View Full Version : Long time no see bit of rough rise but i'm back what i missed????

tiggerlishus - Heidi
02-15-2010, 02:45 PM
Hay everyone sorry i haven't been on here in long time, been losing myself in facebook farming!!!! LOL

well little update on me!!
- been in alot of pain, and ever soo slightly depressed and extremely fatigued!!
- but hopefully things are looknig on the up!! went to remu in floods tears and i tihnk things are finally on the move!!
- they took me off sufasalazine and duxloxetine because they were making sick, they took me off plaquenil after a report back from the options saying i had discolourtation at the back of my eyes!
-but they did give me a steriods injection and back on 5mg a day steriods!!
-then they have done some reffering this sat 20th feb i'm gonig for a EMG/Nerve cunduction studies test, on the 25th of march i'm going for assessment to see about going on Rituximab! and i'm still waiting for appointment for eye clinic at hosp and i am actually being reffered to St Thomas's in london which i look forward to!

i also went to my gp about feeling so depressed but with everything gonig on they didn't want to prescribe me something else which i'm so he has reffered me to a group called Expert Patient Programme thier tagline is a a free course for people living with longterm health conditions which looks very interesting indeed!!

well thats everything medical other than that not alot alot of pj days with the regular days out to hospital for warfin check and rare occasssion out at local pub!

soo what have i missed??? and has anyone else had a EMG/ Nerve conduction studies test or been put on Rituximab???

Angel Oliver
02-15-2010, 03:52 PM
Ahhhhhhh welcome back, you are always missed. Wow allots been going on with you,but pj days are my life allot lately oh and Mafia wars lmao...scalped a few times hehehehehe. Hey i went on one of those courses, was ok and helpful and they teach you low grade exercises and stretching so not to hurt your pain you already have and coping strategies n stuff.Also i found going their once a week for a few months,the getting out and meeting others was a nice change to my pj days lol.So i hope it helps you. So glad you are back and glad appointments are happening for you too.Catch up with you soon.


tiggerlishus - Heidi
02-15-2010, 04:09 PM
thanks amanda i do feel like i spoke to soon!!!! went to my emails after writing this to find my exam results from december exmas and where i should be jumping over moon about passing my personal tax exam feel devasted for failnig my drafting finacial statements for second time!!!!!! feel like one step forward one step back!!! :-( i'm sure i'll feel much better in morning but feel really gutted and like people down that have helped me pay for doing this course!!

02-15-2010, 07:24 PM
Hi Heidi!
Let me give you a huge WELCOME BACK!! You were missed!!
I am so sorry to hear that you've gone through so much, but it sounds like your doctors are finally on the same page as you and are getting aggressive with treatment.
Most of us are still here and we are still fighting the good fight!! I am glad to see you back and I hope that you continue to do well. We are here for you:yes:

Peace and Blessings

02-15-2010, 10:33 PM
hey heidi,

so glad to see you around again, but i am sorry that you have been feeling so badly. Sounds like your dr. is searching for something that will help you,,,,,i hope he finds it soon.

i don't understand what tax exams and drafting financial statements are, but i am sorry that they are not going your way. Try one more time....maybe the third try will be the winner.

02-15-2010, 10:50 PM
Hi Farmville neighbor *smile*

I'm curious too what exams you're talking about...and agree with Phyllis...maybe 3rd time is a charm!

02-16-2010, 09:41 AM
Hi Heidi,
It is good to see you back.
Are you working at becoming an accountant? I had a friend in Texas who went through that a few years ago and the tests gave her fits, too. Just keep at it, though. Will they give you a third try on that test?
Good luck with the docs and the studying,

tiggerlishus - Heidi
02-16-2010, 12:02 PM
Hi Guys

Yes marla i am training to be an accountant those who living engalnd will know the association as AAT which is highly recogniasble qualifcation and association to be signed up on!
i am on my 4th year normally you can do it in 3 but due to my illness they have allowed me to do the last year over two years! and in december i think i wrote a thread but can't remember to tell you truth! lol
that i was sitting 2 exams personal tax exam and i was resitting drafting financial statements and i got the results last night i passed the personal tax but failed the drafting finacial statements again!! feeling bit more positive today thou still feel bit gutted!i have got to wait till back at college to see whats happening next i should be able to resit! fingers crossed!! thank you all for your support just hoping this emg thing will flag up something soo it can prove its not all in me headand it will get things moving more!!

and glad to haer your all ok think abotu you all everyday!!!

02-16-2010, 05:20 PM
hi heidi,

thanks for the explanation of your exams....i apologize for forgetting if you told us about college. congrats to you, i know you will graduate, and you will be an excellent accountant.

I thought you might be talking about another government agency in england that you were having to battle with. ha ha ha dummy me.

tiggerlishus - Heidi
02-17-2010, 03:02 AM
Hay more than welcome Phyllis I get confused with it all myself too!! lol

tiggerlishus - Heidi
02-17-2010, 05:07 PM
well just quick question for anyone that can answer it!!! been getting really bad mood swings rarely aggresive more like extreme happyness to absoulutely inconsolable!!! crying at the rediculously small thing on the tell to then chattering away on phone like some one has just had the best news ever!!! one do many other people get this and if soo how do you deal with it i am finding the rollarcoaster side of it the worst!! very exausting!!!