and explaining my test results. Yes, I was impressed as was DH.

Dr. S said that the tests were all normal, with the exception of the MRI which showed some calcifications on the brain :(

My blood tests showed low values of WBC, RDW, CO2 and Potassium.

Dr S. concluded that the numbness and tingling on the left were due to a very bad migraine and that the increase in headaches that I've had since November make me a candidate for a daily preventative dose of Topomax. And if I should have the onset of any HA symptoms, I am to take Maxalt.

Dr S said that depending on where the HA's manifest is what causes the numbness and tingling. He said that no one should hesitate going to ER when they experiencing these symptoms. Now that they have a baseline, the same xrays may not have to be repeated in the future for the same type of issue..

Dr S, a HA specialist who was born in Belgium, confirmed that there is a proven relationship with AI disorders and headaches.

I slept really well in my own bed last night but am still fuzzy and remain weak on the left side. No high heels for me in the immediate future.

Mom called....where was I?

Hmmmmmm.....with Topomax, it's important to keep potassium levels up, so a banana a day, in this case, will keep the doctor away.

I'm going to muster up some energy to get a shower and get rid of what my DH calls the Beverly Hillbilly hair (stems from having bed head and a sweet radiology tech trying to braid it to regain some control and a sembalence of a "do").

Please, everyone, go to ER if you have a sudden onset of numbness! I should have gone when the symptoms first appeared as I was admitted and given an express lane for all tests instead of waiting 30+ days it would have taken for my PCP to coordinate it. By then, it couldve been too late. It's the right thing to do and I appreciate my "family" recognizing it and insisting on a trip to ER.


PS. My next post will exemplify some of the "fine" individuals I met in triage...

04-30-2010, 11:31 AM
So relieved Lana to know you are home and you are on the mend.

I have been checking and rechecking this site to see if you had posted. It's just amazing to me the number of things that can go wrong with our bodies that I have never heard of before.

And yes, EJ is a snake.

04-30-2010, 12:03 PM
Hi Lana,
I'm so relieved to see your post. I've been checking and re-checking to hear from you, too.
I'm glad that it wasn't anything more serious than migraines, although I know how serious migraines can be. I hope that those meds do some good for you. You have been suffering and asking questions about headaches for so long.
Migraines are related to AI issues? NO DUH!! I think that many of us have noticed that!
Take care of yourself, de-stress, and feel better soon.
Lots of Gentle Hugs,

04-30-2010, 03:15 PM
So glad you are home and doing better! Get some rest (seems sometimes we just can't get enough of that) and take care of yourself. Glad you are back with us

04-30-2010, 04:10 PM
As I said, i am very relieved that it wasn't worse. Take it slow and let us know how things go.
take care and get plenty of rest.

Praying the Serenity prayer and wishing like Mother Teresa.

04-30-2010, 04:17 PM
It is so good to hear from you and know you are alright.
I am glad you went to the ER and feel better now. Take it easy for a while and watch your soaps.


04-30-2010, 05:01 PM
It's really good to hear from you. I was worried. Your symptoms were enough to scare the crap out of most anyone. The fact that you are home, is also a big relief. It's always good to get something like this checked out immediately, and I'm glad you did.


04-30-2010, 05:10 PM
Agreed, I am so glad that you went and got some answers.. take care of yourself and keep us posted!

04-30-2010, 05:29 PM
I am so glad that you went and that it was a fairly simple fix. Rest and relax and feel well.

05-01-2010, 07:35 PM
Oh, Lana,

so glad to hear that you are home and resting in your own bed. WOW, Dr. S sounds like a physician who truly cares about his patients. So glad that he was assigned to your case.

ha ha ha....i can't wait to hear about the "fine" people in triage.....this will be fun.

05-03-2010, 01:43 PM
I am glad that it turned out to be migraine related, but so glad you got seen when you did. Take care of yourself x x x (((((hugs))))))

05-04-2010, 09:49 PM
As everyone else has said, I am so glad that you are home, that this was not a critically serious issue and that you are better. I know that it was very frightening, but so glad that you are OK!

Peace and Blessings