View Full Version : I haven't been on in forever!...so heres an update
02-16-2010, 10:36 AM
So, since the seizure back in January, I have had some crazy happenings. A week after I had the seizure I found out I was pregnant with my 2nd child. I am currently 8 weeks along now and high risk due to the seizures and the lupus. I have to see my rheumy every 2 months during my pregnancy, see a high risk OB along with my regular OB, have more blood tests and sonos, I was taken off all my meds except Plaquenil, put on Keppra for seizures, and Im on a prenatal and extra folic acid daily. My lupus isn't too bad atm although Im waiting for blood test results. I have to do a 24 hr urine starting tomorrow to get a baseline for my kidneys and im waiting to hear if i have SSA & SSB antibodies(for heart block potential and neonatal lupus etc.)The baby seems to be fine, had my first sono Feb. 12th at 7 weeks and 3 days and the baby and my cervix look good, heartbeat was 140s and strong. I am due Sept. 25th 2010. I am looking for anyone who may have gone through a similar experience and to calm my nerves. I am soo tired all the time and scared its gonna cause another seizure. I have had to drop classes at school. Im just bummed in a way :( I am excited about the baby but nervous too because I dont want anything to happen to us. Like my bf said, "I hope her body can handle it." I am saying prayers so please pray with me and I hope you all are well. *hugs* Take care. -Brittanee
02-16-2010, 11:09 AM
OH wow Congratulations,but i soooooooo understand your fear.I have no answers,but others will be here soon to hopefully give you their experiences. I will keep you in my thoughts every day. Just take it slow and enjoy this time if you can, i know you are afraid whats going to happen,but wow a little baby,well done.
So glad Lupus is keeping at bay for now and i hope the seizures are under control for a long time.So glad you are back you were missed.You take care and i'll be thinking of you both.
lots of love
02-16-2010, 01:10 PM
Congratulations!!! it must be a worrying time, but just think a lovely little baby!!! I hope it all goes well, cant help with advice i'm afraid as mine are grown now. I wish you well, and hope that the lupus keeps at bay for you
02-16-2010, 02:42 PM
I will, indeed pray for you and with you. Congratulations on your pregnancy and the fact that the baby is healthy and strong. My prayers are that it continues this way though childbirth and afterwards.
I have no personal experience to share with you, I just wanted to give you my congratulations.
Peace and Blessings
02-16-2010, 02:52 PM
Congratulations and i to will remember you and the baby in my prayers. Love Bonita
02-16-2010, 10:00 PM
Hey Mommy of 2,
Congratulations. I haven't had the high risk pregnancies that you are having, but I have had 5 of them and I've helped to deliver 35 babies as a midwife's assistant. I suggest that you also add raspberry leaf tea into your daily routine. It's a great "pregnancy tonic". Also, eat lots of protein. The baby's brain and other organs develop better from you eating lots of protein. Also, avoid salt as it contributes to edema. Avoid salty, sugary, over-processed foods. Become a health-food nut and eat lots of fresh, whole foods. Get a nice balance of rest and exercise, and try not to worry.
Read and learn a lot while you are pregnant - you know the drill. Also, whether you did with the 1st one or not, consider breastfeeding if your meds don't preclude it. Read La Leche League's book The Womanly Art of Breastfeeding and check out the site 101 Reasons to Breastfeed your Baby.
02-17-2010, 01:13 PM
I'm going through the same thing right now. I'm 10 weeks pregnant, and I have epilepsy, lupus, fibromyalgia, and IBS. This is my first baby, so I worry about EVERYTHING. I had to do a 24-hour urine, and it's not bad at all. I had 17 vials of blood drawn at the first appointment and then 4 more from my high risk specialist. I was also taken off ALL my medicines. This is the first time in a very long time that I'm on NO medicines. All I'm taking is my prenatal vitamin. It's weird to not be taking anything, but my lupus is in remission and everything came back normal. I had high levels of protein in my urine, but the dr says that's normal for lupus patients. Just rest as much as you can and take any help you can get with anything. Also, enjoy those ultrasounds. It's been so nice seeing my baby grow. I got an ultrasound at 6, 8, and 9 weeks. I go back at 12 weeks, and if everything is normal, I'll go back every 4 weeks til 28 weeks. Then I'll go back to every 2 weeks. I wish you a happy and healthy pregnancy, and It'll be nice to have someone to talk to through all of this that is going through the same thing that I am. Feel free to message me any time. I'm on the computer A LOT. :)
02-17-2010, 05:27 PM
You must be excited and scared at the same time.
We are all praying with you, that everything goes well, with you and your baby.
Take it easy.
02-17-2010, 07:51 PM
Wow! A baby! Congratulations! I was gonna say you're gonna need to change your username to Mommy of 2 but Marla beat me to the punch. :) I will be praying for you and the baby.
02-17-2010, 11:19 PM
Congratulations! I will keep you in my prayers for an uneventful pregnancy! I haven't been pregnant since the Lupus, but all of my pregnancies were hgh risk. I know how stressful it can be. The most important advice I can give you is try not to stress. I know it's not as easy to do as it is to say. Also, listen to your body. High risk obgyn's are the best, and imo, more likely to listen when we say that we feel like something isn't quite right. Keep us updated!
02-18-2010, 11:57 AM
Thank you all for the congrats,good lucks & anything I didn't mention lol
Amanda I am so glad there's at least one person out there who is exactly like me! lol I def would love to keep in touch so feel free to pm me here or at my email email@example.com or even txt my cell 4432059755. If you have yahoo messenger my screen name is mommaof1lilboy
02-18-2010, 02:07 PM
Amanda congratulations to you too also and i hope you both do catch up together as you have so much in common right now. Thinking of you bothxxxx
02-19-2010, 11:05 AM
Congrats! I am now 25 weeks prego and the nervousness and excitement have not subsided. My only advice would be to take care of yourself first, babies will do what they do (grow, lol) but you need to be in the best health possible for baby to thrive. So far I have been able to keep my lupus in remission and my nephritis under control (I am always spilling protein). My doctors felt it best to put me on bed rest at 20 weeks since my job as a sales manager has me on my feet 8-10 hrs a day. I see my ob/gyn every 2 weeks, a neonatal specialist every 3 weeks for ultrasound, my rhuemy, oncologist and nephrologist each only once so far but they are updated by my ob/gyn. Feel free to pm me any questions I can help you with!! Try to relax and enjoy. My first trimester was the pits I hope yours is better.
02-19-2010, 03:52 PM
I haven't seen you here for a while. It's good to see you back and to know that you and the little one are doing fine. Now we have at least 3 preggers on WHL. It's exciting! I hope that all of you keep us updated right up to and beyond the big event!