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Mommyof1
01-19-2010, 09:29 AM
So I went to the allergy specialist and was told I am allergic to just about everything(grasses, molds, foods, weeds, feathers/cats/dogs, etc. Since I cant get allergy shots due to lupus and the allergy meds i tried do not agree with me, my allergist recommended prednisone to control my symptoms. However my rheumy seems to think I only have joint/skin involvement(even though ive had burning pain since ive seen her & have other nervous system symptom) so im not too sure what she will have to say about this. Even though the plaquenil has helped some I know it is not controlling my disease & theres needs to be something added to control my disease process. Im just wanting to know if anyone thinks the prednisone is a good approach to my allergy/lupus perdicament and if anyone thinks I should consult a new rheumy about my care. She has not believed me about the cns lupus possibility and wont do a spinal tap to prove or disprove anything. I am at a stand still here and frustrated. I started back to school today for a new semester and already have a rash from the lights. I am very highly sensitive and it brings out my lupus horribly. I am just rambling now lol Sorry about that I am writing this post with severe brain fog...does it ever end?....ehh...hope you all are well. *hugs* -Lupie Britt

rob
01-19-2010, 10:40 AM
Hi Britt,

My personal opinion is, when in doubt, seek a second, or even a third opinion. There seems to be a surplus of rheumo's who do not listen to their patients, especially their Lupus patients. Prednisone is serious stuff with possible significant side effects. It can help with many inflammatory problems caused by Lupus though. What I'm saying, is that it can be an effective treatment option, but it's an option that should not to be approached lightly.

I'm curious about your possible cns symptoms. I see in your signature that you are taking Neurontin. Was it prescribed to help with possible cns pain? I take it to keep Trigeminal Neuralgia under control. It's a good med. About the brain fog, yes, it ends. But it sometimes comes back. I am a bit foggy myself today. Anyway, I think a second opinion from the appropriate specialist is a good idea.

Rob