View Full Version : We are not crazy !!!

04-26-2010, 11:57 AM
This is a link to a video about lupus on MSNBC .


04-26-2010, 12:39 PM
we need more doctors that understand

04-26-2010, 02:43 PM
Good video. Thanks for the link Becky!


04-26-2010, 04:57 PM
It's nice to see it got some air time..although it barely scratches the surface..people need to be educated..thanks for sharing.

04-26-2010, 08:30 PM

the reporter is an idiot. i'm pretty sure if we were mentioned as "crazy" heck would break lose from those 1 million lupus patients.

04-26-2010, 08:40 PM
I don't think the reporter was calling us or anybody crazy. They were talking about how back then doctor's would think or say that something like this was all in our heads, when infact they know much better now that it is definitely real considering a lot of people used to die from it.

04-26-2010, 11:38 PM
Lupus certainly needs to be recognised by everyone. Its difficult enough battling the disease without having people not understanding. But in time it will spread more and more untill its eventually a well known illness that is no fun to have.

04-27-2010, 05:31 AM
Lupus is covered so very little, that I believe any coverage is basically a good thing. There are some diseases that are far less frequent than Lupus, yet they are household names everyone pretty much understands. Lupus needs to be a household name in my opinion.


04-27-2010, 08:25 AM
I know that untill i was diagnosised with this i never gave it much thought but now it is so different and i sympathize with others who are suffering and not being taken seriously. Bonita

04-28-2010, 11:55 AM
I haven't had a chance to look at the video yet, I can't play these at work, but, wanted to agree that any publicity is a positive move forward. I'm really starting to get tired of people asking, so what is lupus anyway, but, as long as they ask I know that it's important for me to speak up. If I want my doctor to understand Lupus, then taking every little opportunity to give some info is a step in that direction.