View Full Version : hello all, new to board

09-01-2005, 08:51 PM
I am new to the board. I have had a low-grade fever for several months and swollen lymph nodes, and a rash and swelling around my eyes.

I saw an internist 2 weeks ago who did a blood test, and my ANA was high so I am being referred to a neurologist, and that apt. isn't until Sept.29, hurry up and wait.

I also have severe migraines which have gotten worse. Is this a symptom of Lupus?

I have severe back problems having been hit by two drunk drivers in my life, the last was 5 yrs ago. I just had L4-5 fusion surgery 6 months ago, and have a herniated disc at T7-8, and C5-6.

I get massages and chiropractic treatment regularly, but none of it seems to help, it's like my muscles get tight and turn to stone.

Is this caused from Lupus? I did some reading on it online, but didn't see in depth details.

Any responses are welcome.
Blossom :cry:

09-02-2005, 02:58 AM
Hi Blossom!

Sorry to hear what you are giong through. The positive ANA test is an indicator of lupus. The headaches and rash are possibilities as well. You are on the right track going to a specialist but I'm surprised that you haven't been sent to a rheumatologist if they suspect lupus. There are no specific lupus tests where if you test positive you have lupus. They check a number of things that are indicators of it.

Good luck to you on it.


09-02-2005, 05:22 AM
Welcome Blossom. You'll find lots of information and support here. I agree with everything andyman said. I'm surprised that you were not referred to a rheumatologist since they are the specialists who treat lupus. If you go to the lupus foundation of America website, they list symptoms and criteria for diagnosing lupus. A high ANA usually indicates some type of autoimmune activity. I hope you get some answers and relief soon. Take care.

09-02-2005, 08:13 AM
Ya'll, I reckon he is sending me to a neurologist because of my back history, and severe migraines. You know how these doctor's are, I imagine I will see several specialists before it's all said and done. I really dislike doctors, have had bad dealings with them over my back. I hope this goes alot smoother.

Thanks for the welcome.

What were your symptoms before diagnosis? :?:

Hugs, Blossom

09-02-2005, 12:09 PM
My very first symptoms were overwhelming fatigue and muscle weakness with muscle pain. Then I gradually began to develop fevers, swollen glands, sun sensitivity, rashes, mouth sores, painful and swollen joints. I've heard that lupus develops differently in different people and that it can sometimes take a while before some symptoms develop. I have a hard time with doctors too. My first rheumatologist didn't want to believe I was sick and just kind of brushed me off. I finally switched specialists and my new rheumy is better. I recently went into my local clinic (my rheumy is an hour away) for unexplained bruising and the guy said I must have bumped something and didn't know it (I had bruises all over both legs). I think really good doctors are few and far between. I hope you get a great one.

09-02-2005, 08:22 PM
Welcome Blossom!

I am sorry to hear what you have been going through... Hopefully, they will get you all figured out and feeling better soon!

I haven't seen a rheumatologist either... Only my renal team... In fact, it was the renal team that diagnosed me... Hmm...

09-08-2005, 08:07 AM
Hello and Welcome Blossom;
many of the manifestations of the Lupus also occurs frequently as part of other, minor illnesses. For example, fever, fatigue and muscle aches and pains may all be part of episodic viral syndromes - but, they can also be symptoms of Lupus. Headaches represent another typical symptom of everyday life and minor illnesses, and at the same time may represent a significant manifestation of lupus, in particular, central nervous system involvement. Among lupus patients, the incidence of one specific kind of headache, a migrainous-like headache, is approximately ten percent. Whenever headaches are unusually prolonged and unresponsive to the usual pain relieving medications, they are likely to represent symptoms of lupus itself.
Some Lupus patients with migraines have revealed a variety of common signs and symptoms beginning many hours before the onset of the headache. These symptoms include loss of strength and energy, painful sensitivity to sight and sound, whiteness of the face or head, shivers, irritability and a variety of intellectual disturbances including difficulty concentrating, reading, writing, speaking, and blurred vision and nausea. Some researchers have said that the changes in concentration and thinking reported by lupus patients are symptoms of a migrainous process caused by spasm of the arteries of the brain. There is at least one report, in fact, of fleeting blindness as a manifestation of migraine in patients with lupus which was presumed to be due to spasm of the central retinal artery of the brain.
In any event, the important point to remember is that when headaches are intractable and not relieved by the usual pain relievers, or when they involve specific hallucinations or changes such as fleeting blindness associated with migrainous phenomenon, they most likely represent a manifestation of the underlying disease process (Lupus). Treatment with the usual medications for lupus including steroids, non-steroidal anti-inflammatory medications, and Plaquenil, in addition to the use of drugs like nifedipine, which can dilate the arteries, are often considered in the treatment of lupus migraines.
The tight muscles can also be a symptom of lupus and/or Fibromyalgia (an illness that many of us Lupies also suffer from). Fibromyalgia is characterized by: muscle pain, muscle tightness, fatigue and trouble sleeping.
In Lupus, inflammation can result in the symptom of tight muscles. Joint and muscle pains are very common symptoms of systemic lupus. In fact, ninety percent of people with lupus will experience joint and/or muscle pain at some time during the course of their illness. Unlike the joints, the muscles can be seriously damaged by SLE. This damage may result in muscle weakness and loss of strength unless early, appropriate treatment is given.
Inflamed muscles may not only be painful, but may also be tender to the touch and tight. Corticosteroids (Prednisone) are prescribed for the treatment of SLE muscle pain and inflammation. High doses (50 mg. per day or more of Prednisone or equivalent) are initially given for prompt suppression and control of the inflammation. The steroid dose is gradually reduced as the inflammation subsides, as determined by your symptoms and enzyme levels in the blood. The vast majority of people with lupus respond promptly and well to corticosteroids.

09-08-2005, 08:01 PM

Again, thanks for the great data!

I didn't know all of the stuff you mentioned about headaches.

I have a question for you on one thing. Have you ever heard of any relationship between encephalitis (sp?) and lupus? I had it when I was a kid and have always wondered about that.