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wherlan
02-07-2003, 10:30 PM
I am new, but it is great to be a part of this forum of support and sharing of difficulties and symptoms related to Lupus.
One thing that has helped me, but I have not seen mentioned yet in the topics or replies I have read so far is adjusting diet.
4 months ago, I was feeling terrible and getting worse every day. I started reading different sources on the web regarding Lupus and discovered that I needed to completely alter my diet because everything I was eating was contributing to inflammation and thus pain, almost intollerable pain. Things like tomatoes, potatoes, white sugar, white flour, red meat, salts, chocolate, milk and many more. Additionally, I found that Aspartame and fluoridated water has been found to not only contribute to, but trigger Lupus!! But there is hope. It took a little shopping around, but I have found products that can replace to an extent my diet treats like chips, crackers, carafection (date sweetened carob, a chocolate substitute) soy ice cream, honey sweetened granola. I have to shop at different Natural/Health Food stores, but I can eat without missing out on some of life's food pleasures.
My mainstay is low-salt tuna and salmon with rice cakes and lettuce. Thank God, these, in addition to a nutritional supplement have helped turn my life around and get back to being a father, have a life after work so that I can be with family and exercise instead of crashing on the couch for the rest of the evening. It has been 4 months now, but I started feeling better after 30 days. Please see my homepage listed in my forum profile for more of my story.

Jaycee
02-11-2003, 07:07 PM
Whelan, read your shopping list and yes I find it pretty logical. I don't know if you have rhuematoid arthritis with your lupus but I do and early on in the diagnostic stage my rhuematologist discussed food items with me, he is into a lot of research and is in charge of a lot of trials with groups of patients over long periods, he is very highly thought of in the medical profession however when I spoke to him about altering my diet he said that when working in England they did trials on many foods ie tomatoes, potatoes, etc and the results showed they had no adverse effect, however the fats in milk were definately the worst thing for rhuematoid arthritis sufferes I did not see on your list Rice Milk which is the one I substitue for cows milk.He suggested low fat cheeses etc, and said fish oils were the most beneficial of all products tested also fish like tuna salmon etc., so yes it would be a help to you. I also use the rice puff biscuits with fish. Keep it up. Jaycee.

wherlan
02-23-2003, 01:37 PM
Jaycee,
Thanks for the reply. I have been putting in overtime for work, and did not realize it had been so long since my post.
They diagnosed me at first as having Rheumatoid arthritis, but they are not saying anything about that now since my Lupus bloodwork came in so high 2 years ago.
I know within a few hours that I have eaten a food I knew I should stay away from. I don't have a doc that is involved in research as you do, but my personal experimentations have proved what I read here in the US as pretty accurate for the Lupus I am suffering from.
I am also taking RELIV nutritional shakes, completely natural, that help my energy level and boost immune system (without dangerous ephedra) so I have not gotten sick thru the winter this year (first year in 5 I have not been sick all winter) and I have been off antidepressant for several months now as well.
If you would like more info, e-mail me, or check my homepage:
http://hometown.aol.com/wherlan/mylupusstory.html
These things with lots of prayer have helped me get my life back.
So what part of Australia do you live in? My daughter almost did a special diplomatic trip with "People to People" last year to your country. Of course we all enjoyed the spectacular scenery during the Olympics as well!
Take Care.

wherlan
02-23-2003, 01:37 PM
Jaycee,
Thanks for the reply. I have been putting in overtime for work, and did not realize it had been so long since my post.
They diagnosed me at first as having Rheumatoid arthritis, but they are not saying anything about that now since my Lupus bloodwork came in so high 2 years ago.
I know within a few hours that I have eaten a food I knew I should stay away from. I don't have a doc that is involved in research as you do, but my personal experimentations have proved what I read here in the US as pretty accurate for the Lupus I am suffering from.
I am also taking RELIV nutritional shakes, completely natural, that help my energy level and boost immune system (without dangerous ephedra) so I have not gotten sick thru the winter this year (first year in 5 I have not been sick all winter) and I have been off antidepressant for several months now as well.
If you would like more info, e-mail me, or check my homepage:
http://hometown.aol.com/wherlan/mylupusstory.html
These things with lots of prayer have helped me get my life back.
So what part of Australia do you live in? My daughter almost did a special diplomatic trip with "People to People" last year to your country. Of course we all enjoyed the spectacular scenery during the Olympics as well!
Take Care.

Jaycee
03-03-2003, 12:36 AM
Wherlan thanks for your reply, I have not been onto the site for a couple of weeks and have only just caught up again. Loved your web site but do not think we have the product you speak of here in Oz but I could be wrong. Fortunately I feel really well lately my next specialist appointment is in three weeks and then I am hoping that he finds that my health problems have gone the same way as Allison's hopefully never to be heard of again especially as I offended the young lass at the local health food store this week and may not be their favourite customer anymore, suddenly the younger staff members in a number of shops and supermarkets here in Sunny Queensland where I live have started calling their female customers MAAM when going through the check out and this really does agravate me no end so I politely tell them that I am not Maam I am Madam and when I last I noticee we were not part of the U.S.A.(no offence meant by that to you or any of the readers) my husband says I must be getting better because I am once again speaking out against things I dissagree with however that as it may be my Lupus seems to be well under control at the moment apart from the necklace rash around my neck and the itch which is in its tenth month but now seems to be diminishing G-d willing it will soon stop altogether. I also think that getting back into my charity work has helped my condition, I am too busy to be sick at the moment. Pleased to hear that you are also much better and hope it continues. Jaycee

wherlan
03-08-2003, 09:44 PM
Glad to hear you are feeling better Jaycee! :D
And you are doing what you enjoy doing. Charity work is a great thing, especially when you can help others while you are going through so much yourself.
I am not aware of Allison's story, but will look into it.
Glad you liked my webpage. I did find out that the nutritional shake product I am using is available in Australia. If you like, I can do more research to see if it can be delivered to Oz. I had my kids take it since they were on the couch sick, and they both got better in a day. I have been putting in a lot of long days and past few weeks at work, and would not have had the energy to do it if I was not taking these shakes when I started feeling worn down. My faith in God and these products have really pulled me through.
Take care Madam.