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lucky7
02-24-2010, 11:56 AM
Im such a BLABBER i had to start a new thread! LOL My neuro also said that hes very concerend about my infection not going away on the left side of my head with the antibiotics he prescribed for 2 weeks. He said he really wants that lymph node biopsy performed to HOPEFULLY RULE OUT lymphoma. UGH! Cuz my lymph nodes have been swollen for SO LONG in my armpits,groin and neck. Thats a bad sign when antibiotics dont get them to go back down. That one really scares me! But, im gonna fight fight fight no matter what!!!!! PLEASE EVERYONE, LISTEN TO YOUR BODIES, i cant stress THAT enough. DONT let the drs get the best of you. If i would have id still be listening to my old GP laughing and shaking her head at me saying "Jeannette, ther's nothing wrong with you, you need to just relax more and dont be so worried about every little thing". Carl and I have lots of documentation since i left her saying something different along with the fact that ive gotten worse! We WILL see HER in court along with some others! LOL It took almost 4 yrs to get ANYTHING from the drs we kept jumping around to. Now we are keeping the good ones and were sayiing SCREW YOU to the BAD ONES! WOO HOO to THAT!!! LOVE YOU ALL!!!!:cute:

slada
02-24-2010, 12:21 PM
Hi Jeannette,sorry to hear that and I hope you will be ok.....
Dear friend I am scary to because I am complaining for 3 years and nobody listen,o this is ANXIETY Slada,you are healthy.I have enlarged lymph node under my jaw and ENT specijalist did biopsy in WRONG PLACE,so I have no idea what I have.O yes.......he told me see you in 6 months with ultrasound results....o wow........great Slada.....
Now my bood test show ESR 38 and hs CRP 19,2......so what now....?
and what is worse my doctor wont me to see rheumatologist on August and he told me he WILL not do any more testing because HE DON'T KNOW how to interpret results..
I am left along,so I went in Walk in Clinic and some young doctor order ANA test and he send referral to internal specialist.
My rheumatoid factor is OK,so do I have lupus or something else I don't know????
Thank you so much for your post and I hope you will be fine.
Love Slada

lucky7
02-24-2010, 12:38 PM
AWWWWW Slada im so SORRY for what you are dealing with! Drs arent God and they arent always right either. I had one dr look at an MRI result and say "you're fine" while another looked at it saying "you have an infection". ALWAYS listen to what your body is telling YOU. Ive been through so many drs i lost count. YOU have to be your OWN ADVOCATE sweetie, dont rely on the drs, you CANT, they will let you down at times. Just keep pushing ahead to get to the GOOD Ones. Also, blood work doesnt mean squat sometimes. My blood showed Rheumatoid arthritis a few yrs ago, now it shows nothing,ive had blood work ALL OVER THE PLACE through this all and THATS been what has SCREWED me out of MOST drs listening to ALL OF MY SYMPTOMS, not just what shows up in blood. ONE of my GOOD drs who FINALLY diagnosed me said its about putting EVERYTHING TOGETHER, not just whats going on in yourt blood,because THAT isnt the answer to alot of things. Heck, alot of people with Lupus DONT have it show up in their blood. ALOT of drs arent up to date with that FACT! I truely had to get to the point im at where my internal organs are being effected before MOST of the drs im seeing now would admit "oops, you DO HAVE Sjogrens, Lupus and Raynauds"! Well DUH!
DONT GIVE UP HUN! YOU WILL GET THERE! Look at me for example, it took me yrs BUT im there finally! GOOD LUCK and Im sending you HUGS and LOVE!!!! XXXOOO:heart::barf2:

Saysusie
02-24-2010, 12:43 PM
Lucky7;
I am sorry to hear that the antibiotics did not take care of the infection and that your doctor is concerned, as are you. I am keeping you in my thoughts and prayers that this issue does not turn out to be something serious.
I am glad to hear that, no matter what, you are going to continue to fight and that you are not going to let doctors give you the run around or dismiss you. You are right to keep the good ones and drop kick the bad ones. I hope that you have your day in court and that you are victorious!!!
Keep doing what you are doing! I truly admire you.

Peace and Blessings
Namaste
Saysusie

lucky7
02-24-2010, 02:23 PM
AWWWW, you mean so much to me Susie! THANK YOU! I TOO ADMIRE YOU AS WELL my FREIND! Drs just need to KNOW they are HURTING the very people they are supposed to be Protecting. ITS SICK. They need to THINK outside teh BOX once in a while,instead they feel BOTHERED and keep pushing you away like youre some Crazy person who needs to go home and take some Volume! No, THEY need to take a "Im going to find out whats wrong with you till its the last thing i do" pill! WOO HOO to THAT!!!!:nono::smashfreakB::thinking::hitwithrock:

laurid8967
02-25-2010, 08:24 AM
Hi Jeanette -
Just wanted to say Im hoping your test results are good and that you are feeling well soon. I SO admire your courage and enthusiasm despite your being sick right now...such an inspiration. And you are DEAD ON about the doctors that are out there..I went thru the same insanity for years - youre FINE cuz your blood work is fine; maybe you should see a psychiatrist; and many many other "opinions". I also finally had a doctor think outside the box, look at my WHOLE history and not really solely on blood work (Thank you God) and begin treatment. And - like you as well - had this disease attack my organs before it showed up in the blood work. Had a doctor treated me sooner, my lupus may have not progressed to the level of seriousness it is at now...HOWEVER - I am grateful to be where Im at today and also want to give HOPE to those here who have yet to find "that doctor". They are out there and I truly pray everyday that everyone here that is still in limbo finds one.
Thank you Jeanette for your encouragement and wonderfully positive outlook...its really amazing.
Love
Lauri

Saysusie
02-25-2010, 02:01 PM
Lucky7
I agree with you wholeheartedly. I wish that we could manufacture some " Im going to find out whats wrong with you till its the last thing i do" pills for these doctors because their uncaring and dismissive natures cause us great harm.
Often, I dream of being in a doctor's office when he/she says something uncaring and dismissive. In my dream, I immediately jump down from the table and strangle the doctor to death!! I never say a word, Just strangle him/her until he/she is silent and still and I walk out, happy and satisfiied!
Kind of gruesome and scary huh?? I probably should have kept that to myself :yes:

Peace and Blessings
Namaste
Saysusie

rob
02-25-2010, 02:03 PM
Hi Jeanette,

I'm sorry for this neverending series of health scares and symptoms. Check your inbox, I sent you a PM.

Rob

wrightrs
02-25-2010, 02:20 PM
Jeannette you are in my prayers. Sorry your doctors where putting you though this for so long. My Doctor's are wearing me down. They don't listen at all.

Angel Oliver
02-25-2010, 02:27 PM
Oh Jeanette,

Im so sorry to hear what you are going through but hope soon they get their finger out n help you get better.You words are so right my friend.I am and do keep telling the doctors but they can be so intimidating and overide what you tell them,i know im doing it allot lately.But even though they tell me to focus on the Chronic Fatigue Syndrome (M.E) and they ignore the sjogrens and Raynards and Fibro etc..i always get it in...but i have too many symptoms and everything points to Lupus.He now tells me,maybe they do it different in the USA.I tell him NO its the symptoms and criteria im going off and the rheumi told me himself before he change the diagnosis lol.Still that look comes my way :) I always remeber everything you taught me and will keep on keeping on.
I will be thinking of you.
love nhugs
Amanda.xxxxxx

lucky7
02-26-2010, 01:48 PM
AWWWW, THANK YOU Amanda Lauri, Rob,Susie and Becky! Your words mean SO MUCH!!! SO SWEET! LOL Susie! I LOVE the DREAM!!! NOT SCARY at all!!!!! Heck, i think we ALL have those dreams! I know i DO!!!!! Lets do it TOGETHER!!! Ill walk out smiling as well!!! LOL Seriously! So keep on sharing!!!!! LOL
AWWWW, Becky, PLEASE DONT LET THEM WEAR YOU DOWN. I COMPLETELY UNDERSTAND BUT, just when i start to feel that way ive been lucky enough to land a GOOD one. It just takes time and patience. SO SAD but SO TRUE. KEEP FIGHTING BABY! WOO HOO!!!:vader:
AWWWWW, Amanda! Jsut do what Susie did in her dream and you'll feel better! LOL Come on, the USA is different about Lupus,that right there tells you how DUMB he is! Once again its about looking outside the box. Let HIM KNOW THAT next time you see him. OK? Seriously sweetie. Let that LION ROARRRRRRR!!!! WOO HOO!!!!:aargh4:
AWWWW, Lauri, THANK YOU for admiring something about me! THAT puts a SMILE on my face!!!! Im with you too about everyone finding a GOOD one who are still in limbo. WE ARE KEEPING OUR "SEND A GOOD ONE YOUR WAY" vibes to YOU ALL!!!!:musik28:
HEY ROB! Look in your inbox!:1244:

Bonita
02-26-2010, 01:54 PM
Dear Jannette i will be putting you on the top of my prayer list and i really do hope that things will be okay for you. Maybe they did not find the right antibiotic yet. I am so thankfull i have a very wonderfull rhuematologist. Because when i first started this journey i really thought all of this was in my head. Love and prayers Bonita Remember when God closes one door He opens another.

lucky7
02-26-2010, 02:01 PM
AWWWW, THANK YOU Bonita! Yeah, YOU DO start questioning yourself when you go to so many idiotic drs HUH! BUT, like i always say, LISTEN TO YOUR BODIES,they are talking to us for a REASON. Hopefully there IS an antibiotic out there to rid this infection! I say WELL LETS FIND IT LIKE RIGHT NOW! LOL :stupid::damnit:

mountaindreamer
02-26-2010, 09:49 PM
hi jeannette,

i am so sorry to hear about these scary times that you are going through. Please keep us updated on your findings. I send you gentle hugs and millions of "angels of strength". You and Carl are a strong team, and i know you will stand together through this latest set of tests. Love yourself sweetie, you deserve it.

Faith
02-28-2010, 03:32 PM
Hi Lucky7,

I am sorry to hear you are having more problems; but happy you have FINALLY found a good doctor. I will keep you in my prayers.

God Bless,

Faith