View Full Version : increased appetite at v. low dose of prednisone?

09-02-2005, 10:09 AM
i'm currently on 5 mg of prednisone and i sometimes feel i eat more than everyone else in my family. Could this increased appetite be due to prednisone, even though i'm on a very low dose? Or do i possibly have an eating disorder?


09-03-2005, 01:43 PM
No you do not have a eating disorder. It's the predisone. After I got out of the hospital I gained 50 pounds. I was eating everything in sight. SO it's not you. With that med. it seems like anything you eat, you gain weight.

09-04-2005, 05:16 AM
I agree, no eating disorder. The prednisone will really kick up your appetite. I have found that staying away from carbs as much as possible helps some.


09-04-2005, 08:55 PM
I agree the low carb diet is a wonderful thing... I lost 70 lbs on it before all this stuff started... But, Dina, you have lupus nephritis right? If you do the low carb thing make sure you talk to your doctor first, because I was told to stay away from the low carb thing right now, because the protein makes your kidneys work harder! Which really sucks because I think I'm gaining again as well... Grumble grumble grumble...

09-05-2005, 08:15 AM
wow..that's a great achievement!
yes true, lupus nephritis, i think i heard that somewhere too..anyway i'm seeing my nephro on wednesday so i'll remember to bring that up and thanks anyway :D

09-05-2005, 09:15 AM
Question: Are you seeing a rheumatologist, too? Or just a Nephrologist? I ask because I am not seeing a rheumetologist, nor have I even been referred to one, and wonder if I should be, since they are the "Lupus experts" or whatever... Thanks.

09-05-2005, 11:41 AM
No, I only see a nephrologist even though I agree with you that rheumatologists are the specialists..i think it depends on the type of lupus u have and i haven't even been referred to a rheumy before
and when i travelled abroad for a second opinion i saw a rheumatologist who wrote his report after speaking with a nephrologist so i personally think that in lupus nephritis it's more imp. to see a nephrologist
sorry that was too long!!

09-05-2005, 09:15 PM
I too want to eat the couch on 5 mgs. of Prednisone. I felt hungry all the time, but I do have good news... I have discovered the best diet for people with Lupus on Prednisone. It's called the 3 hour diet by Jorge Cruise. You eat every three hours and lose weight. I have currently lost 10 lbs in one month and it has helped me tremendously.

I hope this helps!

09-06-2005, 02:15 AM
can u please tell me more about this diet? or perhape there is a site where i can get more information? because i really need to lose that extra weight!!
thanks that was really helpful..you gave me some hope! :)

09-06-2005, 02:16 AM
can u please tell me more about this diet? or perhape there is a site where i can get more information? because i really need to lose that extra weight!!
thanks that was really helpful..you gave me some hope! :)

09-06-2005, 08:25 AM
This 3 hour diet is simple: Eat every three hours and follow these rules:

Meal 1: Breakfast - 400 Calories of balanced nutrients
Meal 2: Snack A - 100 Calories
Meal 3: Lunch - 400 Calories of balanced nutrients
Meal 4: Snack B - 100 Calories
Meal 5: Dinner - 400 Calories of balanced nutrients
Meal 6: Treat - 50 calories

The book is great, I suggest buying it if this diet is up your alley.

09-09-2005, 06:57 PM
I too have lupus neph. and I've seen both doctors. When my LN was very active and I needed the chemo I saw both drs. Now, I just see my rheumy and my PCP. Please don't forget him/her. It might be a good idea to have both even though you may not use both all the time. Hope that made sense? I have both (good way to bounce ideas) and if needed can call the other one for second opinions and emergencies. You never know with this disease.

Also, I also gain weight with my pred. Even at 5mg and I haven't had less than that in 16 years! Sometimes I need the water pill to help the kidneys. I do know that whenever I know I'm taking tests, esp. the 24 hr protein, I limit my protein. The dr said the more you eat the more you'll spill b/c my kidneys are damaged. So, I limit my intake a few days before the test. My biggest problem is that I crave protein! Anyone else?

Never heard of the diet book. Will have to check it out. Did your rheumy/neph. suggest it? My dr said limit to a 1200 calorie, yeah right!?!

09-10-2005, 12:20 AM
I just wanted to reply about the question about protein cravings. My daughter (13), has SLE and this week she was a total protein nut. After school on Wednesday, she ate 2 cans of tuna. She has eaten cooked chicken breasts, pot roast, eggs (she has always HATED eggs until 1 month ago). I thought it was just her. (She is on 25mg. prednisone, along with a bunch more meds.)

So, I guess you are not the only one.


09-10-2005, 12:35 PM

I have been reading your posts about your weight for a couple weeks, now. Please tell me if I am over-stepping any lines by what I am about to say, but I am concerned.

I think that you are stressing WAAAAAAAY more than you need to be over this. Not that weight gain isn't important... But, stress is proven to be detrimental to your immune system... It is also proven that stress not only makes it harder to lose weight, but, actually makes you gain weight for the most part.

I think that if you are doing everything that you can (Eating healthy, exercising, etc.) that stressing over it will only make it worse.

The extra stress is not only bad for your weight situation, but your lupus as well, not to mention the depression you have posted about.

And, really, if you stress yourself out so much that it affects your lupus, and makes you more sick, who really cares about a couple extra lbs?

Again, not to downplay your weight gain... but, I think the harm that the unneeded stress could do to you, is far greater than accepting a little bit of extra weight that will more than likely go away if you are doing the right things... It just may take a little longer.

Again, please tell me to shut up if I am crossing any lines... But, I am concerned.

09-11-2005, 05:42 AM
dear SoleSinger,
thank you for your concern and no you aren't overstepping any lines :) actually i think you're right but maybe i need more time to accept the fact that this is my weight now, and it was out of my hands in the first place. I think i'd better aim to maintain my current weight instead of trying to lose some..
i do get really stressed at times, and not only about my weight, but when making other decisions in my life, and I guess I ought to watch out for my health a bit more.
Moreover, I'm within the normal weight range for my height so far,,and I hope I don't gain weight anymore!
Anyway, best of luck to you and feel free to speak anytime!!


09-13-2005, 05:34 PM
Just wanted to pipe in about the Rheumy/Nephrologist point. I have Lupus Nephritis, too, and use both, as well as my Primary Care Physician when I get a cold and such. This is so important! Sometimes our Lupus makes us forget other things can happen to us as well. For example, my sister recently moved (she has Lupus, too) and got a new Rheumy right away, but put off finding a PCP. Well, she thought she had a bladder infection, but just kind of treated it herself and thought it was getting better. She left on her honeymoon, got more sick, and ended up in the hospital on IV antibiotics for a bladder infection that spread to her kidneys, then blood.

Plus, I think it's important to still have a Rheumy with nephritis because you never know when those other symptoms might start popping up, and most nephrologists only seem to know and want to treat the kidneys.

P.S. With the weight thing, you just never know what Prednisone is going to do.... I lost weight on it and am only now back to my regular weight (and I didn't have any weight to lose). My sister looks anorexic because she can't keep weight on from Lupus and Prednisone. So, if it's not one thing, it's another!

09-13-2005, 07:30 PM
Dont stress too much about the kidney biopsy I have had three...its basically a few tests before the procedure and during the procedure there will be like ninety people to help out if your anxious at any point...just relax and be calm its over in no time...but afterward isnt so fun ...You will have to lay on your back for 8 hours afterwards just because they want to be causious about the kindeys and if they are bleeding or not...but its a peice of cake ..:)
They can also give you some seditives so afterwards you sleep through the 8 hours..i suggest that the first time..i got really stressed and anxious the first time...and after it was done and I slept it was great..
Later the day and the next few days it feels like you have been punched in the back...but in all reality it could be worse.

11-03-2005, 11:15 AM
I stopped taking predn in June...I have lost 22lbs and did not diet. I am still loosing the 50lbs that predn put on me. I ate everything in sight and it tasted great!!! LOL Watch your in take, it may not be easy to lose weight later!

11-06-2005, 11:50 AM
it's the meds! they are a two faced son of a gun! I know it's tough I gained almost 80 pounds and now that I have been put on a lower dose I thought it would help me loose it but NOPE! I haven't gained anymore thank God but I can't loose not even one pound!!!!!!!!!!!!

but it helps with the flare so it's a double sided coin!

take care

11-09-2005, 11:07 AM
I did lose quite a bit of weight, before the dx, and everything tasted horrible and gave you stomach ache. Since I've been taking the prednisone I'm literally obsessed with food. I love the grocery store, I've been cooking on a regular basis and my day seems to revolve around the next meal or snack.
Going to try the 3- hour diet, that sounds good as I don't wont to gain too much, but you can't stress over it, if gaining a little makes the lupus feel better, go for it.