09-03-2005, 01:43 PM
Hi. my name is Renee. I'm 35 with two small children 3 and 5. Here's my story. I really need advice what you all think what is going on here based upon your experiences. In 2000, 9 months after giving birth, my ankles were hurting do i went to the Dr. He took an ANA and it came back 1:160. Everything else was fine (SED, CPK, etc). Went to Rhumi and it was down to 1:40. Heard nothing after that. No mention of Lupus, nothing. Fast forward to 2003. Got a flu shot (i will regret that for the rest of my life) and things started going nuts. Tingling sensations (which have ceased), strange aches and pains (some in joints, but most not)...plantars facitis pain in feet. Went to everyone, Dr., Rhumi, neurologist..all was OK. ANA was negative, MRI's for MS was negative, blood work was fine. Still, sensations. On and off now since then. I have had a rash in my cleavage area where the breasts meet the skin (they are a DD and always were a B, so i figured with the sweat from that area, etc.) not raised, not scaly, just red. I dont see a mylar on my face, although my face does gets a little red in the sun (but goes away) but whos doesnt? Now, just went back to the Dr. and he took an ANA. It was 1:40. He said he does not think I have lupus. My hair has been shedding alot, although i just stopped nursing 6 months ago, wear my hair up in a ponytail all day so i dont brush it,so maybe its the days hairs i was supposed to be shedding? does it seem a little thinner, yes, but I do not have alopecia spots. My joints are not achy, some are tender if i poke them hard enough (elbow, knee). Its more muscle aches and sensations. thats all, though. Nothing else. My eye pressure is higher than it should be (early 20's) which is another new thing I've been dealing with. Eye Dr. says its ok, but keeping tabs for glaucoma. My memory hasnt been the greatest lately, like I'll forget where i put something, then I''ll remember. Rhumi hasnt seen me since the new 1:40 ANA (SED and CPK were normal, btw) i just got back, but when i saw here prior she thought I had Fibro. Ok, with your experiences, what do you think is going on here? I looked at the 11 criteria and only have the weekly positive ANA. For Fibro, I have 10 out of 13. I am a total nervous wreck. I am completely flipping out! I mean, I have two small kids! I'm there MOTHER! I NEED to see these kids grow up, see my grandchildren...dance wtih my son as his wedding! I'm hysterical writing this. If this is just fibro, whats up with the ANA? Dr. said some people just have it elevated. I dont know what to do. I dont understand. I made an appt for the DR for tuesday and I want him to do tons of blood work. Any suggestions? Does this sound like lupus? If so, what about living? Is this a thing I could live with for 40 years? I'm sorry to be so dramatic, but the thought of my kids...i cant bear it. Any advice (good, bad or indifferent) would be appreciated. Thank you and God Bless.