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Edna Belle
03-02-2010, 11:55 AM
New to "forums" and Lupus as well. 52 yr old female - have swollen hands, wrist, fingers, knees, ankles & toes! Hurt like hell; now even in lower back. This has been going on for over a month - still can't see specialist until 3/10! I live for Ibuprofen, hot tubs and hot showers! My Doc only has 2 patients with this disease and, as of now, can only be sypathetic - it's the specialist I'm kinda mad at .... a month to get a referral! Thanks for letting me VENT ..... now I'm open for any pain relieving ideas you have! Am currently on a non-steriod anti-inflammatory which hasn't done anything and I've been taking for 3 weeks!

mountaindreamer
03-02-2010, 01:14 PM
hi edna,

oh, i am so sorry for all of your pain, and having to wait to see the specialist....that makes it worse. Are you seeing a rheumatologist? the 10th is not too far away, so hang in there and let's hope that the dr. is wonderful and that you get some immediate relief. the only suggestion that i can make about pain relief would be to ask if you have tried something like tylenol for rheumatoid arthritis. A lot of the medication that people take for lupus also treats rheumatoid arthritis. other than that, i suggest that you try to avoid being cold, and get plenty of rest.

please stay in touch and let us know how your drs. appointment goes. I am 57, so we are both in those wonderfully "sassy" years.

Edna Belle
03-02-2010, 01:51 PM
Yes - I will be seeing a Rheumatologist - unfortunately I think I am already going in with an attitude - attempted to reach him yesterday and he is not in the office until tomorrow. Plus - why hasn't he prescribed something stronger knowing what the blood test came back with - I KNOW my Dr is in daily contact with him about this. Thanks for making contact -

Angel Oliver
03-02-2010, 03:58 PM
Hello and welcome Edna Belle,

im sorry to hear abut your pain,but hope your doc see's you soon and eases your pain soon.Oh yes do go in with an attitude,in my experience thats the only language they hear and listen too.Goodluck.

Love Amanda.xxxx

magistramarla
03-02-2010, 10:25 PM
Hi Edna,
Welcome to WHL. You and I are the same age. I know how you feel about wanting something that will help with the pain. NSAIDs don't do much for me either, but they are the only thing that I can take. I react violently to any opioid and I just don't do well on any other narcotic.
Hopefully, your rheumy will get you started on Plaquenil, which almost everyone takes for AI issues. Many people are placed on Prednisone, another drug that I can't take. Steroids have bad side effects, but seem to help many people with pain and inflammation. The next step that many rheumys prescribe is an imminosuppressant, such as Methotrexate. Several of us are taking it, and it seems to help a bit.
I hope that you get some help and some answers soon.
Come back and keep us updated. Feel free to join in our conversations, and tell us about yourself.
Hugs,
Marla

Edna Belle
03-03-2010, 12:02 PM
I had a "flareup" or what Urgent Care Dr suspected when we were in Missouri in January - he didn't do blood test for Lupus but prescribed a steriod (can't think of name right now) to at least get me back to California - it worked wonderfully! After 3 doses swelling was down, pain in knees was gone - hopefully Rheum will at least put me on another one to get the swelling gone! Feet, legs and hands look and feel so bad. Thanks for the welcome!

mountaindreamer
03-03-2010, 07:14 PM
he edna,

yes, steroids usually give us quick and significant relief from the symptoms. I don't handle them very well, so only use them when i just can't get out of a flare. I take methotrexate to keep my sumptoms at a minimum, which has its own concerns. Both treatments are very serious drugs, and both have their own issues. You might want to study up on both steroids and immune suppresent/chemo treatment options...then when you go in to see the dr., you can discuss both options.

There are many members who use steroids and some who use an immune suppressent....any of us will be happy to help you discover and decide your treatment options.